Integrating transition theory and bioecological theory: a theoretical perspective for nurses supporting the transition to adulthood for young people with medical complexity

2016 ◽  
Vol 72 (6) ◽  
pp. 1251-1262 ◽  
Author(s):  
Elizabeth Joly
Keyword(s):  
Young People ◽  
Transition To Adulthood ◽  
Theoretical Perspective ◽  
Transition Theory ◽  
Medical Complexity ◽  
Bioecological Theory

Access to services for young adults with medical complexity

2015 ◽  
Vol 24 (3) ◽  
pp. 329-336 ◽  
Author(s):  
Elizabeth Joly
Keyword(s):  
Social Justice ◽  
Young People ◽  
Ethical Issue ◽  
Transition To Adulthood ◽  
Adult Health ◽  
Access To Services ◽  
Adult Care ◽  
Discussion Paper ◽  
Barriers To Access ◽  
Medical Complexity

Background: With the number of young people with medical complexity increasing, an increasing number must navigate the transition to adulthood. This transition, in part, involves a situational transition in which young people and their families must access new services in the adult system. Objectives: To explore how societal ideologies, communities, and organizations represent the foundation of barriers to access to services. Research Design: The discussion in this paper, framed within a social justice perspective, outlines barriers to access to services at the societal and community levels including societal ideologies, differences in philosophies of care in pediatric and adult care, physical environments, and availability of services. Ethical Considerations: Since this is an exploratory discussion paper, no ethical approval was required. Findings and Conclusion: Based on analysis of the literature from a social justice perspective, it is suggested that the adult health care and social service systems do not provide the supports and services necessary to empower young people and their families to achieve their goals and maintain their health and quality of life. It is, thus, an ethical issue that the transfer from pediatric to adult services is occurring in the absence of appropriate services. Recommendations at the individual, community and policy levels highlight how nurses can address this ethical issue to promote more equitable access to services.

Youth Development in Europe

2009 ◽  
Vol 14 (4) ◽  
pp. 372-375 ◽  
Author(s):  
Katariina Salmela-Aro ◽  
Ingrid Schoon
Keyword(s):  
Young People ◽  
Relationship Quality ◽  
Youth Development ◽  
Social Relationships ◽  
Transition To Adulthood ◽  
Cultural Context ◽  
Integrative Framework ◽  
Reciprocal Interactions ◽  
The Family ◽  
Key Players

A series of six papers on “Youth Development in Europe: Transitions and Identities” has now been published in the European Psychologist throughout 2008 and 2009. The papers aim to make a conceptual contribution to the increasingly important area of productive youth development by focusing on variations and changes in the transition to adulthood and emerging identities. The papers address different aspects of an integrative framework for the study of reciprocal multiple person-environment interactions shaping the pathways to adulthood in the contexts of the family, the school, and social relationships with peers and significant others. Interactions between these key players are shaped by their embeddedness in varied neighborhoods and communities, institutional regulations, and social policies, which in turn are influenced by the wider sociohistorical and cultural context. Young people are active agents, and their development is shaped through reciprocal interactions with these contexts; thus, the developing individual both influences and is influenced by those contexts. Relationship quality and engagement in interactions appears to be a fruitful avenue for a better understanding of how young people adjust to and tackle development to productive adulthood.

The role of family adaptation in the transition to adulthood for youth with medical complexity: a qualitative case study protocol

2021 ◽  
Vol 0 (0) ◽  
Author(s):  
Lin Li ◽  
Nancy Carter ◽  
Jenny Ploeg ◽  
Jan Willem Gorter ◽  
Patricia H. Strachan
Keyword(s):  
Lived Experience ◽  
Transition To Adulthood ◽  
Evidence Base ◽  
Adult Health ◽  
Structured Interviews ◽  
Adult Services ◽  
Development Framework ◽  
Medical Complexity ◽  
Life Course Health

Abstract Background For youth with medical complexity and their families, the transition to adulthood is a stressful and disruptive period that is further complicated by the transfer from relatively integrated and familiar pediatric services to more fragmented and unfamiliar adult services. Previous studies report that families feel abandoned, overwhelmed, and unsupported during transition. In order to provide better support to families, we need to understand how families currently manage transition, what supports they need most, and how key factors influence their experiences. The aim of this study is to understand how families of youth with medical complexity adapt to the youth’s transition to adulthood and transfer to adult health care, social, and education services, and to explain how contextual factors interact to influence this process. Methods Informed by the Life Course Health Development framework, this study will use a qualitative explanatory case study design. The sample will include 10–15 families (1–3 participants per family) of youth with medical complexity (aged 16–30 years) who have lived experience with the youth’s transition to adulthood and transfer to adult services. Data sources will include semi-structured interviews and resources participants identified as supporting the youth’s transition. Reflexive thematic analysis will be used to analyze interview data; directed content analysis will be used for documentary evidence. Discussion While previous studies report that families experience significant challenges and emotional toll during transition, it is not known how they adapt to these challenges. Through this study, we will identify what is currently working for families, what they continue to struggle with, and what their most urgent needs are in relation to transition. The anticipated findings will inform both practice solutions and policy changes to address the needs of these families during transition. This study will contribute to the evidence base needed to develop novel solutions and advance policies that will meaningfully support successful transitions for families of youth with medical complexity.

scholarly journals (YOU GOTTA HAVE) FRIENDS: CARE LEAVING, FRIENDSHIPS, AND AGENCY INTERVENTION

2018 ◽  
Vol 9 (1) ◽  
pp. 154 ◽  
Author(s):  
Varda Mann-Feder
Keyword(s):  
Young People ◽  
Peer Relationships ◽  
Transition To Adulthood ◽  
Youth Care ◽  
Aging Out ◽  
Protective Mechanisms ◽  
Child And Youth Care ◽  
Youth In Care ◽  
Home Placement ◽  
Care System

This article is based on a presentation at FICE Austria in 2016 that reported on the findings of a qualitative study that explored the perceptions of friendships held by young people in and formerly in care. Eleven young people from the care system and three frontline child and youth care workers were interviewed with a focus on the effects of out-of-home placement on the development of peer relationships. Results suggest that there are significant obstacles to the development of age-appropriate friendships both within the care system and between youth in care and their community peers. These findings are discussed in light of the evidence that friendships are critical for healthy development and can serve as a buffer against stigma for youth who have been placed in out-of-home care. The study reported here is part of a larger program of research, the goal of which is to identify protective mechanisms or developmental assets in the transition to adulthood that could be better cultivated for youth aging out of placement.

scholarly journals A Possibility to Square the Circle? Youth Uncertainty and the Imagination of Late Adulthood

2018 ◽  
Vol 23 (3) ◽  
pp. 671-686 ◽  
Author(s):  
Valentina Cuzzocrea
Keyword(s):  
Young People ◽  
Transition To Adulthood ◽  
Turning Points ◽  
The Self ◽  
Short Term ◽  
Late Adulthood ◽  
Youth Transition ◽  
The Future ◽  
Central Interest ◽  
Methodological Difficulties

Youth transitions literature has traditionally devoted great attention to identifying and analysing events that are considered crucial to young people regarding their (short term) orientation to the future and wider narratives of the self. Such categories as ‘turning points’, ‘critical moments’, and ‘crossroads’ have been used to identify and explain the events around which young people take important decisions in order to realise the so-called transition to adulthood, each suggesting a sense of rupture. This focus sits within a central interest of youth transition literature, namely to investigate what hinders or facilitates independence. When looking more broadly at how young people imagine their future, however, taking a longer perspective opens insights not only in terms of ruptures, which these categories tend to refer to, but also in terms of the continuities that might also be very important in these narratives. Despite the methodological difficulties in getting young people to speak about their long future, this article seeks to discuss how they see their late adulthood through reflecting on how their narratives play out across different temporal horizons in order to establish their current priorities. Empirically, it is substantiated by essays on the future written by 18-year-old students based in Sardinia, and discusses in particular an emphasis which they put on the long as a term of fulfilment of their values.

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