Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary

2013 ◽  
Vol 9 (3) ◽  
pp. 217-226 ◽  
Author(s):  
Assumpta Ryan ◽  
Laurence Taggart ◽  
Maria Truesdale-Kennedy ◽  
Eamonn Slevin
Keyword(s):  
Older People ◽  
Intellectual Disabilities ◽  
Family Carers ◽  
People With Intellectual Disabilities

Health Status and Activities of Daily Living and Walking in Older People With Intellectual Disabilities

2009 ◽  
Vol 6 (4) ◽  
pp. 282-286 ◽  
Author(s):  
C. Michael Henderson ◽  
James P. Acquilano ◽  
Jon C. Meccarello ◽  
Philip W. Davidson ◽  
Laura M. Robinson ◽  
...  
Keyword(s):  
Health Status ◽  
Older People ◽  
Activities Of Daily Living ◽  
Intellectual Disabilities ◽  
Daily Living ◽  
People With Intellectual Disabilities

Views of family carers to the future accommodation and support needs of their relatives with intellectual disabilities

2006 ◽  
Vol 23 (4) ◽  
pp. 140-144 ◽  
Author(s):  
Roy McConkey ◽  
Jayne McConaghie ◽  
Owen Barr ◽  
Paul Roberts
Keyword(s):  
Intellectual Disabilities ◽  
Living Arrangements ◽  
Service Planning ◽  
Support Needs ◽  
Family Carers ◽  
Individual Interviews ◽  
Supported Accommodation ◽  
The Family ◽  
People With Intellectual Disabilities

AbstractObjectives: The demand for places in supported accommodation is likely to rise due to the increasing longevity of people with intellectual disabilities and as their parents become unavailable or unable to care for them. However few attempts have been made to ascertain carer's views on alternative accommodation.Method: Four studies were undertaken in Northern Ireland to ascertain carer's views using three different methods. In all, 387 carers participated with the response being greatest for individual interviews conducted in the family home and least for self-completed questionnaires and attendance at group meetings.Results: The majority of carers envisaged the person continuing to be cared for within the family. The most commonly chosen out-of-home provision was in residential or nursing homes, living with support in a house of their own and in homes for small groups of people. Few carers chose living with another family. However only small numbers of carers envisaged alternative provision being needed in the next two years and few had made any plans for alternative living arrangements.Conclusions: The implications for service planning are noted, primarily the need for individual reviews of future needs through person-centred planning; improved information to carers about various residential options and their differential benefits, along with more services aimed at improving the quality of life of people living with family carers. These need to be underpinned by a commitment of statutory agencies to partnership working with family carers. The implications for mental health services are noted.

scholarly journals Exploring coping strategies of carers looking after people with intellectual disabilities and dementia

2014 ◽  
Vol 8 (5) ◽  
pp. 292-301 ◽  
Author(s):  
Bhathika D. Perera ◽  
Penny J. Standen
Keyword(s):  
Focus Groups ◽  
Intellectual Disabilities ◽  
Coping Strategies ◽  
Qualitative Methodology ◽  
Vital Role ◽  
Family Carers ◽  
Narrative Strategy ◽  
Content Type ◽  
Face To Face ◽  
People With Intellectual Disabilities

Purpose – Carers play a vital role in looking after people with intellectual disabilities (ID). Caring role can be stressful and challenging in nature. Carers use various coping strategies to deal with stressors. The purpose of this paper is to explore coping strategies of carers looking after people with ID and dementia. Design/methodology/approach – Qualitative methodology was used to explore coping strategies. Focus groups and face-to-face interviews were carried out. These interviews were transcribed and analysed using thematic analysis. Findings – Nine interviews with carers (six paid carers and three family carers) and two focus groups with nursing staff looking after people with ID were carried out. Three key themes of “Narrative”, “Strategy toolbox” and “Compartmentalisation” emerged from analysis. Narrative and strategy took box were further subthemed. Carers had narratives about them and the person they look after. These “narratives” helped them to deal with day to day stressors. They also carried a “strategy toolbox”, which they used when they were in stressful situations. Compartmentalisation helped them to separate their personal life from work life as a carer. Originality/value – Understanding carers’ coping strategies is important when planning services to help carers who play an important role in our society. Professionals can support carers to understand and improve their existing coping skills and help them to thrive in their role as carers.

scholarly journals Family Voices: Life for Family Carers of People with Intellectual Disabilities in Ireland

2012 ◽  
Vol 26 (2) ◽  
pp. 119-132 ◽  
Author(s):  
Darren D. Chadwick ◽  
Hasheem Mannan ◽  
Edurne Garcia Iriarte ◽  
Roy McConkey ◽  
Patricia O'Brien ◽  
...  
Keyword(s):  
Intellectual Disabilities ◽  
Family Carers ◽  
People With Intellectual Disabilities

Predicting disabilities in daily functioning in older people with intellectual disabilities using a frailty index

2014 ◽  
Vol 35 (10) ◽  
pp. 2267-2277 ◽  
Author(s):  
Josje D. Schoufour ◽  
Arnold Mitnitski ◽  
Kenneth Rockwood ◽  
Thessa I.M. Hilgenkamp ◽  
Heleen M. Evenhuis ◽  
...  
Keyword(s):  
Older People ◽  
Intellectual Disabilities ◽  
Frailty Index ◽  
Daily Functioning ◽  
People With Intellectual Disabilities
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