Perceptions of community dementia friendliness: A cross‐sectional study of people with dementia, family caregivers, service providers, and the general public in Taiwan

2021 ◽  
Author(s):  
Hsin‐Yun Liu ◽  
Hsiu‐Li Huang ◽  
Yi‐Chen Chiu ◽  
Li‐Yu Tang ◽  
Jung‐Lung Hsu ◽  
...  
Keyword(s):  
Family Caregivers ◽  
General Public ◽  
Service Providers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
People With Dementia

Clustering Analysis of the Care Problems of People with Dementia Based on the Minimum Spanning Tree Algorithm: A Cross-sectional Study (Preprint)

2021 ◽  
Author(s):  
Minmin Leng ◽  
Yue Sun ◽  
Hui Chang ◽  
Zhiwen Wang
Keyword(s):  
Family Caregivers ◽  
Clustering Analysis ◽  
Spanning Tree ◽  
Minimum Spanning Tree ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
The Core ◽  
People With Dementia ◽  
Care Problems

BACKGROUND Recognizing the correlations between care problems of people with dementia could be beneficial, as it may help clinicians choose treatment methods because related symptom groups may respond to the same treatment intervention. However, generalizable data on the prevalence of care problems and potential clusters of care problems in people with dementia in China remain unavailable. OBJECTIVE This study aimed to (1) evaluate the prevalence of various care problems of people with dementia, and (2) explore the core care problems and the correlation between care problems of people with dementia. METHODS A cross-sectional study design was adopted to identify the care problems of people with dementia reported by family caregivers. The questionnaire consisted of two parts. The first part was mainly socio-demographic questions of people with dementia. The second part was the care problems evaluation sheet which involved three aspects: daily living care problems, behavioral and psychological symptoms, and safety risks. Care problems of people with dementia were measured with this care problems evaluation sheet. Clustering analysis of the care problems based on Kruskal's minimum spanning tree (MST) algorithm was performed in the Jupyter Notebook software to explore the core care problems and the correlation between care problems. RESULTS A total of 687 participants were included in the analysis. In general, the prevalence of having difficulty in language performance, agitated behavior, incidence of falls was relatively higher in people with dementia, which distressed their family caregivers. Through the clustering analysis based on the Kruskal's MST algorithm, the 63 care problems were clustered into 7 clusters. The 7 core care problems were “Don't know how to dress in order”, “Refusing to take a bath”, “Bedridden”, “Hitting, kicking, pushing, or biting others”, “Pacing and aimless wandering”, “Complaining”, and “Choking on food”. CONCLUSIONS The prevalence of various care problems was high. Through the clustering analysis, care problems were clustered into 7 clusters and 7 core care problems were identified. The identity of just a few core care problems instead of a large number of them might have relevant clinical implications, in the sense that it may lead to a greater ease in the identification of underlying etiologies and to more rational treatments in people with dementia.

scholarly journals A cross-sectional study of family caregiver burden and psychological distress linked to frailty and functional dependency of a relative with advanced dementia

Dementia ◽  
2018 ◽  
Vol 19 (2) ◽  
pp. 301-318 ◽  
Author(s):  
Wilson Abreu ◽  
Debbie Tolson ◽  
Graham A Jackson ◽  
Nilza Costa
Keyword(s):  
Psychological Distress ◽  
Family Caregivers ◽  
Caregiver Burden ◽  
Well Being ◽  
Cross Sectional Study ◽  
Functional Dependency ◽  
Advanced Dementia ◽  
Sectional Study ◽  
Cross Sectional ◽  
People With Dementia

Psychological health of caregivers of people with dementia is a major public concern. This study sought to determine the relationship between caregiver burden, psychological distress, frailty and functional dependency of a relative with advanced dementia. Persons with dementia and their caregivers (102 dyads) participated in this Portuguese community based cross-sectional study. Data were collected using the Clinical Dementia Rating Scale, a sociodemographic questionnaire, the Zarit Burden Interview, the Brief Symptoms Inventory and the Edmonton Frail Scale. Alzheimer's disease was the most common type of dementia among the recipients of care, who showed moderate (42.2%) to severe (52.9%) dementia. Among them 35.3% exhibited moderate and 45.1% severe frailty. Family caregivers reported moderate (76.5%) to severe burden (18.6%). Psychological distress was very high among family caregivers. Results show that people with dementia exhibited moderate (35.3%) or severe frailty (45.1%) and that a severe frailty was found in people with moderate dementia. A one-way ANOVA was conducted between the Global Severity Index and some sociodemographic variables. ANOVA reached p < .01 for employment status of the caregiver, assistance and professional support, and psychiatric history; and p = 0.01 for caregiver age and years of caregiving. Although caregivers reported benefit from the supportive approach offered by the multidisciplinary home care team, high levels of distress and associated burden were found, which might decrease their capacity to care for the person with dementia and their own health and well-being.

The experience of psychological distress in family caregivers of people with dementia: A cross-sectional study

2017 ◽  
Vol 54 (2) ◽  
pp. 317-323 ◽  
Author(s):  
Wilson Abreu ◽  
Teresa Rodrigues ◽  
Carlos Sequeira ◽  
Regina Pires ◽  
Ana Sanhudo
Keyword(s):  
Psychological Distress ◽  
Family Caregivers ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
People With Dementia

scholarly journals Zellweger spectrum disorder: A cross-sectional study of symptom prevalence using input from family caregivers

2020 ◽  
Vol 25 ◽  
pp. 100694
Author(s):  
Mousumi Bose ◽  
David D. Cuthbertson ◽  
Marsha A. Fraser ◽  
Jean-Baptiste Roullet ◽  
K. Michael Gibson ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Cross Sectional Study ◽  
Spectrum Disorder ◽  
Sectional Study ◽  
Cross Sectional ◽  
Symptom Prevalence ◽  
Zellweger Spectrum Disorder
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