Differences in patient and physician assessment of a dynamic patient reported outcome tool for chronic pruritus

2015 ◽  
Vol 30 (6) ◽  
pp. 962-965 ◽  
Author(s):  
F. Fritz ◽  
C. Blome ◽  
M. Augustin ◽  
R. Koch ◽  
S. Ständer
2021 ◽  
Vol 21 (9) ◽  
pp. S115
Author(s):  
Rami Elsabeh ◽  
Katie Delgado ◽  
Kaushik Das ◽  
Krishn M. Sharma ◽  
Ezriel Kornel ◽  
...  

2020 ◽  
Vol 31 (2) ◽  
pp. 311-314.e1 ◽  
Author(s):  
Riad Salem ◽  
Shahzeb Hassan ◽  
Robert J. Lewandowski ◽  
Karen Grace ◽  
Robert C.G. Martin ◽  
...  

2017 ◽  
Vol 27 (6) ◽  
pp. 599-607 ◽  
Author(s):  
Benjamin F. Ricciardi ◽  
Kara G. Fields ◽  
Catherine Wentzel ◽  
Bryan T. Kelly ◽  
Ernest L. Sink

Introduction The purposes of this study were to describe: (i) short-term disease-specific patient-reported outcome scores (PROMs); and (ii) factors associated with reoperation or treatment failure in patients undergoing open hip preservation surgery for symptomatic extraarticular FAI. Methods Patients undergoing open hip preservation surgery for symptomatic extraarticular FAI were identified from a prospective, single-centre hip preservation registry (n = 51 patients; median clinical follow-up 24 [range 11-49] months). Hip-specific PROMs were assessed preoperatively, 6 months, and each year subsequently. Patients undergoing reoperation or treatment failure (<10 point improvement in iHOT-33 postoperatively) over the study period were identified. Preoperative associated factors were explored on a univariate basis. Results International Hip Outcome Tool-33 (iHOT-33) improved from 33 (standard deviation [SD] 18) to 62 (26) at most recent follow-up and 76% of patients improved by minimum clinically important difference (MCID). Harris Hip Score improved from 53 (15) to 75 (17) at most recent follow-up and 79% of patients improved by MCID. Hip Outcome Score (HOS) Sport improved from 45 (26) to 66 (28) at most recent follow-up and 60% of patients improved by MCID. Continued improvements in mean follow-up scores were seen from 1 year to 2 years. Overall, 7 patients underwent reoperation and 9 patients failed to improve by MCID. Preoperative HOS Sport was higher in patients experiencing reoperation or treatment failure (58 [SD 19] vs. 40 [SD 27] respectively; p = 0.03). No other associated demographic, physical examination, or radiographic factors were found. Conclusions Open treatment of extraarticular FAI results in short-term improvements in hip-specific PROMs in most patients. Higher HOS Sport scores were associated with reoperation or treatment failure. Longer-term follow-up is necessary to define maximum improvements in this challenging patient population.


Stroke ◽  
2014 ◽  
Vol 45 (suppl_1) ◽  
Author(s):  
Eric M Liotta ◽  
Carlos Corado ◽  
Deborah L Bergman ◽  
Richard A Bernstein ◽  
Fan Z Caprio ◽  
...  

Introduction: Delirium after acute stroke has been associated with worse outcomes but the effect on domain specific health-related quality of life (QOL) is less well-defined. We hypothesized that post-stroke delirium is associated with worse QOL. Methods: A prospective cohort of acute ischemic stroke patients was screened for post-stroke delirium. Delirium was diagnosed using the Confusion Assessment Method. Patient variables were prospectively recorded including initial NIHSS score and medical complications. Six QOL domains were assessed at three months post-stroke using Neuro-QOL (a validated patient-reported outcome tool that calculates T scores with means of 50 and standard deviations of 10): upper and lower extremity function, social roles satisfaction, fatigue, executive function (planning, calculating, and learning), and general cognitive concerns ([GCC] perceived attention, memory, and decision difficulties). Functional outcomes at 3 months were also obtained using the modified Rankin Scale (mRS, a validated outcome measure from 0, no symptoms, to 6, death). Univariate associations between delirium and QOL domains were identified and linear regression models were developed for domains with significant associations. Results: Over 10 months 246 patients (56% male, mean 65 years) met inclusion criteria. Delirium occurred in 30 (12%) patients. Three month follow up exceeded 90%. Of the Neuro-QOL domains, only GCC was significantly different between those with delirium and those without (T-scores 48.6 vs. 53.4, p=0.03). The mRS outcomes did not differ between those with delirium and those without (median [interquartile range], 1 [0-3] vs 1 [0-2]; p=0.59). Delirium (Beta -3.8, p=0.02) and initial NIHSS (Beta -0.25, p=0.006) were associated with worse GCC after correction for covariates. Conclusion: Our finding that post-stroke delirium is independently associated with worse measures of cognition at three months suggests that the disordered attention of delirium may persist long term. Delirium may impair recovery after stroke or may represent a separate mechanism of neurologic injury not well characterized by global outcome scales like the mRS.


2021 ◽  
Vol 16 ◽  
pp. 1
Author(s):  
Bhawana Purwar ◽  
Sarah Knox ◽  
Monika Vij ◽  
Simon Emery

Objectives: The aim of our study was to assess improvement in bladder function and quality of life using Australian Pelvic floor questionnaire as Patient Reported Outcome tool following anterior repair and urethral buttressing for treating stress urinary incontinence (SUI) with prolapse using polydioxanone sutures. Material and Methods: This was the prospective review of retrospective data. The data were collected through telephone or postal questionnaire by an independent researcher who was not involved in the patient care directly and analyzed with Stata (14.2). Results: About 78% (61/78) of women responded to the questionnaires. Statistically significant improvement in bladder function scores was noted after surgery (5.12 ± 2.06 vs. 3.69 ± 2.26; P = 0.001) along with an overall improvement in the quality of life scores (17.88 ± 8.03 vs. 11.56 ± 9.01; P = 0.005) at mean follow-up of 31 months. Overall, 54% patients reported improvement in their symptoms. The re-operation rate for second continence procedure for SUI was 1/61 (1.6%). Conclusion: This procedure can be offered to patients as a treatment option for SUI with prolapse.


2014 ◽  
Vol 17 (7) ◽  
pp. A569 ◽  
Author(s):  
L. Kleinman ◽  
G.H. Talbot ◽  
R. Schüler ◽  
K. Broderick ◽  
D. Revicki ◽  
...  

10.2196/17987 ◽  
2020 ◽  
Vol 22 (7) ◽  
pp. e17987
Author(s):  
Carolyn Steele Gray

Digital health solutions, in particular information communication technologies, often experience implementation failures leading to slower adoption than expected. This implementation challenge has spurred the development of frameworks to help navigate this uncertain and messy process. These frameworks point to environmental, organizational, individual, and technological factors that can drive or hinder implementation, with some in the field suggesting that perceived value may play a pivotal role. However, the concept of value can have varying meanings and be challenging to operationalize as a means to support implementation. Attending to philosophical and psychological meaningfulness for users and organizations in which technologies are adopted may offer a useful lens, by linking perceived value to individual behavior changes often required as part of implementing digital health technologies. Lessons learned from developing, evaluating, and implementing the electronic Patient-Reported Outcome (ePRO) tool demonstrate how qualitative methods can be used to uncover meaningfulness. By drawing from this example and other similar studies, this viewpoint offers suggestions on how future inquiry could deepen an understanding of meaningful innovation to help drive the implementation of digital health technologies.


2018 ◽  
Vol 6 (7_suppl4) ◽  
pp. 2325967118S0010
Author(s):  
Robert Kollmorgen ◽  
Brian Lewis ◽  
Richard C. Mather ◽  
Steven Olson

Objectives: Current Hip Patient Reported Outcome Scores (PROs) are not universally obtained, centers use different forms to try to interpret treatment outcomes, and are limited by floor and ceiling effects. Legacy scores of Modified Harris Hip Score (mHHS), International Hip Outcome Tool (iHOT), and Hip Outcomes Score (HOS) are common place and used in the literature. Patient compliance for legacy PROs have been shown to limit proper data collection. PROMIS measures were developed through NIH funding, vetted against a population norm and PROMIS Computer Adaptive Testing (CAT) has been shown in recent literature to compare well with knee and shoulder legacy scores, and are completed in a quicker amount of time. We hypothesize that in a hip preservation population, the CAT PROMIS Profile V2.0 and PROMIS physical function (PF) would show high correlation with legacy scores of (mHHS, iHOT, and HOS). Methods: After obtaining IRB approval, power analysis revealed 86 patients were needed to detect a significant difference. 100 patients were prospectively enrolled. Patients were asked to complete the iHOT-12, mHHS, HOS and then complete the CAT PROMIS Profile v 2.0. Inclusion criteria for the current study included all Initial encounter and single follow-up patients that have completed the CAT portion and started the legacy scores before opting out. Exclusion criteria will be any patient with a repeat encounter, patients under the age of 18 or a patient that did not complete the legacy or CAT scores. Repeat encounters were excluded due to statistical analysis assuming independence among observers. Correlation between instruments was defined as excellent (>0.7), excellent-good (0.7-0.61), good (0.6-0.4), and poor (0.3-0.2). Results: Demographics of 75 females and 25 males, mean BMI 26.3, and mean age 36.1 (range 18-67). The PROMIS Physical function, Pain Intensity, and Ability to Participate in Social Roles showed excellent correlation with the iHOT-12 (r=0.71 P<0.001), mHHS (r=0.8 P<0.001) and HOS (r=0.82 P<0.001). Patients averaged 21.6 questions to complete all seven arms of the PROMIS Profile. No patient experienced a ceiling effect utilizing the PROMIS Profile CAT. Conclusion: The PROMIS Profile allows for an in-depth look at patients’ dysfunction, not asked in current legacy scores. The PROMIS Physical function and Pain Intensity show excellent correlation with iHOT-12, mHHS and HOS. The CAT PROMIS Profile, shows no observed ceiling effect and can be considered to replace current legacy measures in hip preservation.


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