scholarly journals The impact of self‐advocacy organizations on the subjective well‐being of people with intellectual disabilities: A systematic review of the literature

2020 ◽  
Vol 33 (6) ◽  
pp. 1151-1165
Author(s):  
Elizabeth Tilley ◽  
Iva Strnadová ◽  
Joanne Danker ◽  
Jan Walmsley ◽  
Julie Loblinzk
2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Chloe Crompton ◽  
Bethany Duncan ◽  
Graham Simpson-Adkins

Purpose This paper aims to systematically review the available evidence that explores adverse childhood experiences (ACEs) in people with intellectual disabilities (PwID). It is important to systematically review this literature as, to date, there is little known about the number of studies in this area, despite the World Health Organization declaring ACE prevention and support as a global public health priority. Design/methodology/approach Published studies were identified from electronic database searches. Key journals and reference lists were also hand searched. Findings Two studies met the inclusion criteria and the prevalence and frequency of ACEs experienced by participants of these studies analysed. Overall, due to the small number of studies meeting the inclusion criteria, it is difficult to establish any meaningful conclusions. Originality/value This appears to be the first systematic review to try and identify a research base looking at the prevalence of ACEs within a PwID population. Findings suggest that this is a highly neglected area of research, and the authors hope to have identified that further evidence is required to draw clearer conclusions about the impact of ACEs on PwID.


2021 ◽  
Vol 12 ◽  
Author(s):  
Buyantungalag Battulga ◽  
Marc Reginald Benjamin ◽  
Hong Chen ◽  
Enkhmandakh Bat-Enkh

Background: Subjective well-being (SWB) has a protective role in mental health maintenance and is prone to change during short stressful moments, such as pregnancy. Longstanding research suggests that social support (SS) from the partner and family members of pregnant women directly or indirectly acts as a buffer against negative mental outcomes. For happier pregnancies, it is important to understand how SS and pregnancy affect the SWB.Objective: This review aims to examine the extended association of being pregnant and SS on the SWB of pregnant women.Methods: A systematic review was conducted in PubMed, ScienceDirect, and Google Scholar. Articles published in peer-reviewed journals were included regardless of the year and if they had assessed the impact of at least one SWB or SS outcome among healthy pregnant women. The tools of the National Heart, Lung, and Blood Institute were used for quality assessment.Results: Thirty-four studies that assessed the domains of SWB measurements, such as happiness, quality of life (QoL), life satisfaction, positive and negative effects, and well-being, were included and its association with either pregnancy or SS was summarized. Variable results, such as life satisfaction, happiness, and mental component of QoL, were found to be high during pregnancy, but positive emotion and physical components of QoL had decreased. Almost universally, SS during pregnancy was found to have a positive association with all measurements of SWB.Conclusion: This study had found that, despite some arising trends, pregnancy itself does not necessarily have similar impacts on SWB across healthy pregnant women. However, SS had a significant effect on SWB.


2018 ◽  
Vol 33 (1) ◽  
Author(s):  
Paul D. Loprinzi ◽  
Emily Frith

This systematic review evaluates various theoretical underpinnings, which may contribute to abetter understanding of the effects of Facebook use on subjective well-being among college students. Theauthor conducted a PubMed search of experimental studies conducted within a young adult population.Eligible participant data was delimited to undergraduate or graduate students, who were required to becurrent Facebook users. Six studies were chosen for the review. The findings suggest that Facebook usagemay be positively associated with subjective well-being via several theoretical mechanisms founded in socialpsychology. These findings provide preliminary evidence that Facebook may offer its users unique opportu-nities to tailor their online self-presentation to assuage the impact of negative psychosocial stimuli presentedin real-world environments. Innovative strategies should be conceived to assess the possible relationshipbetween Facebook use and enhanced subjective well-being.


10.2196/15190 ◽  
2019 ◽  
Vol 3 (4) ◽  
pp. e15190
Author(s):  
Leen Vereenooghe ◽  
Kristian Westermann

Background The availability of both digital and traditional mental well-being interventions is rising, but these interventions typically do not consider people with intellectual disabilities as potential users. Objective The study aimed to explore the acceptability and feasibility of a new digital intervention, developed with and for people with intellectual disabilities, to improve their subjective well-being. Methods Using a single-group pre-post design, participants with intellectual disabilities and their caregivers completed the 4-week intervention. Mixed methods questionnaires assessed the acceptability of the intervention, in addition to self-report and proxy-report measures of subjective well-being and behavioral problems. Results A total of 12 men with mild to moderate intellectual disabilities enrolled in and completed the study alongside 8 caregivers. Participant acceptability of the intervention was high, and feedback covered multiple aspects of the intervention, including (1) program concept and design, (2) program content, and (3) intervention usage. Self-rated mood barometers indicated mood improvements for 5 participants, deteriorations for 2 participants, and no observed changes for the remaining participants. Statistical analyses yielded no difference from pretest (median=79; range 39-86) to posttest (median=79; range 21-96) for subjective well-being in people with intellectual disabilities (W=10.5; P=.17) and for behavioral problems (W=14; P=.05). Conclusions People with intellectual disabilities and their caregivers are receptive to using digital well-being interventions, and this research shows such interventions to be feasible in routine practice. Given the acceptability of the intervention, its potential efficacy can now be evaluated in people with intellectual disabilities and symptoms of reduced mental well-being.


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