Parental emotional and hands‐on work—Experiences of parents with a newborn undergoing congenital heart surgery: A qualitative study

2019 ◽  
Vol 24 (4) ◽  
Author(s):  
Mirjam Thomi ◽  
Jean‐Pierre Pfammatter ◽  
Elisabeth Spichiger
Keyword(s):  
Qualitative Study ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Congenital Heart Surgery ◽  
Work Experiences ◽  
Hands On

scholarly journals Hands-on surgical training of congenital heart surgery using 3-dimensional print models

2017 ◽  
Vol 153 (6) ◽  
pp. 1530-1540 ◽  
Author(s):  
Shi-Joon Yoo ◽  
Thomas Spray ◽  
Erle H. Austin ◽  
Tae-Jin Yun ◽  
Glen S. van Arsdell
Keyword(s):  
Surgical Training ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Congenital Heart Surgery ◽  
3 Dimensional ◽  
Hands On

Hands-On Surgical Simulation in Congenital Heart Surgery: Literature Review and Future Perspective

2020 ◽  
Vol 32 (1) ◽  
pp. 98-105 ◽  
Author(s):  
Nabil Hussein ◽  
Osami Honjo ◽  
Christoph Haller ◽  
Edward Hickey ◽  
John G. Coles ◽  
...  
Keyword(s):  
Literature Review ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Surgical Simulation ◽  
Congenital Heart Surgery ◽  
Future Perspective ◽  
Hands On

scholarly journals Signs of deterioration in infants discharged home following congenital heart surgery in the first year of life: a qualitative study

2016 ◽  
Vol 101 (10) ◽  
pp. 902-908 ◽  
Author(s):  
Jenifer Tregay ◽  
Katherine L Brown ◽  
Sonya Crowe ◽  
Catherine Bull ◽  
Rachel L Knowles ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Congenital Heart ◽  
Heart Surgery ◽  
Home Monitoring ◽  
Congenital Heart Surgery ◽  
Warning Signs ◽  
First Year ◽  
At Risk Children ◽  
Seeking Help ◽  
First Year Of Life

AimsTo describe the ways in which parents recognise and make decisions about their child's symptoms following discharge home after congenital heart interventions in the first year of life and their experiences of seeking help.MethodsThis was a qualitative study involving semistructured interviews with parents. Twenty-one parents were recruited to the study. Parents all had a child who had congenital heart surgery in their first year of life between September 2009 and October 2013 at one of three UK cardiac centres; the children had either died or were readmitted as an emergency following initial discharge.ResultsSome parents were unable to identify any early warning signs. Others described symptoms of deterioration including changes in feeding and appearance, respiratory distress and subtle behavioural changes that may not be routinely highlighted to parents at discharge. Several barriers to accessing prompt medical assistance were identified including parents feeling that their concerns were not taken seriously, long wait times and lack of protocols at A&E.ConclusionsOur study highlights behavioural symptoms as being a potentially underemphasised sign of deterioration and identifies a number of barriers to parents accessing support when they are concerned. It is important that parents are encouraged to seek advice at the earliest opportunity and that those health professionals at the front line have access to the information they need in order to respond in an appropriate and timely way. A role for home monitoring was also noted as potentially useful in identifying at risk children who appear clinically well.

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