‘The Woman Gives’: Exploring gender and relationship factors in HIV advance care planning among African American caregivers

2021 ◽  
Author(s):  
Allysha C. Maragh‐Bass ◽  
Danetta Hendricks Sloan ◽  
Elizabeth V. Aimone ◽  
Amy R. Knowlton
Keyword(s):  
African American ◽  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care ◽  
Relationship Factors ◽  
African American Caregivers

Prevalence of advance care planning in a resident run clinic in an underserved community.

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e24067-e24067
Author(s):  
Swetha Ann Alexander ◽  
Vinay Mathew Thomas ◽  
David Wu ◽  
Radhika Kulkarni ◽  
William Rabitaille
Keyword(s):  
Primary Care ◽  
African American ◽  
Advance Care Planning ◽  
Primary Care Clinic ◽  
Retrospective Chart Review ◽  
Care Planning ◽  
Care Clinic ◽  
Underserved Community ◽  
Advance Care ◽  
End Stage

e24067 Background: Advance Care Planning (ACP) ensures that patients receive care that is in line with their values and preferences. ACP is best done in the outpatient setting. Despite recognizing the importance of ACP, the rates of ACP completion continue to be low. We conducted a retrospective study to determine the rates of ACP in a resident run primary care clinic in Hartford, Connecticut, which serves the underserved community. We looked at patient characteristics to find correlation with ACP completion. We also aimed to determine the reasons which could decrease the completion of ACP. Methods: This was a retrospective chart review. Patients who met any of the inclusion criteria [i) Age>65 ii) End stage renal disease on dialysis iii) Metastatic/Recurrent cancer iv) End stage heart failure v) COPD Gold stage D] and were seen in the primary care clinic from September 1, 2019 to December 31, 2019 were selected. Their charts were reviewed to see if ACP was documented during primary care visits over the past two years. The demographics of the patients were noted. Subsequently, a survey was distributed to residents to determine the possible causes of low rates of ACP discussion. Results: The characteristics of the 373 patients included in the study are shown in Table 1. Only 14 (3.8%) of the 373 had documentation of ACP during their primary care visits. The characteristics of the 14 patients in whom ACP was done are as follows: Sex- Female 9/14 (64%); Ethnicity- Hispanic 10/14 (71%), African American 4/14 (29%); Religious Affiliation- Christian 13/14 (93%), None 1/14 (7%); Married/Partner 2/14 (14%). Patient demographics including sex (p 0.6), religious beliefs (p 0.8), and marital status (p 0.6) did not show any correlation with the likelihood of ACP completion. Of the 31 residents who answered the survey, the most commonly listed barriers to ACP completion were the following: lack of time to conduct these discussions (94%), forgetting to conduct ACP discussions (48%), and lack of training (19%). All the residents believed that ACP discussion was beneficial to patients and medical providers. Conclusions: The rates of ACP planning in our clinic are much lower than the national average. African American and Hispanics, who make up the majority of our clinic population, traditionally have had low rates of ACP completion. This is an important issue that needs to be addressed. Advance care planning training should be also be strengthened during residency. [Table: see text]

scholarly journals Use of a Computer Program for Advance Care Planning with African American Participants

2015 ◽  
Vol 107 (1) ◽  
pp. 26-32 ◽  
Author(s):  
Sarah A. Markham ◽  
Benjamin H. Levi ◽  
Michael J. Green ◽  
Jane R. Schubart
Keyword(s):  
African American ◽  
Computer Program ◽  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care

A Place Called LIFE: Exploring the Advance Care Planning of African-American PACE Enrollees

2008 ◽  
Vol 47 (3) ◽  
pp. 277-292 ◽  
Author(s):  
Sara Bressi Nath ◽  
Karen B. Hirschman ◽  
Beth Lewis ◽  
Neville E. Strumpf
Keyword(s):  
African American ◽  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care

“Peace With My Maker”: Voices of Seriously Ill African American Elders Regarding Advance Care Planning

2010 ◽  
Vol 17 (2) ◽  
pp. 119-125 ◽  
Author(s):  
Catherine Parsons Emmett ◽  
Debra Dobbs ◽  
Sharon Williams ◽  
Timothy P. Daaleman
Keyword(s):  
African American ◽  
Advance Care Planning ◽  
Care Planning ◽  
Advance Care ◽  
Seriously Ill
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