Which information source is best? Concordance between patient report, clinician report and medical records of patient co-morbidity and adjuvant therapy health information

2015 ◽  
Vol 21 (2) ◽  
pp. 339-346 ◽  
Author(s):  
Katie J. De-loyde ◽  
James D. Harrison ◽  
Ivana Durcinoska ◽  
Heather L. Shepherd ◽  
Michael J. Solomon ◽  
...  
Keyword(s):  
Adjuvant Therapy ◽  
Health Information ◽  
Medical Records ◽  
Information Source ◽  
Patient Report ◽  
Report Clinician ◽  
Co Morbidity

Users’ experiences of an evidence-informed health information website for spinal cord injury: A prospective qualitative study across the hospital and community setting (Preprint)

2020 ◽  
Author(s):  
Christina Cassady ◽  
William Ben Mortenson ◽  
Andrea F Townson ◽  
Shannon Sproule ◽  
Janice Jennifer Eng
Keyword(s):  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Health Information ◽  
Information Needs ◽  
Information Source ◽  
Family Members ◽  
Hospital Setting ◽  
Community Setting ◽  
Therapeutic Education ◽  
Cord Injury

BACKGROUND Access to quality health information is essential for self-management after serious injuries such as spinal cord injury (SCI). OBJECTIVE The goal of this study was to evaluate the role of a consumer website in addressing the information needs of persons and families with SCI, as well as its impact on their knowledge and behaviour. METHODS Persons with SCI and family members were recruited from 3 settings: an acute hospital, a rehabilitation hospital, and an SCI community organization to acquire perspectives from early after injury to the chronic stage. Participants were introduced to the Spinal Cord Injury Research Evidence (SCIRE) Community website, which was an internet site developed to provide evidence-informed health information about SCI in everyday language. After using the SCIRE Community website for 4 weeks, semi-structured individual interviews were conducted to explore purposes of use, user experience, and impact on knowledge and behaviour. Interview transcripts were analyzed using qualitative thematic analysis. RESULTS The participants were 24 individuals (18 persons with SCI and 6 family members). Thirteen participants completed the study in a hospital setting and 11 participants in a community setting. We identified 3 main themes in the data: (1) ‘An internet tool to support and empower persons and families’ described the empowering nature of access to an independent information source which enabled persons and families with SCI to take a more active role in their care; (2) ‘an accessible source of credible information’ described how users valued easy to access content with oversight by experts (i.e., perceived to be trustworthy); and (3) ‘Opportunities to increase impact’ outlined suggestions on creating opportunities to engage with content through active learning strategies and community connections. CONCLUSIONS Persons and families with SCI valued having access to an independent online health information website, especially early after injury, as it helped to empower autonomy and facilitated better communication between persons and families and healthcare providers. Our study provides support for the value of internet-based health information as a supplementary tool for therapeutic education for persons and families with serious health conditions such as SCI.

Assessing the health information source perceptions of tweens using card-sorting exercises

2017 ◽  
Vol 44 (2) ◽  
pp. 148-164 ◽  
Author(s):  
Beth St. Jean ◽  
Natalie Greene Taylor ◽  
Christie Kodama ◽  
Mega Subramaniam
Keyword(s):  
Health Information ◽  
Information Needs ◽  
Information Quality ◽  
Formal Education ◽  
Information Source ◽  
After School ◽  
Future Research ◽  
Card Sorting ◽  
School Students ◽  
Sources Of Health Information

As young people are increasingly turning to the Internet to meet their information needs, it is imperative to investigate their perceptions regarding various potential sources of health information. A series of card-sorting exercises were administered to new participants in an after-school programme (HackHealth) to find out which sources of health information these greater Washington DC metro area middle school students would turn to, which they would not and their reasons behind these judgements. The findings revealed that participants were very aware of the importance of trustworthiness when looking for health information and they valued both professional expertise based on formal education and expertise born of personal experience with a particular health condition. However, they also valued convenience, ease and speed, and sometimes sacrificed information quality. Some important implications of these findings for healthcare and information professionals are identified and suggestions for future research in this area are offered.

Short video apps as a health information source: an investigation of affordances, user experience and users’ intention to continue the use of TikTok

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Shijie Song ◽  
Yuxiang Chris Zhao ◽  
Xinlin Yao ◽  
Zhichao Ba ◽  
Qinghua Zhu
Keyword(s):  
Health Information ◽  
User Experience ◽  
Social Presence ◽  
Information Acquisition ◽  
Online Survey ◽  
Information Source ◽  
Affordance Theory ◽  
Content Type ◽  
Short Video ◽  
Intention To Continue

PurposeAlthough leveraging social media to access healthcare information is nothing new, a boom in short video apps offers new potential for disseminating health-related information. However, it is still unclear how short video apps might facilitate and benefit users’ consumption of health information. Furthermore, the technology features of short video apps complicate attempts to conduct research about them; as a consequence, they have been understudied. For addressing these concerns, this study adopts an affordance perspective to investigate the relationship between affordances and user experience and to examine factors that contribute to users’ intention to continue using short video apps to obtain health information.Design/methodology/approachDrawing upon affordance theory, we constructed a research model that integrates four types of affordances (livestreaming, searching, meta-voicing and recommending), three types of user experience (immersion, social presence and credibility perception), and user’s intention to continue use. We employed an online survey and obtained a sample of 372 valid responses from TikTok (DouYin) users in China. The partial least squares (PLS) method was used to analyze the data.FindingsThe study found that the user experience, in terms of social presence, immersion and credibility perception, can significantly predict users’ intention to continue using short video apps to obtain health information. Furthermore, the user experience was positively associated with the different affordances provided by the short video apps.Originality/valueThe findings of this study have several implications. First, the study contributes to the health information behavior literature by incorporating the aspect of user experience. Moreover, the study extends the application of affordance theory to users’ health information acquisition, and it carries some practical implications on how to leverage the great potential of short video apps to serve public health communication better.

scholarly journals User Engagement with Mental Health Videos on YouTube

2013 ◽  
Vol 34 (3) ◽  
pp. 153 ◽  
Author(s):  
Tami Oliphant
Keyword(s):  
Mental Health ◽  
Bipolar Disorder ◽  
Health Information ◽  
Information Source ◽  
Personal Narratives ◽  
Well Being ◽  
World Health ◽  
User Engagement ◽  
Mental Health Information ◽  
Health Organization

Introduction: Mental health is a primary determinant of well-being, and as more people look online for mental health information, YouTube is an increasingly important information source. Although authoritative organizations such as the World Health Organization post videos to YouTube, when retrieved these videos are interspersed with personal, commercial, governmental, television or other media segments, and institutional videos. YouTube was searched for videos on mental health to measure user engagement with these videos. It was hypothesized that videos posted to YouTube that contained personal narratives would generate more user engagement in terms of more video view counts, likes, and number of comments. Methods: YouTube was searched for mental health information using three different search terms and phrases: “depression,” “bipolar disorder,” and “mental health.” The first 20 results for the terms depression and bipolar disorder were screen captured and for the search phrase mental health the first 40 videos were screen captured. All 80 videos were categorized according to video producer type and analyzed using YouTube metrics including number of “likes,” view counts, and comments to measure user engagement with the videos. Results: The majority of videos returned in the top results were posted by laypersons and the videos focus on the poster's personal experience (38%) followed by videos produced for television and other media (29%). Videos that contain personal narratives and experiential knowledge generate the most user engagement and are preferred sources for users searching for mental health information. Discussion: Users’ greater engagement with personal videos indicates that there is an important role for librarians and information professionals in assisting users in deciding what mental health information is accurate, authoritative, and reliable regardless of the authority of the video producer. In addition, the results of this research might inform best practices for professional organizations posting videos to YouTube.

Future Health Services Managers' and Health Information Managers' Views on Information Technology: A Pilot Survey

1996 ◽  
Vol 26 (2) ◽  
pp. 82-87 ◽  
Author(s):  
Jeffrey Braithwaite ◽  
Johanna I Westbrook
Keyword(s):  
Information Technology ◽  
Health Service ◽  
Health Information ◽  
Electronic Medical Records ◽  
Medical Records ◽  
Future Health ◽  
Disk Storage ◽  
Pilot Survey ◽  
Service Managers ◽  
Insight Into

This pilot survey examined the views of a sample of health service managers (HSMs) and health information managers (HIMs) undertaking tertiary studies about the application of information technology (IT) in health care. The survey was based on a questionnaire designed as part of a 1994 study of health service executives (HSEs) commissioned by the Australian College of Health Service Executives (ACHSE). We examined views about current and future IT expenditure, satisfaction with IT, impact of IT on quality and efficiency and the future use of electronic medical records and optical disk storage. Results identify differences and some similarities between respondent groups on these issues. The paper explores these differences and similarities and provides insight into the views held by future HSMs and HIMs.

Associations Between Migration Background and Media and Information Behavior in Primary School Children

2020 ◽  
Author(s):  
Laura Dauben ◽  
Katharina S. Weber ◽  
Lisa Nießen ◽  
Marlo Verket ◽  
Olaf Spörkel ◽  
...  
Keyword(s):  
Digital Media ◽  
Health Information ◽  
Economic Status ◽  
Information Source ◽  
Information Behavior ◽  
Migration Background ◽  
Primary School Children ◽  
The Media ◽  
Media Channels ◽  
3Rd Grade

Abstract Background Children with migration background and from low socio-economic status are at higher risk for overweight. To determine appropriate media channels to possibly reach children with targeted health information, it has to be considered that the media and information behavior of children has changed during the last decades. Objective We examined the media and information behavior of children in low socio-economic districts, focusing on those with migration background. Methods Fourteen 3rd grade classes (n=250 children, 68.0% with migration background) completed a questionnaire regarding their media consumption, which was based on existing validated surveys. Results ≥ 50% of the children watched TV and around 40% used both mobile phones and computers/tablets/internet for ≥1 h/day. Books were the most popular analogue media (61.6% of children), whereas magazines/newspapers and radio (18.4 and 16.0% of children, respectively) were used less frequently. Furthermore, they regularly used internet, TV and their teachers (63.0, 48.8 and 44.8% of children, respectively) as information source. Especially children with compared to those without migration background less likely used the radio (P=0.0002) and their family as information source (P=0.0017). Conclusions Children attending 3rd grade class, especially with migration background, can be addressed through digital media rather than the radio. This may help to sustainably support children outside school with targeted health information.

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