Revisiting the Surveillance Epidemiology and End Results Cancer Registry and Medicare Health Outcomes Survey (SEER-MHOS) Linked Data Resource for Patient-Reported Outcomes Research in Older Adults with Cancer

2016 ◽  
Vol 64 (1) ◽  
pp. 186-192 ◽  
Author(s):  
Erin E. Kent ◽  
Rochelle Malinoff ◽  
Heather M. Rozjabek ◽  
Anita Ambs ◽  
Steven B. Clauser ◽  
...  
Keyword(s):  
Older Adults ◽  
Health Outcomes ◽  
Cancer Registry ◽  
Outcomes Research ◽  
Linked Data ◽  
Patient Reported Outcomes ◽  
Data Resource ◽  
Patient Reported ◽  
End Results

scholarly journals The feasibility of web surveys for obtaining patient-reported outcomes from cancer survivors: a randomized experiment comparing survey modes and brochure enclosures

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Morgan M. Millar ◽  
Joanne W. Elena ◽  
Lisa Gallicchio ◽  
Sandra L. Edwards ◽  
Marjorie E. Carter ◽  
...  
Keyword(s):  
Confidence Interval ◽  
Cancer Survivors ◽  
Cancer Registry ◽  
Patient Reported Outcomes ◽  
Web Surveys ◽  
Adjusted Risk ◽  
Adjusted Risk Ratio ◽  
Patient Reported ◽  
Paper Survey ◽  
Survey Modes

Abstract Background Central cancer registries are often used to survey population-based samples of cancer survivors. These surveys are typically administered via paper or telephone. In most populations, web surveys obtain much lower response rates than paper surveys. This study assessed the feasibility of web surveys for collecting patient-reported outcomes via a central cancer registry. Methods Potential participants were sampled from Utah Cancer Registry records. Sample members were randomly assigned to receive a web or paper survey, and then randomized to either receive or not receive an informative brochure describing the cancer registry. We calculated adjusted risk ratios with 95% confidence intervals to compare response likelihood and the demographic profile of respondents across study arms. Results The web survey response rate (43.2%) was lower than the paper survey (50.4%), but this difference was not statistically significant (adjusted risk ratio = 0.88, 95% confidence interval = 0.72, 1.07). The brochure also did not significantly influence the proportion responding (adjusted risk ratio = 1.03, 95% confidence interval = 0.85, 1.25). There were few differences in the demographic profiles of respondents across the survey modes. Older age increased likelihood of response to a paper questionnaire but not a web questionnaire. Conclusions Web surveys of cancer survivors are feasible without significantly influencing response rates, but providing a paper response option may be advisable particularly when surveying older individuals. Further examination of the varying effects of brochure enclosures across different survey modes is warranted.

scholarly journals Current state of quality of life and patient-reported outcomes research

2019 ◽  
Vol 121 ◽  
pp. 55-63 ◽  
Author(s):  
Andrew Bottomley ◽  
Jaap C. Reijneveld ◽  
Michael Koller ◽  
Henning Flechtner ◽  
Krzysztof A. Tomaszewski ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Outcomes Research ◽  
Patient Reported Outcomes ◽  
Current State ◽  
Patient Reported

scholarly journals PMC29 PATIENT REPORTED OUTCOMES RESEARCH IN A REAL TIME PRACTICE NETWORK

2008 ◽  
Vol 11 (6) ◽  
pp. A568
Author(s):  
JT Barr ◽  
GE Schumacher ◽  
E Myers ◽  
L Snetselaar
Keyword(s):  
Real Time ◽  
Outcomes Research ◽  
Patient Reported Outcomes ◽  
Patient Reported ◽  
Practice Network

scholarly journals 1259. Household Income and Its Relationship with Patient-Reported Outcomes Among Older People Living with HIV

2019 ◽  
Vol 6 (Supplement_2) ◽  
pp. S453-S454
Author(s):  
Peter Mazonson ◽  
Jeff Berko ◽  
Theoren Loo ◽  
Lynsay MacLaren ◽  
Erik S Lowman
Keyword(s):  
Health Outcomes ◽  
Household Income ◽  
Patient Reported Outcomes ◽  
Income Group ◽  
People Living With Hiv ◽  
Annual Household Income ◽  
Patient Reported ◽  
Part Time ◽  
Living With Hiv ◽  
The Relationship

Abstract Background Socioeconomic factors have been identified as a root cause of a wide range of health outcomes. However, there are no studies that describe the impact of these factors on patient-reported outcomes (PROs) among older (age 50+) people living with HIV (PLWH). This study examines the relationship between annual household income, sociodemographic factors, and several PROs among older PLWH. Methods A cross-sectional analysis examined the relationships between self-reported annual household income, sociodemographic information, and validated PROs. Statistical differences within sociodemographic groups were determined using chi-squared tests, and within PROs using bivariate risk ratios. Results Of 922 participants, the median age was 58 years (range: 50–88). The majority of participants were male (89%), gay (79%), and white (70%). Fifty-five percent reported an annual household income of less than $50,000 per year and 45% reported a household income of $50,000 or greater. Among people in the lower-income group, 33% were working full or part time, 24% were retired, and 43% were disabled, whereas among people in the higher income group, 76% were working full or part time, 19% were retired, and 5% were disabled (Table 1). Bivariate analysis showed that while there was not a significant relationship between age and income, income was significantly associated with work status, race, gender, education, relationship status, sexual orientation, and having enough money to meet basic needs. People with lower household income were significantly more likely to be depressed, anxious, and lonely, and to have 4 or more comorbid conditions (Table 2). They were also less likely to have high resilience, high social well-being, and high quality of life. Conclusion To the best of our knowledge, this is the first examination of the relationship between self-reported annual household income and PROs among older PLWH. In these bivariate analyses, income was positively associated with desirable PROs, and negatively associated with undesirable PROs. To be successful, programs designed to improve health outcomes for older PLWH must take into account the economic challenges faced by many in this group. Disclosures All authors: No reported disclosures.

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