scholarly journals Patients and family members´ perceptions of interprofessional teamwork in palliative care: A qualitative descriptive study

2022 ◽  
Author(s):  
Pauliina Kesonen ◽  
Leena Salminen ◽  
Elina Haavisto
Keyword(s):  
Palliative Care ◽  
Family Members ◽  
Descriptive Study ◽  
Interprofessional Teamwork ◽  
Qualitative Descriptive

scholarly journals Healthcare Professionals’ Perceptions of Support for Family Members in Specialist Palliative Care Inpatient Units – a Qualitative Descriptive Study

2021 ◽  
Author(s):  
Anu Soikkeli-Jalonen ◽  
Kaisa Mishina ◽  
Heli Virtanen ◽  
Andreas Charalambous ◽  
Elina Haavisto
Keyword(s):  
Palliative Care ◽  
Healthcare Professionals ◽  
Family Members ◽  
Family Care ◽  
Essential Element ◽  
Focus Group Interviews ◽  
Qualitative Descriptive ◽  
Group Interviews ◽  
Additional Support ◽  
Inpatient Units

Abstract Purpose: The aim of this study was to describe healthcare professionals’ (HCPs) perceptions of the support for family members (FMs) of palliative care cancer patients in specialist palliative inpatient units. Methods: A qualitative descriptive design was applied. The data were collected with focus group interviews and analysed with inductive content analysis.Results: Information sharing was recognised as an essential element of support. Also, emotional support, discussions and additional support were offered. Practices to improve support of FMs included a possibility to allocate recourses to the families, systematic support and strengthening HCPs’ competence in family care. Conclusions: The opportunities to implement support focusing directly on FMs were described as restricted. Organisational resources were limited in inpatient units. HCPs felt that they did not have enough time to spend with FMs, and the facilities were also not always suitable to support FMs’ presence and participation. Therefore, there is a need for systematic support and interventions for FMs that could be implemented in inpatient units by the HCPs as a part of the daily care. Furthermore, additional training for the HCPs in palliative family care is needed.

scholarly journals A condição da espiritualidade na assistência de enfermagem oncológica

2018 ◽  
Vol 12 (11) ◽  
pp. 3024
Author(s):  
Fellipe Cássio Silva ◽  
Ana Maria Sá Barreto Maciel ◽  
Ana Carla Silva Alexandre ◽  
Danielma Maria Barros Ferreira
Keyword(s):  
Palliative Care ◽  
Qualitative Data ◽  
Medical Oncology ◽  
Descriptive Study ◽  
System Method ◽  
Analysis Technique ◽  
Nursing Team ◽  
Qualitative Descriptive ◽  
Nursing Professionals ◽  
Oncology Center

RESUMO Objetivo: analisar aspectos referentes à espiritualidade em profissionais de Enfermagem que prestam assistência a pacientes em regime de cuidados paliativos. Método: trata-se de um estudo qualiquantitativo, do tipo descritivo, com seis profissionais da equipe de Enfermagem de um centro de oncologia. Utilizou-se um formulário semiestruturado para a coleta dos dados. Analisaram-se os dados qualitativos pela técnica de Análise de Conteúdo e os dados quantitativos com o auxílio do programa Epi Info,TM versão 2011. Resultados: revela-se que 83% afirmam desenvolver a espiritualidade durante a assistência prestada e 67% acreditam na interferência da espiritualidade na assistência por eles prestada, além de considerarem importante o diálogo sobre esta com os pacientes. Conclusão: constatou-se a crença em conseguir desenvolver a espiritualidade durante a assistência prestada e a existência de interferência da espiritualidade durante essa assistência prestada pela equipe de Enfermagem. Buscam-se, por meio de estudos dessa natureza, reflexões a respeito do processo de trabalho da Enfermagem no cuidado ao paciente oncológico a fim de subsidiar mecanismos que possam favorecer as habilidades no contexto da espiritualidade. Descritores: Espiritualidade; Religião; Cuidados Paliativos; Oncologia; Morte; Cuidados de Enfermagem.  ABSTRACT Objective: to analyze aspects related to spirituality in nursing professionals who provide care to patients in the palliative care system. Method: this is a qualitative, descriptive study with six professionals from the Nursing team of an oncology center. A semi-structured form was used to collect the data. Qualitative data was analyzed using the Content Analysis technique and the quantitative data with the help of the Epi Info, TM version 2011 program. Results: 83% reported developing spirituality during the care provided and 67% believed in interference of the spirituality in the assistance they provide, and also consider it important to dialogue with the patients. Conclusion: the belief in being able to develop spirituality during the care provided and the existence of spirituality interference during this care provided by the Nursing team was verified. Through studies of this nature, it is sought to reflect on the Nursing work process in the care of cancer patients, in order to subsidize mechanisms that may favor skills in the context of spirituality. Descriptors: Spirituality; Religion; Palliative Care; Medical Oncology; Death; Nursing Care.RESUMEN Objetivo: analizar aspectos referentes a la espiritualidad en profesionales de Enfermería que prestan asistencia a pacientes en régimen de cuidados paliativos. Método: se trata de un estudio cuali-cuantitativo, del tipo descriptivo, con seis profesionales del equipo de Enfermería de un centro de oncología. Se utilizó un formulario semiestructurado para la recolección de los datos. Se analizaron los datos cualitativos por la técnica de Análisis de Contenido y los datos cuantitativos con la ayuda del programa Epi Info, TM versión 2011. Resultados: se revela que el 83% afirma desarrollar la espiritualidad durante la asistencia prestada y el 67% cree en la interferencia de la espiritualidad en la asistencia por ellos prestada, además de considerar importante el diálogo sobre ésta con los pacientes. Conclusión: se constató la creencia en lograr desarrollar la espiritualidad durante la asistencia prestada y la existencia de interferencia de la espiritualidad durante esa asistencia prestada por el equipo de Enfermería. Se buscan, por medio de estudios de esa naturaleza, reflexiones acerca del proceso de trabajo de la Enfermería en el cuidado al paciente oncológico a fin de subsidiar mecanismos que puedan favorecer las habilidades en el contexto de la espiritualidad. Descriptores: Espiritualidad; Religión; uidados Paliativos; Oncología Médica; Muerte; Atención de Enfermería.

scholarly journals Transition to exclusive palliative care for women with breast cancer

2021 ◽  
Vol 74 (5) ◽  
Author(s):  
Audrei Castro Telles ◽  
Paulo Alexandre de Souza São Bento ◽  
Marléa Crescêncio Chagas ◽  
Ana Beatriz Azevedo de Queiroz ◽  
Nair Caroline Cavalcanti de Mendonça Bittencourt ◽  
...  
Keyword(s):  
Public Health ◽  
Breast Cancer ◽  
Palliative Care ◽  
Human Resources ◽  
Health Professionals ◽  
End Of Life Care ◽  
Descriptive Study ◽  
Physical Structure ◽  
Life Care ◽  
Qualitative Descriptive

ABSTRACT Objective: to analyze the perspectives that affect the transition to exclusive palliative care for women with breast cancer. Methods: qualitative, descriptive study, carried out in a public health institution in Rio de Janeiro, Brazil, between December 2018 and May 2019. 28 health professionals were interviewed. Content analysis was used in the thematic modality. Results: the operational difficulties were linked to the fragmented physical structure, the late and unplanned nature of the referral, the ineffective communication, and the deficit of human resources. In general, women and family members resist referral because they do not know palliative care. There is no consensus among oncologists on the most appropriate time to stop systemic therapy for disease control. Final considerations: the perceived difficulties configure an abrupt referral, accompanied by false hopes and, often, limited to end-of-life care.

Dignity of the patient-–family unit: further understanding in hospice palliative care

2019 ◽  
pp. bmjspcare-2019-001834 ◽  
Author(s):  
Qiaohong Guo ◽  
Ruishuang Zheng ◽  
Cynthia S Jacelon ◽  
Susan McClement ◽  
Genevieve Thompson ◽  
...  
Keyword(s):  
Palliative Care ◽  
Descriptive Study ◽  
Care Staff ◽  
Family Time ◽  
Family Unit ◽  
Staff Members ◽  
Cultural Considerations ◽  
Semistructured Interviews ◽  
Qualitative Descriptive ◽  
Hospice Palliative Care

ObjectivesThis study aimed to explore the construct of dignity of the patient–family dyad in hospice palliative care, as well as its influencing factors from the perspective of hospice palliative care staff.MethodsA qualitative descriptive study was conducted with 34 staff members from a residential hospice in Amherst, USA, and an inpatient palliative care unit in Winnipeg, Canada, between September 2013 and December 2016. Data were collected through semistructured interviews and were analysed using the thematic analysis approach.ResultsFindings suggested that staff members viewed dignity as something that is reciprocally supported within the patient–family unit. Themes including respect, comfort, privacy, being informed and quality family time were common in the conceptualisation of dignity in patients and families; themes of being human and being self, autonomy and living with dignity were uniquely used to conceptualise patient dignity. Themes solely constituting family dignity included being included in care, being capable and being treated fairly. Cultural considerations, environmental factors, teamwork and patient/family–staff relationship were the factors identified by staff members that affected dignity in hospice palliative care.ConclusionFindings of this study provide insights into the development of strategies to support the dignity of the patient–family unit in hospice palliative care.

Experience of care through patients, family members and health professionals in an intensive care unit: a qualitative descriptive study

2019 ◽  
Vol 33 (4) ◽  
pp. 912-920
Author(s):  
Julian Rodriguez‐Almagro ◽  
María Azucena Quero Palomino ◽  
Elena Aznar Sepulveda ◽  
María Del Mar Fernandez‐Espartero Rodriguez‐Barbe ◽  
Francisca Ortiz Fernandez ◽  
...  
Keyword(s):  
Intensive Care Unit ◽  
Intensive Care ◽  
Health Professionals ◽  
Family Members ◽  
Descriptive Study ◽  
Experience Of Care ◽  
Qualitative Descriptive

scholarly journals Palliative care physicians’ motivations for models of practicing in the community: A qualitative descriptive study

2021 ◽  
pp. 026921632110550
Author(s):  
Abby Maybee ◽  
Samantha Winemaker ◽  
Michelle Howard ◽  
Hsien Seow ◽  
Alexandra Farag ◽  
...  
Keyword(s):  
Primary Care ◽  
Palliative Care ◽  
Family Physician ◽  
Descriptive Study ◽  
Care Providers ◽  
Community Based ◽  
The Family ◽  
Consultation Model ◽  
Care Models ◽  
Qualitative Descriptive

Background: Internationally, both primary care providers and palliative care specialists are required to address palliative care needs of our communities. Clarity on the roles of primary and specialist-level palliative care providers is needed in order to improve access to care. This study examines how community-based palliative care physicians apply their roles as palliative care specialists, what motivates them, and the impact that has on how they practice. Design: A qualitative descriptive study using semi-structured virtual interviews of community-based palliative care specialists. We asked participants to describe their care processes and the factors that influence how they work. Setting/participants: A qualitative descriptive study using semi-structured virtual interviews of community-based palliative care physicians in Ontario, Canada was undertaken between March and June 2020. At interview end, participants indicated whether their practice approaches aligned with one or more models depicted in a conceptual framework that includes consultation (specialist provides recommendations to the family physician) and takeover (palliative care physician takes over all care responsibility from the family physician) models. Results: Of the 14 participants, 4 worked in a consultation model, 8 in a takeover model, and 2 were transitioning to a consultation model. Different motivators were found for the two practice models. In the takeover model, palliative care physicians were primarily motivated by their relationships with patients. In the consultation model, palliative care physicians were primarily motivated by their relationships with primary care. These differing motivations corresponded to differences in the day-to-day processes and outcomes of care. Conclusions: The physician’s personal or internal motivators were drivers in their practice style of takeover versus consultative palliative care models. Awareness of these motivations can aid our understanding of current models of care and help inform strategies to enhance consultative palliative care models.

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