Reviewing causes of death of individuals with intellectual disability in New South Wales, Australia: a record‐linkage study

2021 ◽  
Author(s):  
A. R. Walker ◽  
J. N. Trollor ◽  
S. Reppermund ◽  
P. Srasuebkul
Keyword(s):  
Intellectual Disability ◽  
Record Linkage ◽  
Causes Of Death ◽  
New South ◽  
New South Wales ◽  
Linkage Study ◽  
South Wales

Vulvoplasty in New South Wales, 2001–2013: a population‐based record linkage study

2016 ◽  
Vol 205 (8) ◽  
pp. 365-369 ◽  
Author(s):  
Amanda J Ampt ◽  
Vijay Roach ◽  
Christine L Roberts
Keyword(s):  
Record Linkage ◽  
New South ◽  
New South Wales ◽  
Population Based ◽  
Linkage Study ◽  
South Wales

scholarly journals New South Wales Child Development Study (NSW-CDS): an Australian multiagency, multigenerational, longitudinal record linkage study

BMJ Open ◽  
2016 ◽  
Vol 6 (2) ◽  
pp. e009023 ◽  
Author(s):  
Vaughan J Carr ◽  
Felicity Harris ◽  
Alessandra Raudino ◽  
Luming Luo ◽  
Maina Kariuki ◽  
...  
Keyword(s):  
Child Development ◽  
Record Linkage ◽  
New South ◽  
New South Wales ◽  
Linkage Study ◽  
Development Study ◽  
South Wales

Hospital-related morbidity in people notified with hepatitis C: A population-based record linkage study in New South Wales, Australia

2010 ◽  
Vol 53 (1) ◽  
pp. 43-49 ◽  
Author(s):  
Heather F. Gidding ◽  
Janaki Amin ◽  
Gregory J. Dore ◽  
Kate Ward ◽  
Matthew G. Law
Keyword(s):  
Hepatitis C ◽  
Record Linkage ◽  
New South ◽  
New South Wales ◽  
Population Based ◽  
Linkage Study ◽  
South Wales

Liver cancer and hepatitis B and C in New South Wales, 1990-2002: a linkage study

2007 ◽  
Vol 31 (5) ◽  
pp. 475-482 ◽  
Author(s):  
Janaki Amin ◽  
Dianne O'Connell ◽  
Mark Bartlett ◽  
Elizabeth Tracey ◽  
John Kaldor ◽  
...  
Keyword(s):  
Liver Cancer ◽  
Hepatitis B ◽  
New South ◽  
New South Wales ◽  
Linkage Study ◽  
South Wales

Incidence and outcomes of aortic dissection for emergency departments in New South Wales, Australia 2017–2018: A data linkage study

2020 ◽  
Vol 32 (4) ◽  
pp. 599-603 ◽  
Author(s):  
Michael M Dinh ◽  
Kendall J Bein ◽  
John Delaney ◽  
Saartje Berendsen Russell ◽  
Tim Royle
Keyword(s):  
Aortic Dissection ◽  
Emergency Departments ◽  
Data Linkage ◽  
New South ◽  
New South Wales ◽  
Linkage Study ◽  
South Wales

scholarly journals Health and wellbeing of people with intellectual disability in New South Wales, Australia: a data linkage cohort

BMJ Open ◽  
2019 ◽  
Vol 9 (9) ◽  
pp. e031624 ◽  
Author(s):  
Simone Reppermund ◽  
Theresa Heintze ◽  
Preeyaporn Srasuebkul ◽  
Rebecca Reeve ◽  
Kimberlie Dean ◽  
...  
Keyword(s):  
Mental Health ◽  
Intellectual Disability ◽  
Health Service ◽  
Service Use ◽  
New South ◽  
New South Wales ◽  
Data Sets ◽  
Psychiatric Admission ◽  
South Wales ◽  
Wide Range

PurposePeople with intellectual disability (ID) experience high rates of physical and mental health problems, while access to appropriate healthcare is often poor. This cohort was established to develop an epidemiological profile related to the health, health service use, disability services, mortality and corrective services records of people with ID.ParticipantsThe cohort contains 92 542 people with ID (40% females) with a median age of 23 years (IQR: 12–43 years) and 2 004 475 people with a neuropsychiatric or developmental disorder diagnosis (50% females) with a median age of 51 years (IQR: 29–73 years) from New South Wales, Australia. The whole sample contains records for 2 097 017 individuals with most data sets spanning financial years 1 July 2001 to 30 June 2016. A wide range of data from linked population data sets are included in the areas of disability, health, corrective services and targeted specialist support services in public schools, Public Guardian and Ombudsman services.Findings to dateThis study includes one of the largest cohorts of people with ID internationally. Our data have shown that the presence of ID is significantly associated with emergency department presentations and psychiatric readmissions after the first psychiatric admission based on a subcohort of people with a psychiatric admission. Adults with ID experience premature mortality and over-representation of potentially avoidable deaths compared with the general population.Future plansWithin the health service system, we will examine different components, that is, inpatient, emergency adult services, children and younger people services and costs associated with healthcare as well as mortality, cause and predictors of death. The neuropsychiatric and developmental disorders comparison cohort allows comparisons of the physical health, mental health and service use profiles of people with ID and those with other neuropsychiatric disorders.

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