Barriers and enablers to consumer and community involvement in research and healthcare improvement: Perspectives from consumer organisations, health services and researchers in Melbourne, Australia

Author(s):  
Darshini Ayton ◽  
Sandra Braaf ◽  
Angela Jones ◽  
Helena Teede ◽  
Madeleine Gardam ◽  
...  
2004 ◽  
Author(s):  

In 1996, the government of India decided to provide a package of reproductive and child health services through the existing family welfare program, adopting a community needs assessment approach (CNAA). To implement this approach, the government abolished its practice of setting contraceptive targets centrally and introduced a decentralized planning strategy whereby health workers assessed the reproductive health needs of women in their respective areas and prepared local plans to meet those needs. They also involved community leaders to promote community participation in the reproductive and child health program. Since 1998, several evaluation studies have assessed the impact of CNAA on the program’s performance and community participation. These studies showed that the performance of the maternal health-care program improved, whereas the functioning of the family planning program initially declined but later recovered. The approach achieved little in boosting community involvement. This project tested a new model of health committee to help stimulate community participation in reproductive and child health activities at the village level. The experiment, described in this report, was conducted in the Hunsur block of the Mysore District in Karnataka for two years. Researchers evaluated the impact in terms of community involvement and utilization of reproductive and child health services.


2019 ◽  
Vol 44 (1) ◽  
pp. 30-35 ◽  
Author(s):  
Billy Boland

Quality improvement (QI) approaches are becoming increasingly important in the delivery of mental healthcare internationally. They were originally developed in the manufacturing industry, but the principle of having a systematic approach to improvement has spread to many other industries, not least to healthcare. Quality improvement approaches in healthcare were pioneered in the USA at organisations such as Virginia Mason and the Institute for Healthcare Improvement. In recent years, they have become firmly established in mental health services in the UK's National Health Service (NHS). There are a number of different approaches to quality improvement, but two leading models have taken root: ‘lean thinking’ (also known as ‘lean methodology’ or simply ‘lean’), which arose out of Virginia Mason, and the ‘Model for Improvement’, which came out of the Institute of Healthcare Improvement. This article describes these two quality improvement approaches, critiques their philosophy and explores how they can apply in the provision of mental healthcare, particularly with reference to the use of data, evidence and metrics.


2021 ◽  
Vol 8 (1) ◽  
pp. 12-20
Author(s):  
Murwanti Murwanti

Background: Tuberculosis is an infectious disease if the patient does not complete therapeutic treatment can cause multidrug-resistant tuberculosis (MDR-TB). The role of the environment is needed to support treatment.The study aims to explore more deeply the family's support for medication adherence in patients with multidrug-resistant tuberculosis (TBC-MDR). Method: This type of research is qualitative using a descriptive phenomenological approach, in-depth interviews of 5 participants based on purposive sampling technique. Results: The results of the study found the role of the family towards TB-MDR patients manifested in emotional, physical, instrumental, and spiritual support. emotional support consists of positive and negative emotional. Community involvement after counseling was supportive but there were some who could not accept even families of MDR-TB sufferers were also shunned. The role of health services is to convey information, prepare medicines, supervise, motivate treatment, remind check schedules, refer to more complete facilities when needed, visit homes and ensure patients take medication if unable to come to the public health service. Conclusion: This study found 3 main themes, namely the role of comprehensive family, community involvement and the role of health services in mentoring TB-MDR patients.


2006 ◽  
Vol 12 (3) ◽  
pp. 94 ◽  
Author(s):  
Anne E Johnson ◽  
Barbara Beacham ◽  
Cecilia Moretti ◽  
John Wishart

Community and consumer participation is strongly advocated as a way to help shape health systems and health services to become more inclusive, accountable, responsive to community and consumer needs, and to improve health outcomes. Involving consumer representatives on committees is one partnership-style method of bringing a consumer perspective into health system and health services decision-making processes. Many consumer organisations are invited to provide consumer representatives to be members of committees. A study was conducted to identify the concerns of health consumers when they are required to take on the role of being a consumer representative on committees. Focus group interviews were conducted using a series of scenarios and questions as a discussion guide. Forty-eight participants were involved in eight focus group interviews in metropolitan and regional South Australia. General concerns covering seven key areas emerged, as well as more specific concerns relating to particular roles representatives may be required to undertake. This study highlighted particular areas of concern for consumer representatives that can be utilised in developing supports to increase consumers' effectiveness, capacity and confidence to fulfil the representative role. It also highlighted that the capacity building process for consumer participation needs to be a joint partnership between the health sector and consumer organisations, rather than be seen as solely the responsibility of individual consumer representatives.


2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Peter Bragge ◽  
Lidia Horvat ◽  
Louise Mckinlay ◽  
Kim Borg ◽  
Belinda Macleod-Smith ◽  
...  

Abstract Background Meaningful involvement of consumers in healthcare is a high priority worldwide. In Victoria, Australia, a Partnering in Healthcare (PiH) policy framework was developed to guide health services in addressing consumer-focused healthcare improvements. The aim of this project was to identify priorities for improvement relating to the framework from the perspective of Victorian healthcare consumers and those who work in the healthcare sector. Methods A survey of Victorians representing key stakeholder groups was used to identify a “long list” of potential priorities, followed by a day-long summit to reduce this to a “short list” using explicit prioritization criteria. The survey was piloted prior to implementation, and diverse consumer groups and key health service providers were purposefully sampled for the summit. Results The survey (n = 680 respondents) generated 14–20 thematic categories across the proposed framework’s five domains. The summit (n = 31 participants, including n = 21 consumer representatives) prioritized the following five areas based on the survey findings: communication, shared decision-making, (shared) care planning, health (system) literacy and people (not) around the patient. These priorities were underpinned by three cross-cutting principles: care/compassion/respect, accountability and diversity. Conclusion Few studies have explicitly sought consumer input on health policy implementation. Adopting a codesign approach enabled the framework to be a shared foundation of healthcare improvement. The framework was subsequently launched in 2019. All Victorian health services are required to commit annually to improvement priorities against at least two framework domains.


Sexual Health ◽  
2018 ◽  
Vol 15 (4) ◽  
pp. 312
Author(s):  
Georgia Ride ◽  
Danielle C. Newton

Background There is a lack of research on young people with physical disabilities’ access to sexual and reproductive health (SRH) services in Australia. Research has found that there are attitudinal, physical and communication barriers for people with disability, in general, accessing health services, including SRH services. This paper explores key informant perceptions of the barriers and enablers to young people with physical disabilities accessing SRH services in Australia. Methods: This research used a qualitative approach and involved semi-structured interviews with key informants. Key informants were identified using purposive and snowball sampling, and included health professionals working in SRH services and disability-focussed organisations. Thematic analysis was used to analyse the data. Results: Key informant interviews were carried out with nine health professionals and professionals from disability-focussed organisations. Key themes were: attitudes, role and capacity of health professionals; and additional supports. These three broad areas can either act as barriers or enablers for young people with physical disabilities to access SRH services. This research highlighted that heterosexual and gender bias creates additional barriers for young women with physical disabilities and young people with physical disabilities who identify as lesbian, gay, bisexual, queer, transgender or intersex (LGBQTI). Conclusion: Young people with physical disabilities face barriers accessing SRH services. Additional barriers are faced by young women and LGBQTI young people with physical disabilities. This paper suggests strategies to overcome these barriers.


Sign in / Sign up

Export Citation Format

Share Document