scholarly journals Quality of life assessments in motor neurone disease patients on non-invasive ventilation using disease specific and treatment specific tools

2017 ◽  
Vol 26 ◽  
pp. 63-63
Keyword(s):  
Quality Of Life ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Invasive Ventilation ◽  
Non Invasive ◽  
Non Invasive Ventilation ◽  
Disease Specific

Effect of non‐invasive ventilation on survival, quality of life, respiratory function and cognition: A review of the literature

2006 ◽  
Vol 7 (4) ◽  
pp. 195-200 ◽  
Author(s):  
Sanne Piepers ◽  
Jan‐Paul Van Den Berg ◽  
Sandra Kalmijn ◽  
W‐Ludo Van Der Pol ◽  
John H. J. Wokke ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Respiratory Function ◽  
Invasive Ventilation ◽  
Review Of The Literature ◽  
Non Invasive ◽  
Non Invasive Ventilation

Exploring the feasibility of a music-assisted relaxation intervention to assist with the initiation of non-invasive ventilation in people with Motor Neuron Disease

2017 ◽  
Vol 9 (2) ◽  
pp. 86
Author(s):  
Jeanette Tamplin ◽  
Felicity A Baker ◽  
Rebecca Davies ◽  
Eleanor Bajo ◽  
Karen Bolger ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Motor Neuron ◽  
Motor Neuron Disease ◽  
Qualitative Data ◽  
Small Sample ◽  
Invasive Ventilation ◽  
Positive Effects ◽  
Non Invasive ◽  
Non Invasive Ventilation

Background: Transitioning to non-invasive ventilation (NIV) can cause anxiety in people with Motor Neuron Disease (MND), which may reduce adherence rates. Music therapy has demonstrated positive effects with mechanical (invasive) ventilation.Method: This feasibility study examined the effects of music-assisted relaxation (MAR) on NIV adherence, anxiety, and quality of life for people with MND. Data were collected at baseline, 7-days post, and 3-months post NIV implementation.Results: Of 18 consenting participants, 15 chose the MAR condition. Results suggested that supporting NIV transition within the first 7 days may be advantageous for long-term adherence. No effects were found for anxiety or quality of life. Limitations included small sample size, lack of an adequate control, and possible ceiling effects on the instruments used. Qualitative data indicated most participants considered the relaxing and distracting effects of MAR were useful.Conclusions: In this small sample, we found some demand for and acceptability of a music-based intervention in this setting. Participants reported differing experiences of using MAR, and there were technical and logistical issues regarding timely and accessible provision of a MAR intervention within the treatment trajectory of NIV implementation. Conflicting quantitative and qualitative data support the need for mixed method research in this area.

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