scholarly journals The importance of data issues when comparing cystic fibrosis registry outcomes between countries: Are annual review FEV1 in the UK only collected when subjects are well?

2018 ◽  
Vol 24 (4) ◽  
pp. 745-751 ◽  
Author(s):  
Zhe Hui Hoo ◽  
Rachael Curley ◽  
Michael J. Campbell ◽  
Stephen J. Walters ◽  
Martin J. Wildman
Keyword(s):  
Cystic Fibrosis ◽  
Annual Review ◽  
The Uk

scholarly journals 241 Variation of cystic fibrosis annual review (AR) practices in the UK

2016 ◽  
Vol 15 ◽  
pp. S112
Author(s):  
C. Sellar ◽  
R.M. Kaminski ◽  
D. Nazareth
Keyword(s):  
Cystic Fibrosis ◽  
Annual Review ◽  
The Uk

scholarly journals P085 Investigating time between annual review encounters in the UK Cystic Fibrosis Registry

2019 ◽  
Vol 18 ◽  
pp. S81-S82
Author(s):  
E. McClenaghan ◽  
R. Cosgriff ◽  
M. Yip ◽  
S.C. Charman ◽  
A. Lee ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Annual Review ◽  
The Uk

scholarly journals Cystic fibrosis

2019 ◽  
Vol 13 (1) ◽  
pp. 39-46
Author(s):  
Jen Standen
Keyword(s):  
Cystic Fibrosis ◽  
Genetic Testing ◽  
Neonatal Screening ◽  
Tertiary Care ◽  
Multidisciplinary Care ◽  
Shared Care ◽  
The Uk

In the UK over 10 000 people live with cystic fibrosis (CF), with 1-in-25 people being carriers of the disease. Multidisciplinary care is provided by tertiary care CF centres, with or without local secondary service shared care agreements. There are still, however, several reasons why CF sufferers or their families present to their GPs. This article aims to provide a brief overview of CF and its management. It also gives the information needed to guide patients about genetic testing and neonatal screening for the disease.

scholarly journals Annual Review Clinic improves care in children with cystic fibrosis

2014 ◽  
Vol 13 (2) ◽  
pp. 186-189 ◽  
Author(s):  
Sandra Chuang ◽  
Michael Doumit ◽  
Rebecca McDonald ◽  
Erika Hennessy ◽  
Tamarah Katz ◽  
...  
Keyword(s):  
Cystic Fibrosis ◽  
Annual Review

Incidence and risk factors of cancer in individuals with cystic fibrosis in the UK; a case-control study

2021 ◽  
Author(s):  
Olga Archangelidi ◽  
Paul Cullinan ◽  
Nicholas J. Simmonds ◽  
Emmanouil Mentzakis ◽  
Daniel Peckham ◽  
...  
Keyword(s):  
Risk Factors ◽  
Cystic Fibrosis ◽  
Case Control Study ◽  
Case Control ◽  
The Uk ◽  
Control Study
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