Family Quality of Life for People With Intellectual Disabilities in Catalonia

2015 ◽  
Vol 12 (4) ◽  
pp. 244-254 ◽  
Author(s):  
Climent Giné ◽  
Marta Gràcia ◽  
Rosa Vilaseca ◽  
Francesc Salvador Beltran ◽  
Anna Balcells-Balcells ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Intellectual Disabilities ◽  
Family Quality Of Life ◽  
People With Intellectual Disabilities

“I Would Like to Have a Normal Brother but I’m Happy With the Brother That I Have”: A Pilot Study About Intellectual Disabilities and Family Quality of Life From the Perspective of Siblings

2021 ◽  
pp. 0192513X2110428
Author(s):  
Raquel A. Correia ◽  
Maria João Seabra-Santos
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Intellectual Disabilities ◽  
Family Relationships ◽  
Leisure Activities ◽  
Well Being ◽  
Family Quality Of Life ◽  
Adult Sibling ◽  
The Disabled

The relationships between siblings are the most long-lasting in families. When one of the siblings is a person with intellectual disabilities (ID), this relationship assumes an even more important role since this brother/sister will most likely become the disabled individual’s main caregiver. This pilot study had two aims: to explore the experience as an adolescent or adult sibling of a person with ID and to understand the perceptions of these siblings about quality of life as a sibling and about family quality of life. In-depth interviews were conducted with six siblings. The results showed that the experience of a sibling is positive and the acceptance process is of extreme importance. The domains which, from the sibling perspective, contribute to family quality of life are as follows: Family relationships, Acceptance, Health, Influence of values, Financial well-being, Support from others, and Leisure activities. The implications of these findings for intervention are pointed out.

scholarly journals Giving Voice to Persons With Intellectual Disabilities About Family Quality of Life

2017 ◽  
Vol 14 (1) ◽  
pp. 59-67 ◽  
Author(s):  
Raquel Alveirinho Correia ◽  
Maria João Seabra-Santos ◽  
Paula Campos Pinto ◽  
Ivan Brown
Keyword(s):  
Quality Of Life ◽  
Intellectual Disabilities ◽  
Family Quality Of Life

On the Use of Speech Technologies to Achieve Inclusive Education for People with Intellectual Disabilities

2013 ◽  
pp. 163-174
Author(s):  
Ana Pérez Pérez ◽  
Zoraida Callejas Carrión ◽  
Ramón López-Cózar Delgado ◽  
David Griol Barres
Keyword(s):  
Quality Of Life ◽  
Intellectual Disabilities ◽  
Inclusive Education ◽  
New Technologies ◽  
Language Disorders ◽  
The Social ◽  
Educational Integration ◽  
People With Intellectual Disabilities ◽  
Speech And Language Disorders

New technologies have demonstrated a great potential to improve the social, labour, and educational integration of people with special needs. That is why there is a special interest of academia and industry to develop tools to assist this people, improving their autonomy and quality of life. Usually, intellectual disabilities are linked with speech and language disorders. In this chapter, the authors present a review on the efforts directed towards designing and developing speech technologies adapted to people with intellectual disabilities. Also, they describe the work they have conducted to study how to gather speech resources, which can be used to build speech-based systems that help them to communicate more effectively.

Healthy Athletes Program as a chance for a good quality of life of persons with intellectual disability and their families in the context of health and pro-health activities

2016 ◽  
Vol 24 (1) ◽  
pp. 19-30
Author(s):  
Anna Nadolska ◽  
Piotr Bejster
Keyword(s):  
Quality Of Life ◽  
Life Expectancy ◽  
Intellectual Disabilities ◽  
Health State ◽  
Special Olympics ◽  
Average Life Expectancy ◽  
Persons With Disabilities ◽  
People With Intellectual Disabilities ◽  
Families With Children

Abstract Background: One of the consequences of improperly extending the process of socialization is incorrect health education and thus, different structure of the behaviors associated with taking care of their own health. More difficult socio-economic situation of families with children with intellectual disabilities may not adequately protect the needs of family members (especially children’s) associated with health. Up to 1/3 of the cases of people with intellectual disabilities of poorer health state can result from lower socio-economic position (Emerson and Hatton, 2007). Educational failure, typical for families of children and young people with intellectual disabilities (especially mild) can result in the children not acquiring appropriate behaviors, important for health. If these behaviors are missing, consequently, can be expected to accelerate the deterioration of health. The health status of people with intellectual disabilities is worse than the state of health in the general population (Allerton, Welch, Emerson, 2011; Tample et al., 2006). The most serious consequence of the poorer health of people with intellectual disabilities is a higher mortality rate (Krahn et al, 2006). The average life expectancy of people with intellectual disabilities is 66 (excluding people with Down syndrome whose life expectancy is even shorter), and so more than 10 years shorter than of people. In so-called intellectual norm! Bearing in mind that access to the highest standard of health care for all people with disabilities is a law that was adopted on 13 December 2006 under the UN Convention on the Rights of Persons with Disabilities, Special Olympics Poland have taken the initiative leading to beneficial changes in quality of life for the players and their families in the context of health and modeling appropriate health behavior through the implementation of the Health Programme, which includes the two related projects: Healthy Athletes and Healthy Special Olympics Community.

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