scholarly journals Mediating effects of family functioning on the relationship between care burden and family quality of life of caregivers of children with intellectual disabilities in Mongolia

Author(s):  
Jinhee Kim ◽  
Hyunlye Kim ◽  
Seojin Park ◽  
Jaeyong Yoo ◽  
Delgersuren Gelegjamts
2021 ◽  
pp. 0192513X2110428
Author(s):  
Raquel A. Correia ◽  
Maria João Seabra-Santos

The relationships between siblings are the most long-lasting in families. When one of the siblings is a person with intellectual disabilities (ID), this relationship assumes an even more important role since this brother/sister will most likely become the disabled individual’s main caregiver. This pilot study had two aims: to explore the experience as an adolescent or adult sibling of a person with ID and to understand the perceptions of these siblings about quality of life as a sibling and about family quality of life. In-depth interviews were conducted with six siblings. The results showed that the experience of a sibling is positive and the acceptance process is of extreme importance. The domains which, from the sibling perspective, contribute to family quality of life are as follows: Family relationships, Acceptance, Health, Influence of values, Financial well-being, Support from others, and Leisure activities. The implications of these findings for intervention are pointed out.


2017 ◽  
Vol 14 (1) ◽  
pp. 59-67 ◽  
Author(s):  
Raquel Alveirinho Correia ◽  
Maria João Seabra-Santos ◽  
Paula Campos Pinto ◽  
Ivan Brown

2021 ◽  
Vol 28 (3) ◽  
pp. 384-394
Author(s):  
Kawoun Seo

Purpose: This study was done to investigate the mediating effects of acceptance action on the relationship between diabetes self-stigma and quality of life in diabetes patients.Methods: For this study a descriptive research approach was used. Patients (237) with a diagnosis of diabetes mellitus from a doctor of endocrinology were included. Data collection was done from March 26, to March 28, 2020. Data were analyzed using descriptive statistics, t-test, one-way ANOVA, Pearson’s correlation coefficient analysis, and hierarchecal multiple regression.Results: The mean scores for diabetes self-stigma, acceptance action and quality of life were 2.67±0.71, 4.12±0.38, and 3.26±0.48, respectively. Acceptance action was found to partial mediate the relationship between diabetes self-stigma and quality of life (z=-4.20, p<.001), and its explanatory power was 17.6%.Conclusion: To improve the quality of life among patients with diabetes in diabetes self-stigma situations, it is necessary to improve their acceptance action and develop step-by-step and differentiated acceptance action enhancement programs through multidisciplinary collaboration.


Author(s):  
Yi Liu ◽  
Jason Draper

Participants attending a festival(s) with children is a family activity that influences family relationships. This study examines the relationship between attending status (e.g., with or without children), event experience, subjective well-being, and family quality of life (FQOL). A total of 585 festival participants’ data analyzed by structural equation modeling (SEM) revealed that participants attending with children have a higher level of subjective well-being and FQOL compared to those without children. Participants attending with children have a higher level of cognitive engagement and experience novelty in festivals compared to those without children. Event experience results in a significant positive relationship with subjective well-being. This study expands current event literature in terms of FQOL and provides a practical guideline to event organizers to better understand the significance of festivals.


2015 ◽  
Vol 49 (0) ◽  
Author(s):  
Gina Andrade Abdala ◽  
Miako Kimura ◽  
Yeda Aparecida de Oliveira Duarte ◽  
Maria Lúcia Lebrão ◽  
Bernardo dos Santos

OBJECTIVE To examine whether religiousness mediates the relationship between sociodemographic factors, multimorbidity and health-related quality of life of older adults. METHODS This population-based cross-sectional study is part of the Survey on Health, Well-Being, and Aging (SABE). The sample was composed by 911 older adults from Sao Paulo, SP, Southeastern Brazil. Structural equation modeling was performed to assess the mediator effect of religiousness on the relationship between selected variables and health-related quality of life of older adults, with models for men and women. The independent variables were: age, education, family functioning and multimorbidity. The outcome variable was health-related quality of life of older adults, measured by SF-12 (physical and mental components). The mediator variables were organizational, non-organizational and intrinsic religiousness. Cronbach’s alpha values were: physical component = 0.85; mental component = 0.80; intrinsic religiousness = 0.89 and family APGAR (Adaptability, Partnership, Growth, Affection, and Resolve) = 0.91. RESULTS Higher levels of organizational and intrinsic religiousness were associated with better physical and mental components. Higher education, better family functioning and fewer diseases contributed directly to improved performance in physical and mental components, regardless of religiousness. For women, organizational religiousness mediated the relationship between age and physical (β = 2.401, p < 0.01) and mental (β = 1.663, p < 0.01) components. For men, intrinsic religiousness mediated the relationship between education and mental component (β = 7.158, p < 0.01). CONCLUSIONS Organizational and intrinsic religiousness had a beneficial effect on the relationship between age, education and health-related quality of life of these older adults.


2018 ◽  
Vol 19 (1) ◽  
Author(s):  
Haleh Jafari ◽  
Azita Ebrahimi ◽  
Abbas Aghaei ◽  
Alireza Khatony

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