scholarly journals End‐of‐life care among older cancer patients with intellectual disability in comparison with the general population: a national register study

2020 ◽  
Vol 64 (5) ◽  
pp. 317-330
Author(s):  
M. Segerlantz ◽  
A. Axmon ◽  
G. Ahlström
Keyword(s):  
Intellectual Disability ◽  
General Population ◽  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
Register Study ◽  
Life Care ◽  
National Register ◽  
Older Cancer Patients

Impact of Emergency General Surgery on Quality of End-of-Life Care among Older Cancer Patients

2018 ◽  
Vol 227 (4) ◽  
pp. S124
Author(s):  
Katherine C. Lee ◽  
Daniel J. Sturgeon ◽  
Elizabeth J. Lilley ◽  
Eric Roeland ◽  
Stuart Lipsitz ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
General Surgery ◽  
End Of Life Care ◽  
Life Care ◽  
Emergency General Surgery ◽  
Older Cancer Patients

scholarly journals End-of-life care in intellectual disability: a retrospective cross-sectional study

2019 ◽  
Vol 10 (4) ◽  
pp. 469-477 ◽  
Author(s):  
Katherine Hunt ◽  
Jane Bernal ◽  
Rhian Worth ◽  
Julia Shearn ◽  
Paul Jarvis ◽  
...  
Keyword(s):  
Intellectual Disability ◽  
General Population ◽  
End Of Life ◽  
End Of Life Care ◽  
Population Based ◽  
Cross Sectional Study ◽  
Care Staff ◽  
Life Care ◽  
Care Providers ◽  
Cross Sectional

BackgroundAdults with intellectual disability (ID) experience inequality in access to healthcare that is considered to extend to end-of-life care. Their experiences of healthcare at the end of life and how these compare with the general population are unknown.AimTo describe the end-of-life care outcomes for adults with ID living in residential care in the UK using the VOICES-SF questionnaire and compare these with the general population.DesignNationwide population-based postbereavement survey.Participants38 ID care providers took part in the study. The supported over 13 000 people with ID. Over the 18-month period of data collection, 222 deaths were reported. The survey was completed, by care staff, for 157 (70.7%) of those deaths.ResultsDecedents had complex health, functional and behavioural needs. Death was unanticipated in a high proportion of cases. Quality of care provided across care settings was generally well rated. However, hospital care and care provided at the time of was less well rated, particularly in comparison with the general population. Respondents reported low levels of involvement in care and awareness of approaching death among adults with ID, and lower than in the general population.ConclusionsAccess to end-of-life care for adults with ID may be constrained by a failure to identify approaching the end of life. The high proportion of unexpected deaths in this population warrants further study. There is a need to increase and support the involvement of adults with ID to be active partners in planning care at the end of their lives.

scholarly journals End-of-life care for older cancer patients in the Veterans Health Administration versus the private sector

Cancer ◽  
2010 ◽  
Vol 116 (15) ◽  
pp. 3732-3739 ◽  
Author(s):  
Nancy L. Keating ◽  
Mary Beth Landrum ◽  
Elizabeth B. Lamont ◽  
Craig C. Earle ◽  
Samuel R. Bozeman ◽  
...  
Keyword(s):  
Private Sector ◽  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
Veterans Health Administration ◽  
Veterans Health ◽  
Life Care ◽  
Health Administration ◽  
Older Cancer Patients

Time Perception of Cancer Patients Without Evidence of Disease and Advanced Cancer Patients in a Palliative, End-of-Life-Care Setting

2011 ◽  
Vol 34 (6) ◽  
pp. 453-463 ◽  
Author(s):  
Hanneke W. M. van Laarhoven ◽  
Johannes Schilderman ◽  
Constans A. H. H. V. M. Verhagen ◽  
Judith B. Prins
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Time Perception ◽  
End Of Life Care ◽  
Care Setting ◽  
Life Care ◽  
Advanced Cancer Patients

scholarly journals United States Acculturation and Cancer Patients’ End-of-Life Care

PLoS ONE ◽  
2013 ◽  
Vol 8 (3) ◽  
pp. e58663 ◽  
Author(s):  
Alexi A. Wright ◽  
Heather Stieglitz ◽  
Yankel M. Kupersztoch ◽  
M. Elizabeth Paulk ◽  
Yookyung Kim ◽  
...  
Keyword(s):  
United States ◽  
End Of Life ◽  
Cancer Patients ◽  
End Of Life Care ◽  
Life Care
Sign in / Sign up

Export Citation Format

Share Document