The family transition experience when living with childhood neuromuscular disease: A grounded theory study

2021 ◽  
Author(s):  
Veronika Waldboth ◽  
Christine Patch ◽  
Romy Mahrer‐Imhof ◽  
Alison Metcalfe
Keyword(s):  
Grounded Theory ◽  
Neuromuscular Disease ◽  
Family Transition ◽  
Grounded Theory Study ◽  
Transition Experience ◽  
The Family

scholarly journals Ethical Dilemmas of a Clinician/Researcher Interviewing Women who have Grown up in a Family Where There was Domestic Violence

2012 ◽  
Vol 11 (2) ◽  
pp. 102-131 ◽  
Author(s):  
Clarissa Sammut Scerri ◽  
Angela Abela ◽  
Arlene Vetere
Keyword(s):  
Qualitative Research ◽  
Domestic Violence ◽  
Grounded Theory ◽  
Clinical Training ◽  
Ethical Dilemmas ◽  
The Self ◽  
Grounded Theory Study ◽  
Important Resource ◽  
Interview Process ◽  
The Family

This paper attempts to illuminate some of the ethical dilemmas of a clinician/researcher interviewing women about a sensitive topic- their experience of having witnessed domestic violence in the family they grew up in, as part of a grounded theory study. Vignettes are presented to illustrate the self-reflexive process of the researcher and how she understood the effects of the interview process on her and the participants. The authors argue that doing in-depth qualitative research interviewing is an intervention in the life of the participants, especially, but not only, when the researchers are clinically-trained. However, this clinical training may also be an important resource from which to draw from, to act ethically and understand some of the complexity of the interaction between researcher and participants.

scholarly journals Theoretical sampling process in a Straussian Grounded Theory study

2021 ◽  
Vol 55 ◽  
Author(s):  
Mayckel da Silva Barreto ◽  
Bruna Sodré Simon ◽  
Veronica Francisqueti Marquete ◽  
Rebeca Rosa de Souza ◽  
Nara Marilene Oliveira Girardon-Perlini ◽  
...  
Keyword(s):  
Grounded Theory ◽  
Comparative Method ◽  
Field Research ◽  
Substantive Theory ◽  
Grounded Theory Study ◽  
Sampling Process ◽  
Constant Comparative Method ◽  
The Family ◽  
Theoretical Sampling ◽  
Depth Study

ABSTRACT Objetive: Describing the theoretical sampling process in the development of a Grounded Theory based on the Straussian strand. The objective of the field research, used as an example, was to develop a substantive theory, based on the theoretical framework of Symbolic Interactionism, about the perceptions and experiences of patients, family members, and health professionals regarding the presence of the family during emergency care. Method: In the theoretical sampling, 42 participants were recruited, divided into nine sample groups, constituted based on the constant comparative method. Results: The description of this example allowed to identify how theoretical sampling guided data collection, which occurred through the in-depth study of concepts and the search for answers to questions arising from the data. Final Considerations: It is expected that the readers find subsidies to understand how theoretical sampling is conducted in a Grounded Theory study, based on the Straussian strand, and thus be able to apply it.

An Exploration of Successful Copreneurial Relationships Postdivorce

2007 ◽  
Vol 20 (3) ◽  
pp. 185-198 ◽  
Author(s):  
Patricia M. Cole ◽  
Kit Johnson
Keyword(s):  
Grounded Theory ◽  
Family Business ◽  
Gender Issues ◽  
Business Relationship ◽  
Emotional Connection ◽  
Grounded Theory Study ◽  
The Family ◽  
The Many

It is a commonly held belief that divorce “kills” the family business, especially when copreneurs divorce or separate. Yet there are examples of copreneurs who have successfully continued to work together postdivorce. However, to date, there have been no studies or theories developed regarding successful, postdivorce copreneurs. This grounded theory study examines successful postdivorce copreneurs and proposes a model that can help advisors navigate the many potential pitfalls a divorcing couple can experience. This study finds that copreneurs who have a great deal of trust in one another can continue to work together postdivorce. Emotional connection, compartmentalization, synergy, commitment to the business, and positive gender issues also contribute to the success of the business and the business relationship.

scholarly journals Perilaku Caring Perawat Pelaksana di Sebuah Rumah Sakit di Bandung: Studi Grounded Theory

2008 ◽  
Vol 12 (1) ◽  
pp. 40-46
Author(s):  
Blacius Dedi ◽  
Setyowati Setyowati ◽  
Yati Afiyanti
Keyword(s):  
Grounded Theory ◽  
Continuing Education ◽  
Grounded Theory Study ◽  
Caring Behavior ◽  
The Family

AbstrakPerilaku caring belum diaplikasikan optimal dalam pelayanan keperawatan. Studi grounded theory ini bertujuan memperoleh gambaran perilaku caring perawat pelaksana sebuah RS di Bandung. Enam perawat pelaksana dari enam ruangan rawat inap di rumah sakit tersebut diobservasi dan diwawancara mendalam. Data dianalisis secara tematik. Penelitian menemukan tujuh tema yaitu sikap peduli terhadap pemenuhan kebutuhan klien, bertanggung jawab memenuhi kebutuhan klien, ramah dalam melayani, sikap tenang dan sabar dalam melayani klien, selalu siap sedia memenuhi kebutuhan klien, memberikan motivasi kepada klien, dan sikap empati dengan klien dan keluarganya. Penelitian ini merekomendasikan perlunya membudayakan perilaku caring melalui pendidikan berkelanjutan, supervisi, dan pengarahan intensif. AbstractThe caring behavior is still partially performed by nurses. This grounded theory study examined the caring behavior of the nurses. Six nurse staffs from the six different wards at a hospital in Bandung were observed and deeply interviewed. The data was analyzed thematically. The result identified seven themes namely concern on fulfilling client’s need, responsibility on fulfilling client’s need, friendly and hospitality, calm and patient in helping client, readiness and willing to help client, give motivation to client, and empathy to the client and the family. This research suggested the importance of continuing education, effective direction and supervision to establish the culture of caring behavior among nurses.

scholarly journals Participation of adults with cognitive, physical, or psychiatric impairments in family of origin and intimate relationships: a grounded theory study

2020 ◽  
Author(s):  
Andreas Pfister ◽  
Pia Georgi-Tscherry ◽  
Fabian Berger ◽  
Michaela Studer
Keyword(s):  
Grounded Theory ◽  
Intimate Relationships ◽  
Family Of Origin ◽  
Subjective Experience ◽  
Main Category ◽  
Persons With Disabilities ◽  
Grounded Theory Study ◽  
Inclusive Settings ◽  
The Family ◽  
Psychiatric Impairments

Abstract Background: How adults with disabilities perceive participation has received little attention. Our purpose was to formulate a grounded theory on participation, based on the subjective experience of adults with cognitive, physical, or psychiatric impairment(s), and to identify barriers, facilitators, and support needs concerning participation in different areas of life. We aimed to explore whether the United Nations’ Convention on the Rights of Persons with Disabilities (CRPD), ratified by Switzerland in 2014, and its principles are being met. Here we report on the main category and focus on the participation areas ‘family of origin’ and ‘intimate relationships.’ Methods: In a qualitative, grounded theory study, we conducted problem-centered interviews with 23 adults with cognitive, physical, or psychiatric impairments (30­-53 years; 11 men, 12 women), with different housing (on their own, assisted living, with parents) and work situations (primary vs. secondary labor market) in nine German-speaking Swiss cantons. Results: Participation can be understood as a continuum that extends on a horizontal level (from participation is restricted to participation takes place) and a vertical level (separative setting vs. inclusive setting). In separative as well as in inclusive settings, diverse levels of participation are possible. Many participants were stuck in an ‘in-between’ area between separative and inclusion-oriented settings. In the family of origin, there was a thin line between fulfilling relations that enhance participation and conflictual relations and overprotective parenting that limit participation. In intimate relationships, opportunities for participation were limited overall. Many interviewees were single. Social environment and family of origin (e.g., parents) can enable and facilitate intimate relationships and sexual contacts but can also be an important barrier.Conclusions: Participation can be understood as a continuum. Participation restrictions exist in separative as well as in inclusive-oriented settings, also in the areas of family of origin and intimate relationships. Participation barriers must be torn down in separative as well as in inclusion-oriented settings. Trajectories to inclusive settings should be facilitated. Families with children with impairment(s) should be supported from early on to create the best possible participation possibilities for the (adult) person with impairment(s) and to support the family of origin itself.

scholarly journals Participation of adults with cognitive, physical, or psychiatric impairments in family of origin and intimate relationships: a grounded theory study

2020 ◽  
Author(s):  
Andreas Pfister ◽  
Pia Georgi-Tscherry ◽  
Fabian Berger ◽  
Michaela Studer
Keyword(s):  
Grounded Theory ◽  
Intimate Relationships ◽  
Family Of Origin ◽  
Subjective Experience ◽  
Main Category ◽  
Persons With Disabilities ◽  
Grounded Theory Study ◽  
Inclusive Settings ◽  
The Family ◽  
Psychiatric Impairments

Abstract Background: How adults with disabilities perceive participation has received little attention. Our purpose was to formulate a grounded theory on participation, based on the subjective experience of adults with cognitive, physical, or psychiatric impairment(s), and to identify barriers, facilitators, and support needs concerning participation in different areas of life. We aimed to explore whether the United Nations’ Convention on the Rights of Persons with Disabilities (CRPD), ratified by Switzerland in 2014, and its principles are being met. Here we report on the main category and focus on the participation areas ‘family of origin’ and ‘intimate relationships.’ Methods: In a qualitative, grounded theory study, we conducted problem-centered interviews with 23 adults with cognitive, physical, or psychiatric impairments (30­-53 years; 11 men, 12 women), with different housing (on their own, assisted living, with parents) and work situations (primary vs. secondary labor market) in nine German-speaking Swiss cantons. Results: Participation can be understood as a continuum that extends on a horizontal level (from participation is restricted to participation takes place) and a vertical level (separative setting vs. inclusive setting). In separative as well as in inclusive settings, diverse levels of participation are possible. Many participants were stuck in an ‘in-between’ area between separative and inclusion-oriented settings. In the family of origin, there was a thin line between fulfilling relations that enhance participation and conflictual relations and overprotective parenting that limit participation. In intimate relationships, opportunities for participation were limited overall. Many interviewees were single. Social environment and family of origin (e.g., parents) can enable and facilitate intimate relationships and sexual contacts but can also be an important barrier.Conclusions: Participation can be understood as a continuum. Participation restrictions exist in separative as well as in inclusive-oriented settings, also in the areas of family of origin and intimate relationships. Participation barriers must be torn down in separative as well as in inclusion-oriented settings. Trajectories to inclusive settings should be facilitated. Families with children with impairment(s) should be supported from early on to create the best possible participation possibilities for the (adult) person with impairment(s) and to support the family of origin itself.

scholarly journals Participation of adults with cognitive, physical, or psychiatric impairments in family of origin and intimate relationships: a grounded theory study

2019 ◽  
Author(s):  
Andreas Pfister ◽  
Pia Georgi-Tscherry ◽  
Fabian Berger ◽  
Michaela Studer
Keyword(s):  
Grounded Theory ◽  
Intimate Relationships ◽  
Family Of Origin ◽  
Subjective Experience ◽  
Main Category ◽  
Persons With Disabilities ◽  
Grounded Theory Study ◽  
Inclusive Settings ◽  
The Family ◽  
Psychiatric Impairments

Abstract Background How adults with disabilities perceive participation has received little attention. Our purpose was to formulate a grounded theory on participation, based on the subjective experience of adults with cognitive, physical, or psychiatric impairment(s), and to identify barriers, facilitators, and support needs concerning participation in different areas of life. We aimed to explore whether the United Nations’ Convention on the Rights of Persons with Disabilities (CRPD), ratified by Switzerland in 2014, and its principles are being met. Here we report on the main category and focus on the participation areas ‘family of origin’ and ‘intimate relationships.’ Methods In a qualitative, grounded theory study, we conducted problem-centered interviews with 23 adults with cognitive, physical, or psychiatric impairments (30­-53 years; 11 men, 12 women), with different housing (on their own, assisted living, with parents) and work situations (primary vs. secondary labor market) in nine German-speaking Swiss cantons. Results Participation can be understood as a continuum that extends on a horizontal level (from participation is restricted to participation takes place) and a vertical level (separative setting vs. inclusive setting). In separative as well as in inclusive settings, diverse levels of participation are possible. Many participants were stuck in an ‘in-between’ area between separative and inclusion-oriented settings. In the family of origin, there was a thin line between fulfilling relations that enhance participation and conflictual relations and overprotective parenting that limit participation. In intimate relationships, opportunities for participation were limited overall. Many interviewees were single. Social environment and family of origin (e.g., parents) can enable and facilitate intimate relationships and sexual contacts but can also be an important barrier. Conclusions Participation can be understood as a continuum. Participation restrictions exist in separative as well as in inclusive-oriented settings, also in the areas of family of origin and intimate relationships. Participation barriers must be torn down in separative as well as in inclusion-oriented settings. Trajectories to inclusive settings should be facilitated. Families with children with impairment(s) should be accompanied from early on to create the best possible participation possibilities for the (adult) person with impairment(s) and to support the family of origin itself.

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