Family reports of end‐of‐life care among veterans in home‐based primary care: The role of hospice

2021 ◽  
Author(s):  
Daniel Kinder ◽  
Dawn Smith ◽  
Mary Ersek ◽  
Melissa Wachterman ◽  
Joshua Thorpe ◽  
...  
Keyword(s):  
Primary Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Home Based Primary Care ◽  
Home Based

scholarly journals What does effective end-of-life care at home for children look like? A qualitative interview study exploring the perspectives of bereaved parents

2021 ◽  
pp. 026921632110233
Author(s):  
Cari Malcolm ◽  
Katherine Knighting
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Care Service ◽  
Life Care ◽  
Care Providers ◽  
Specialist Care ◽  
Bereaved Parents ◽  
Home Based ◽  
Qualitative Interview Study ◽  
At Home

Background: End-of-life care for children with life-shortening conditions is provided in a range of settings including hospital, hospice and home. What home-based, end-of-life care should entail or what best practice might look like is not widely reported, particularly from the perspective of parents who experienced the death of a child at home. Aim: To explore the value and assess the effectiveness of an innovative model of care providing home-based, end-of-life care as perceived by families who accessed the service. Design: A qualitative descriptive study design was employed with in-depth semi-structured interviews conducted with bereaved parents. Setting/participants: Thirteen bereaved parents of 10 children supported by the home-based end-of-life care service. Results: Parents reported effective aspects of end-of-life care provided at home to include: (1) ability to facilitate changes in preferred place of death; (2) trusted relationships with care providers who really know the child and family; (3) provision of child and family-centred care; (4) specialist care and support provided by the service as and when needed; and (5) quality and compassionate death and bereavement care. Parents proposed recommendations for future home-based end-of-life care including shared learning, improving access to home-based care for other families and dispelling hospice myths. Conclusion: Parents with experience of caring for a dying child at home offer valuable input to future the policy and practice surrounding effective home-based, end-of-life care for children. New models of care or service developments should consider the key components and attributes for effective home-based end-of-life identified by bereaved parents in this study.

DEVELOPING TRAINING FOR SUPPORTERS OF LAY-CARERS INVOLVED WITH HOME BASED END OF LIFE CARE: A PARTICIPATORY APPROACH

2014 ◽  
Vol 4 (1) ◽  
pp. 107.3-107
Author(s):  
B Hardy ◽  
G Caswell ◽  
G Ewing ◽  
G Grande ◽  
S Kennedy ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Participatory Approach ◽  
Life Care ◽  
Home Based

End of life care in the community: the role of ambulance clinicians

2013 ◽  
Vol 5 (7) ◽  
pp. 394-399 ◽  
Author(s):  
Annie Pettifer ◽  
Rosanna Bronnert
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Life Care

Relational Experiences of Family Caregivers Providing Home-Based End-of-Life Care

2012 ◽  
Vol 18 (4) ◽  
pp. 491-516 ◽  
Author(s):  
Catherine Ward-Griffin ◽  
Carol L. McWilliam ◽  
Abram Oudshoorn
Keyword(s):  
End Of Life ◽  
Family Caregivers ◽  
End Of Life Care ◽  
Life Care ◽  
Relational Experiences ◽  
Home Based

scholarly journals Primary care physicians’ educational needs and learning preferences in end of life care: A focus group study in the UK

2017 ◽  
Vol 16 (1) ◽  
Author(s):  
Lucy Ellen Selman ◽  
Lisa Jane Brighton ◽  
Vicky Robinson ◽  
Rob George ◽  
Shaheen A. Khan ◽  
...  
Keyword(s):  
Primary Care ◽  
Focus Group ◽  
End Of Life ◽  
End Of Life Care ◽  
Primary Care Physicians ◽  
Educational Needs ◽  
Learning Preferences ◽  
Life Care ◽  
Focus Group Study ◽  
The Uk

scholarly journals Continuation of end-of-life care in a special elderly nursing home and the role of doctors

2012 ◽  
Vol 49 (3) ◽  
pp. 336-343
Author(s):  
Akira Kurita ◽  
Naosuke Shinagawa ◽  
Eitarou Kodani ◽  
Shinichirou Iwahara ◽  
Bonpei Takase ◽  
...  
Keyword(s):  
Nursing Home ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care

End-of-Life Care in Patients Exposed to Home-Based Palliative Care vs Hospice Only

2019 ◽  
Vol 67 (6) ◽  
pp. 1226-1233 ◽  
Author(s):  
Susan E. Wang ◽  
In-Lu Amy Liu ◽  
Janet S. Lee ◽  
Peter Khang ◽  
Romina Rosen ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Home Based

False Expectations? Expectations vs. Probabilities for Dying

2000 ◽  
Vol 41 (3) ◽  
pp. 157-185 ◽  
Author(s):  
Carolyn M. Smith
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Living Will ◽  
Ethnographic Study ◽  
Life Care ◽  
Patient Attitudes ◽  
Affected Patient ◽  
Catastrophic Illness ◽  
Physician Relationship

It is widely recognized that the role of the physician has undergone dramatic changes in the last century—changes which have serious implications for the patient-physician relationship. This is an ethnographic study examining how certain changes in the role and abilities of biomedical physicians have affected patient attitudes and expectations about end-of-life care. In-home interviews were conducted with eighteen persons age fifty-five and older, including a sample of Hemlock Society members. Results indicate a broad spectrum of end-of-life concerns including capacity, autonomy, pain, and burden to loved ones. Most participants reported a reluctance to begin a discussion of death or future deteriorating capacity with their physicians. Instead, when conversations about death were reported, they had been largely limited to the scenarios of catastrophic illness (e.g., hospitalization, ventilator, etc.) and the Living Will. While this discussion does not overlook the utility of the Living Will, it proposes that reliance on this document for preparing patients for end-of-life care is inadequate.

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