scholarly journals Psychosocial vulnerability among carers of persons living with a chronic illness: A scoping review

2021 ◽  
Author(s):  
Orlaith Cormican ◽  
Pauline Meskell ◽  
Maura Dowling
Keyword(s):  
Chronic Illness ◽  
Scoping Review ◽  
Psychosocial Vulnerability

Exploring the Application of Interpretive Description in Chronic Illness: A Scoping Review

2021 ◽  
pp. RTNP-D-20-00022
Author(s):  
Anna M. Marrocco ◽  
Maher M. El-Masri
Keyword(s):  
Chronic Illness ◽  
Scoping Review ◽  
Interpretive Description ◽  
Methodological Framework ◽  
Pragmatic Approach ◽  
Disciplinary Knowledge ◽  
Nursing Knowledge ◽  
Scoping Reviews ◽  
Complex Health Problems ◽  
Meaningful Research

Background and PurposeChronic illness is a complex condition that affects over one billion people. To develop a deeper insight of the needs of this patient population, interpretive description uses disciplinary knowledge as the source of understanding. This methodology is a pragmatic approach to research without focusing on a strict methodological directive. The aims of this scoping review are twofold, (a) to describe the findings of studies that have used Thorne's interpretive description to research chronic illness and (b) to discuss the application of interpretive description in clinical research. Thereby, showing interpretive description as a valuable tool to advance nursing knowledge and patient care.MethodsThe methodological framework for this review was based on the Johanna Briggs Institute guidelines for scoping reviews.ResultsTo develop an understanding of interpretive description, it is essential to examine the results of studies which have applied the methodology. Our scoping review showed that researchers utilizing interpretive description identified four common challenges experienced by individuals living with chronic illness: symptom management, education and knowledge, supportive care, and cultural disadvantages. By demonstrating how interpretive description is applied, it shows how it can be used to understand and interpret clinical phenomena to improve practice.Implication for PracticeThis scoping review demonstrates how interpretive description was used to develop knowledge about chronic illness. The premise of interpretive description is that disciplinary knowledge offers a sufficient foundation to develop meaningful research to support health practices. By approaching research from a disciplinary perspective, new knowledge can be discovered to complex health problems.

Exploring experiences of family caregivers for older adults with chronic illness: A scoping review

2021 ◽  
Vol 42 (6) ◽  
pp. 1525-1532
Author(s):  
Barbara Member Jika ◽  
Hafiz T.A. Khan ◽  
Muili Lawal
Keyword(s):  
Older Adults ◽  
Chronic Illness ◽  
Family Caregivers ◽  
Scoping Review

scholarly journals Online interprofessional education related to chronic illness for health professionals: a scoping review

2020 ◽  
pp. 1-10 ◽  
Author(s):  
Catherine McCabe ◽  
Kunal D Patel ◽  
Simon Fletcher ◽  
Niall Winters ◽  
Greg Sheaf ◽  
...  
Keyword(s):  
Chronic Illness ◽  
Scoping Review ◽  
Health Professionals ◽  
Interprofessional Education

scholarly journals Adapting to, integrating and self-managing HIV as a chronic illness: a scoping review protocol

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e047870
Author(s):  
Neo Phyllis Sematlane ◽  
Lucia Knight ◽  
Caroline Masquillier ◽  
Edwin Wouters
Keyword(s):  
Chronic Illness ◽  
Scoping Review ◽  
Selection Process ◽  
Grey Literature ◽  
Social Science Research ◽  
Research Network ◽  
Self Management ◽  
Cochrane Library ◽  
Scoping Reviews ◽  
Living With Hiv

IntroductionThe process of adapting to a life with a chronic illness, is a well-researched phenomenon for a number of common chronic illnesses. The construct, adaptation, embeds the notions of integration of the chronic illness into identity and self-management. Integration precedes self-management and is key to living positively with a chronic illness. Adaptation is an important concept in understanding trajectory and outcomes of living with a chronic illness. Applicability of these concepts to HIV as a chronic illness; when suppressive adherence has been achieved, however, is unknown. Specifically, the adaptation process to living with HIV as a chronic illness, the integration of HIV into identity and the resulting self-management behaviours by adults living with HIV are relatively unexplored. We describe a protocol for a scoping review of adaptation to living with HIV, we structure the enquiry around integration of HIV into identity and self-management and interrogate theories, models and frameworks that have been proposed and studied and we evaluate them for relevance and usefulness in the care and management of HIV.Methods and analysisMethods proposed by the Johanna Briggs Institute will be followed. The protocol was drafted using the Preferred Reporting Items for Systematic Reviews and Meta-analysis extension for Scoping Reviews and was registered with the Open Science Framework. MEDLINE, SCOPUS, Cochrane Library, CINHAL and SocINDEX databases will be searched. A search in Social Science Research Network eLibrary and Open Access Theses and Dissertations will gather grey literature and reference lists of included sources will be screened. Study selection process will involve a title and abstract review and full text review, guided by clearly defined inclusion and exclusion criteria.Ethics and disseminationEthical approval is not required because this is a proposed review and collection of data on publicly available materials. The results will be published in a topic relevant journal and presented at related scientific events.

scholarly journals Mapping Behavioral Health Serious Game Interventions for Adults With Chronic Illness: Scoping Review

10.2196/18687 ◽  
2020 ◽  
Vol 8 (3) ◽  
pp. e18687
Author(s):  
Teresa Hagan Thomas ◽  
Varshini Sivakumar ◽  
Dmitriy Babichenko ◽  
Victoria L B Grieve ◽  
Mary Lou Klem
Keyword(s):  
Chronic Illness ◽  
Health Outcomes ◽  
Patient Outcomes ◽  
Scoping Review ◽  
Serious Games ◽  
Serious Game ◽  
Theoretical Frameworks ◽  
Scoping Reviews ◽  
Game Intervention ◽  
Games For Health

Background Serious games for health are increasingly being used to address health outcomes in patients with chronic illnesses. These studies vary in their study designs, patient populations, frameworks, outcome variables, and degree of specificity of the serious game intervention. Objective This scoping review aims to clarify the conceptual features of the existing research related to serious games designed to improve cognitive and behavioral outcomes in adults with chronic illness. Methods We applied the Preferred Reporting Items of Systematic Reviews and Meta-Analysis for scoping reviews methodology, including an a priori research question. We searched 4 electronic databases to identify articles published through November 2019. Inclusion criteria encompassed (1) adults 18 years or older; (2) patients with a diagnosis of chronic illness; (3) a serious game intervention; and (4) defined patient outcomes that assess patients’ behavioral, cognitive, or health outcomes. Results Of the 3305 articles identified, 38 were included in the review. We charted and analyzed the theoretical frameworks, key concepts, and outcome variables of these studies with summaries of features across articles. The majority of studies used a randomized controlled trial design (23/38, 61%), included a custom serious game intervention (22/38, 58%), and lacked a theoretical framework (25/38, 66%). Common outcome variables included quality of life (16/38, 42%), mood (15/38, 39%), cognitive function (13/38, 34%), symptoms (12/38, 32%), and physical activity (9/38, 24%). Key differences between studies included whether or not serious games aimed to train versus teach patients, be widely accessible versus tailored interventions, or replace versus complement current treatments. Conclusions This scoping review defines the current landscape of research in serious games for health research targeting behavioral and cognitive outcomes in adults with chronic disease. Studies have addressed a variety of patient populations and diverse patient outcomes. Researchers wanting to build on the current research should integrate theoretical frameworks into the design of the intervention and trial to more clearly articulate the active ingredients and mechanisms of serious games.

scholarly journals Mapping Behavioral Health Serious Game Interventions for Adults With Chronic Illness: Scoping Review (Preprint)

2020 ◽  
Author(s):  
Teresa Hagan Thomas ◽  
Varshini Sivakumar ◽  
Dmitriy Babichenko ◽  
Victoria L B Grieve ◽  
Mary Lou Klem
Keyword(s):  
Chronic Illness ◽  
Health Outcomes ◽  
Patient Outcomes ◽  
Scoping Review ◽  
Serious Games ◽  
Serious Game ◽  
Theoretical Frameworks ◽  
Scoping Reviews ◽  
Game Intervention ◽  
Games For Health

BACKGROUND Serious games for health are increasingly being used to address health outcomes in patients with chronic illnesses. These studies vary in their study designs, patient populations, frameworks, outcome variables, and degree of specificity of the serious game intervention. OBJECTIVE This scoping review aims to clarify the conceptual features of the existing research related to serious games designed to improve cognitive and behavioral outcomes in adults with chronic illness. METHODS We applied the Preferred Reporting Items of Systematic Reviews and Meta-Analysis for scoping reviews methodology, including an a priori research question. We searched 4 electronic databases to identify articles published through November 2019. Inclusion criteria encompassed (1) adults 18 years or older; (2) patients with a diagnosis of chronic illness; (3) a serious game intervention; and (4) defined patient outcomes that assess patients’ behavioral, cognitive, or health outcomes. RESULTS Of the 3305 articles identified, 38 were included in the review. We charted and analyzed the theoretical frameworks, key concepts, and outcome variables of these studies with summaries of features across articles. The majority of studies used a randomized controlled trial design (23/38, 61%), included a custom serious game intervention (22/38, 58%), and lacked a theoretical framework (25/38, 66%). Common outcome variables included quality of life (16/38, 42%), mood (15/38, 39%), cognitive function (13/38, 34%), symptoms (12/38, 32%), and physical activity (9/38, 24%). Key differences between studies included whether or not serious games aimed to train versus teach patients, be widely accessible versus tailored interventions, or replace versus complement current treatments. CONCLUSIONS This scoping review defines the current landscape of research in serious games for health research targeting behavioral and cognitive outcomes in adults with chronic disease. Studies have addressed a variety of patient populations and diverse patient outcomes. Researchers wanting to build on the current research should integrate theoretical frameworks into the design of the intervention and trial to more clearly articulate the active ingredients and mechanisms of serious games.

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