Evaluation of medical and surgical treatments for hidradenitis suppurativa using real‐life data from the Scandinavian registry ( HISREG )

2019 ◽  
Vol 33 (6) ◽  
pp. 1164-1171 ◽  
Author(s):  
Ø. Grimstad ◽  
T. Tzellos ◽  
D.N. Dufour ◽  
Ø. Bremnes ◽  
I.M. Skoie ◽  
...  
Keyword(s):  
Hidradenitis Suppurativa ◽  
Real Life ◽  
Life Data ◽  
Real Life Data ◽  
Surgical Treatments

scholarly journals The Use of HSQoL-24 in an Assessment of Quality-of-Life Impairment among Hidradenitis Suppurativa Patients: First Look at Real-Life Data

2021 ◽  
Vol 10 (22) ◽  
pp. 5446
Author(s):  
Piotr K. Krajewski ◽  
Servando E. Marrón ◽  
Manuel Gomez-Barrera ◽  
Lucía Tomas-Aragones ◽  
Yolanda Gilaberte-Calzada ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hidradenitis Suppurativa ◽  
Disease Onset ◽  
Real Life ◽  
Clinical Settings ◽  
Life Data ◽  
Real Life Data ◽  
Inflammatory Skin Disorder ◽  
Family House

Hidradenitis suppurativa (HS) is a chronic inflammatory skin disorder with well-documented effects on patients’ quality of life (QoL). The aim of this study was to evaluate the QoL of patients with HS via the use of a newly developed questionnaire: Hidradenitis Suppurativa Quality of Life-24 (HSQoL-24). This study was performed on a population of 342 HS patients. Their QoL was assessed via the HSQoL-24 questionnaire. The perceived impairment of QoL due to HS in the studied group was considered to be serious (mean HSQoL-24 score: 58.3 ± 21.0 points). Women tended to experience a significantly higher impact from the disease than men (61.6 ± 19.2 points vs. 51.1 ± 23.1 points, p < 0.001). The HS severity had an effect on the perceived QoL, with statistically significant differences being evident between the self-assessed HS severity groups. The level of QoL impairment correlated positively with the number of affected body areas (r = 0.285, p < 0.001) and the duration of the disease (r = 0.173, p = 0.001), while the patients’ age at disease onset correlated negatively with the HSQoL-24 global score (r = −0.182, p = 0.001). Patients living in their family house scored higher than other groups. The least affected were patients who lived alone. The study shows that the HSQoL-24 questionnaire is a reliable, HS-specific tool for measuring the QoL among patients with HS in real-life clinical settings.

Treatment strategies for hidradenitis suppurativa: real-life data from a tertiary Greek hospital

2020 ◽  
Author(s):  
Aikaterini Tsentemeidou ◽  
Elena Sotiriou ◽  
Efstratios Vakirlis ◽  
Nikolaos Sideris ◽  
Aimilios Lallas ◽  
...  
Keyword(s):  
Hidradenitis Suppurativa ◽  
Real Life ◽  
Treatment Strategies ◽  
Life Data ◽  
Real Life Data ◽  
Greek Hospital

Neuropsychology in the Real World

2014 ◽  
Vol 25 (4) ◽  
pp. 233-238 ◽  
Author(s):  
Martin Peper ◽  
Simone N. Loeffler
Keyword(s):  
Neuropsychological Assessment ◽  
Real World ◽  
Ecological Validity ◽  
Real Life ◽  
Emotional States ◽  
Context Sensitive ◽  
Traditional Assessment ◽  
Life Data ◽  
Real Life Data ◽  
Assessment And Treatment

Current ambulatory technologies are highly relevant for neuropsychological assessment and treatment as they provide a gateway to real life data. Ambulatory assessment of cognitive complaints, skills and emotional states in natural contexts provides information that has a greater ecological validity than traditional assessment approaches. This issue presents an overview of current technological and methodological innovations, opportunities, problems and limitations of these methods designed for the context-sensitive measurement of cognitive, emotional and behavioral function. The usefulness of selected ambulatory approaches is demonstrated and their relevance for an ecologically valid neuropsychology is highlighted.

The epidemiology of thyroid cancer within a center of excellence in Athens: Real life data

2017 ◽  
Author(s):  
Eleni Pantazi ◽  
Alexios Travlos ◽  
Evaggelia Vogiatzi ◽  
Ifigenia Kostoglou-Athanassiou
Keyword(s):  
Thyroid Cancer ◽  
Real Life ◽  
Life Data ◽  
Center Of Excellence ◽  
Real Life Data
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