Validation of the Latin American‐Spanish version of the scale ‘Quality of Life in Life‐Threatening Illness–Family Caregiver Version’ (QOLLTI‐F)

2021 ◽  
Author(s):  
Mauricio Arias‐Rojas ◽  
Edith Arredondo Holgín ◽  
Sonia Carreño Moreno ◽  
Carolina Posada López ◽  
Bertha Tellez
Keyword(s):  
Quality Of Life ◽  
Latin American ◽  
Family Caregiver ◽  
Spanish Version ◽  
Life Threatening Illness ◽  
Life Threatening ◽  
Latin American Spanish ◽  
American Spanish

scholarly journals More comprehensively measuring quality of life in life-threatening illness: the McGill Quality of Life Questionnaire – Expanded

2019 ◽  
Vol 18 (1) ◽  
Author(s):  
S. Robin Cohen ◽  
Lara B. Russell ◽  
Anne Leis ◽  
Javad Shahidi ◽  
Pat Porterfield ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Second Order ◽  
Model Fit ◽  
Life Questionnaire ◽  
Quality Of Life Questionnaire ◽  
Healthcare Environment ◽  
Life Threatening Illness ◽  
Life Threatening ◽  
Order Factor

Abstract Background Domains other than those commonly measured (physical, psychological, social, and sometimes existential/spiritual) are important to the quality of life of people with life-threatening illness. The McGill Quality of Life Questionnaire (MQOL) – Revised measures the four common domains. The aim of this study was to create a psychometrically sound instrument, MQOL – Expanded, to comprehensively measure quality of life by adding to MQOL-Revised the domains of cognition, healthcare, environment, (feeling like a) burden, and possibly, finance. Methods Confirmatory factor analyses were conducted on three datasets to ascertain whether seven new items belonged with existing MQOL-Revised domains, whether good model fit was obtained with their addition as five separate domains to MQOL-Revised, and whether a second-order factor representing overall quality of life was present. People with life-threatening illnesses (mainly cancer) or aged > 80 were recruited from 15 healthcare sites in seven Canadian provinces. Settings included: palliative home care and inpatient units; acute care units; oncology outpatient clinics. Results Good model fit was obtained when adding each of the five domains separately to MQOL-Revised and for the nine correlated domains. Fit was acceptable for a second-order factor model. The financial domain was removed because of low importance. The resulting MQOL-Expanded is a 21-item instrument with eight domains (fit of eight correlated domains: Comparative Fit Index = .96; Root Mean Square Error of Approximation = .033). Conclusions MQOL-Expanded builds on MQOL-Revised to more comprehensively measure the quality of life of people with life-threatening illness. Our analyses provide validity evidence for the MQOL-Expanded domain and summary scores; the need for further validation research is discussed. Use of MQOL-Expanded will enable a more holistic understanding of the quality of life of people with a life-threatening illness and the impact of treatments and interventions upon it. It will allow for a better understanding of less commonly assessed but important life domains (cognition, healthcare, environment, feeling like a burden) and their relationship to the more commonly assessed domains (physical, psychological, social, existential/spiritual).

Validation of the “Quality of Life in Life-Threatening Illness—Family Carer Version” (QOLLTI-F) in German-speaking carers of advanced cancer patients

2014 ◽  
Vol 22 (10) ◽  
pp. 2783-2791 ◽  
Author(s):  
Sophie Schur ◽  
Alexandra Ebert-Vogel ◽  
Michaela Amering ◽  
Eva Katharina Masel ◽  
Marie Neubauer ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Family Carer ◽  
Advanced Cancer Patients ◽  
Life Threatening Illness ◽  
German Speaking ◽  
Life Threatening

Face-Name Associative Memory Exam--Latin American Spanish Version

2020 ◽  
Author(s):  
Clara Vila-Castelar ◽  
Kathryn V. Papp ◽  
Rebecca E. Amariglio ◽  
Valeria L. Torres ◽  
Ana Baena ◽  
...  
Keyword(s):  
Associative Memory ◽  
Latin American ◽  
Spanish Version ◽  
Latin American Spanish ◽  
American Spanish

The relation between the experience of time and psychological distress in patients with hematological malignancies

2006 ◽  
Vol 4 (4) ◽  
pp. 357-363 ◽  
Author(s):  
MARC WITTMANN ◽  
TANJA VOLLMER ◽  
CLAUDIA SCHWEIGER ◽  
WOLFGANG HIDDEMANN
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Hematological Malignancies ◽  
Well Being ◽  
Anxiety And Depression ◽  
Life Threatening Illness ◽  
Experience Of Time ◽  
Spiritual Well Being ◽  
Life Threatening

Objective: The experience of time is strongly related to our momentary mood states. Patients with a life-threatening illness experience an extreme change in mood and suffer from psychological distress that can develop into clinically relevant psychiatric disorders, like anxiety and depression. The aim of this study was to investigate the associations among the subjective perception of time, psychological distress, and quality of life in patients with hematological malignancies.Methods: Eighty-eight inpatients with hematological malignancies rated how fast time passes subjectively on a visual analog scale and prospectively estimated a time span of 13 min. The Hospital Anxiety and Depression Scale (HADS) self-report measures of health-related quality of life (FACT-G) and spiritual well-being (FACIT-Sp) were employed to assess psychological distress and quality of life.Results: Those patients who reported a lower quality of life, less spiritual well-being, and more anxiety experienced a slower passage of subjective time and overestimated the 13-min time interval.Significance of results: Our interpretation of the results is that patients with a life-threatening illness who show symptoms of psychological distress draw attention away from meaningful thoughts and actions and, thus, experience time as passing more slowly. An altered sense of time can be a sign of mental suffering, which should be addressed within psycho-oncological interventions. As this is the first study to demonstrate this relation in cancer patients, further research is needed to investigate the experience of time and its relation to meaning as an issue in clinical diagnostics.

A brief spiritual beliefs inventory for use in quality of life research in life-threatening illness

1998 ◽  
Vol 7 (6) ◽  
pp. 460-469 ◽  
Author(s):  
Jimmie C. Holland ◽  
Kathryn M. Kash ◽  
Steven Passik ◽  
Melissa K. Gronert ◽  
Antonio Sison ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spiritual Beliefs ◽  
Quality Of Life Research ◽  
Life Threatening Illness ◽  
Life Threatening

scholarly journals Higher levels of unmet support needs in spouses are associated with poorer quality of life – a descriptive cross-sectional study in the context of palliative home care

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Maria Norinder ◽  
Kristofer Årestedt ◽  
Susanne Lind ◽  
Lena Axelsson ◽  
Gunn Grande ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Family Caregivers ◽  
Emotional Health ◽  
Support Needs ◽  
Cross Sectional ◽  
Palliative Home Care ◽  
Life Threatening Illness ◽  
Life Threatening

Abstract Background Family caregivers often report having unmet support needs when caring for someone with life-threatening illness. They are at risk for psychological distress, adverse physical symptoms and negatively affected quality of life. This study aims to explore associations between family caregivers’ support needs and quality of life when caring for a spouse receiving specialized palliative home care. Methods A descriptive cross-sectional design was used: 114 family caregivers completed the Carer Support Needs Assessment Tool (CSNAT) and the Quality of Life in Life-Threatening Illness – Family caregiver version (QOLLTI-F) and 43 of them also answered one open-ended question on thoughts about their situation. Descriptive statistics, multiple linear regression analyses, and qualitative content analysis, were used for analyses. Results Higher levels of unmet support needs were significantly associated with poorer quality of life. All CSNAT support domains were significantly associated with one or more quality of life domains in QOLLTI-F, with the exception of the QoL domain related to distress about the patient condition. However, family caregivers described in the open-ended question that their life was disrupted by the patient’s life-threatening illness and its consequences. Family caregivers reported most the need of more support concerning knowing what to expect in the future, which they also described as worries and concerns about what the illness would mean for them and the patient further on. Lowest QoL was reported in relation to the patient’s condition, and the family caregiver’s own physical and emotional health. Conclusion With a deeper understanding of the complexities of supporting family caregivers in palliative care, healthcare professionals might help to increase family caregivers’ QoL by revealing their problems and concerns. Thus, tailored support is needed.

Palliative care

2011 ◽  
pp. 715-718
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
Nutritional Status ◽  
Early Stage ◽  
Disease Process ◽  
Life Care ◽  
Life Threatening Illness ◽  
Incurable Condition ◽  
Life Threatening

Palliative care 716 Palliative care is the approach taken to provide comfort and quality of life to people with a life-threatening illness and their families. When curative treatment is not possible, palliative care should be implemented at an early stage in the disease process. The aim is to alleviate symptoms and to support physical, emotional, spiritual and cultural needs. Although palliative care encompasses end of life care, it should be noted that many people live with an incurable condition for many months or years. Throughout this time, optimizing an individual's nutritional status is essential if physical function and quality of life are to be maintained....

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