Health literacy of caregivers of adult care recipients: A systematic scoping review

2016 ◽  
Vol 26 (2) ◽  
Author(s):  
Eva Y. N. Yuen ◽  
Tess Knight ◽  
Lina A. Ricciardelli ◽  
Susan Burney
Keyword(s):  
Health Literacy ◽  
Scoping Review ◽  
Adult Care ◽  
Care Recipients

scholarly journals Dyadic Psychosocial eHealth Interventions: Systematic Scoping Review

10.2196/15509 ◽  
2020 ◽  
Vol 22 (3) ◽  
pp. e15509 ◽  
Author(s):  
Kelly M Shaffer ◽  
Ashley Tigershtrom ◽  
Hoda Badr ◽  
Stephanie Benvengo ◽  
Marisol Hernandez ◽  
...  
Keyword(s):  
Scoping Review ◽  
Family Members ◽  
Intervention Development ◽  
Psychosocial Interventions ◽  
Care Recipient ◽  
Adult Care ◽  
Comprehensive Overview ◽  
Eligibility Criteria ◽  
Care Recipients ◽  
Ehealth Intervention

Background Dyadic psychosocial interventions have been found beneficial both for people coping with mental or physical health conditions as well as their family members and friends who provide them with support. Delivering these interventions via electronic health (eHealth) may help increase their scalability. Objective This scoping review aimed to provide the first comprehensive overview of dyadic eHealth interventions for individuals of all ages affected by mental or physical illness and their family members or friends who support them. The goal was to understand how dyadic eHealth interventions have been used and to highlight areas of research needed to advance dyadic eHealth intervention development and dissemination. Methods A comprehensive electronic literature search of PubMed, EMBASE, Cochrane, Cumulative Index to Nursing and Allied Health Literature, and PsycINFO was conducted for articles published in the English language through March 2019. Eligible records described a psychosocial eHealth intervention that intervened with both care recipients and their support person. Results A total of 7113 records were reviewed of which 101 met eligibility criteria. There were 52 unique dyadic eHealth interventions identified, which were tested across 73 different trials. Of the unique interventions, 33 were conducted among dyads of children and their supporting parent, 1 was conducted with an adolescent-young adult care recipient population, and the remaining 18 were conducted among adult dyads. Interventions targeting pediatric dyads most commonly addressed a mental health condition (n=10); interventions targeting adult dyads most commonly addressed cancer (n=9). More than three-fourths of interventions (n=40) required some human support from research staff or clinicians. Most studies (n=64) specified one or more primary outcomes for care recipients, whereas less than one-fourth (n=22) specified primary outcomes for support persons. Where specified, primary outcomes were most commonly self-reported psychosocial or health factors for both care recipients (n=43) and support persons (n=18). Results of the dyadic eHealth intervention tended to be positive for care recipients, but evidence of effects for support persons was limited because of few studies specifying primary outcomes for supporters. Trials of dyadic eHealth interventions were most commonly randomized controlled trials (RCTs; n=44), and RCTs most commonly compared the dyadic eHealth intervention to usual care alone (n=22). Conclusions This first comprehensive review of dyadic eHealth interventions demonstrates that there is substantial, diverse, and growing literature supporting this interventional approach. However, several significant gaps were identified. Few studies were designed to evaluate the unique effects of dyadic interventions relative to individual interventions. There was also limited assessment and reporting of outcomes for support persons, and there were no interventions meeting our eligibility criteria specifically targeting the needs of older adult dyads. Findings highlight areas of research opportunities for developing dyadic eHealth interventions for novel populations and for increasing access to dyadic care.

scholarly journals Dyadic Psychosocial eHealth Interventions: Systematic Scoping Review (Preprint)

2019 ◽  
Author(s):  
Kelly M Shaffer ◽  
Ashley Tigershtrom ◽  
Hoda Badr ◽  
Stephanie Benvengo ◽  
Marisol Hernandez ◽  
...  
Keyword(s):  
Scoping Review ◽  
Family Members ◽  
Intervention Development ◽  
Psychosocial Interventions ◽  
Care Recipient ◽  
Adult Care ◽  
Comprehensive Overview ◽  
Eligibility Criteria ◽  
Care Recipients ◽  
Ehealth Intervention

BACKGROUND Dyadic psychosocial interventions have been found beneficial both for people coping with mental or physical health conditions as well as their family members and friends who provide them with support. Delivering these interventions via electronic health (eHealth) may help increase their scalability. OBJECTIVE This scoping review aimed to provide the first comprehensive overview of dyadic eHealth interventions for individuals of all ages affected by mental or physical illness and their family members or friends who support them. The goal was to understand how dyadic eHealth interventions have been used and to highlight areas of research needed to advance dyadic eHealth intervention development and dissemination. METHODS A comprehensive electronic literature search of PubMed, EMBASE, Cochrane, Cumulative Index to Nursing and Allied Health Literature, and PsycINFO was conducted for articles published in the English language through March 2019. Eligible records described a psychosocial eHealth intervention that intervened with both care recipients and their support person. RESULTS A total of 7113 records were reviewed of which 101 met eligibility criteria. There were 52 unique dyadic eHealth interventions identified, which were tested across 73 different trials. Of the unique interventions, 33 were conducted among dyads of children and their supporting parent, 1 was conducted with an adolescent-young adult care recipient population, and the remaining 18 were conducted among adult dyads. Interventions targeting pediatric dyads most commonly addressed a mental health condition (n=10); interventions targeting adult dyads most commonly addressed cancer (n=9). More than three-fourths of interventions (n=40) required some human support from research staff or clinicians. Most studies (n=64) specified one or more primary outcomes for care recipients, whereas less than one-fourth (n=22) specified primary outcomes for support persons. Where specified, primary outcomes were most commonly self-reported psychosocial or health factors for both care recipients (n=43) and support persons (n=18). Results of the dyadic eHealth intervention tended to be positive for care recipients, but evidence of effects for support persons was limited because of few studies specifying primary outcomes for supporters. Trials of dyadic eHealth interventions were most commonly randomized controlled trials (RCTs; n=44), and RCTs most commonly compared the dyadic eHealth intervention to usual care alone (n=22). CONCLUSIONS This first comprehensive review of dyadic eHealth interventions demonstrates that there is substantial, diverse, and growing literature supporting this interventional approach. However, several significant gaps were identified. Few studies were designed to evaluate the unique effects of dyadic interventions relative to individual interventions. There was also limited assessment and reporting of outcomes for support persons, and there were no interventions meeting our eligibility criteria specifically targeting the needs of older adult dyads. Findings highlight areas of research opportunities for developing dyadic eHealth interventions for novel populations and for increasing access to dyadic care.

scholarly journals A Scoping Review of Health Literacy Measurement Tools in the Context of Cardiovascular Health

2019 ◽  
Vol 46 (4) ◽  
pp. 677-688 ◽  
Author(s):  
Rita Wai Yu Chan ◽  
Adnan Kisa
Keyword(s):  
Health Literacy ◽  
Scoping Review ◽  
Cardiovascular Health ◽  
Measurement Tool ◽  
Care Providers ◽  
Valid Measurement ◽  
Broad Concept ◽  
Measurement Tools ◽  
Health Literacy Measurement ◽  
Print Literacy

Background. Despite the strong link between health literacy and cardiovascular health outcomes, health literacy measurements remain flawed and fragmented. There exists a gap in the knowledge when formulating a valid measurement to capture the broad concept of health literacy. The existence of various tools for health literacy measurement also hampers the availability of health literacy data. Additionally, little research is available on a valid measurement tool for cardiovascular health literacy. Objective. This study aims to provide an overview of the health literacy measurement tools used in the context of cardiovascular health. Method. A scoping review was conducted. Two electronic databases, Medline and Embase, were searched to identify studies that described a tool for the measurement of health literacy in the context of cardiovascular health. Results. After reviewing the available studies, 53 studies met the inclusion criteria. A total of 26 health literacy measurement tools were identified in the studies. Among the 26 tools, 16 used an objective measurement approach, 9 adopted a subjective approach, and 1 employed a mixed approach. Additionally, 28 studies used tools to measure print literacy, 15 studies measured print literacy and numeracy, and 5 studies measured print literacy, oral literacy, and numeracy. Conclusions. STOFHLA, TOFHLA, and REALM were the mostly commonly used tools in the selected studies. The majority of tools were based heavily on reading skills and word recognition. Researchers should focus on the development of more comprehensive and reliable health literacy measurement tool(s) specific to cardiovascular health to assist health care providers to more efficiently and accurately identify people with cardiovascular problems who have inadequate health literacy.

From ‘conductor’ to ‘second fiddle’: Older adult care recipients’ perspectives on transitions in family caring at hospital admission

2013 ◽  
Vol 50 (9) ◽  
pp. 1197-1205 ◽  
Author(s):  
Elizabeth Lowson ◽  
Barbara Hanratty ◽  
Louise Holmes ◽  
Julia Addington-Hall ◽  
Gunn Grande ◽  
...  
Keyword(s):  
Hospital Admission ◽  
Older Adult ◽  
Adult Care ◽  
Care Recipients ◽  
Family Caring

scholarly journals Health literacy needs among unemployed adults: Triangulating interview and scoping review data

2021 ◽  
Vol 31 (Supplement_3) ◽  
Author(s):  
F Samkange-Zeeb ◽  
H Singh ◽  
M Lakeberg ◽  
J Kolschen ◽  
B Schüz ◽  
...  
Keyword(s):  
Mental Health ◽  
Physical Activity ◽  
Health Literacy ◽  
Scoping Review ◽  
Mental Health Literacy ◽  
Intervention Development ◽  
Well Being ◽  
Related Information ◽  
Health Related ◽  
Nutrition And Physical Activity

Abstract   Disadvantaged populations, including unemployed adults, often exhibit low levels of health literacy. Exploring subjectively perceived health literacy needs in these populations can serve as an entry point for participatory intervention development. We aimed to assess health literacy needs of unemployed adults by triangulating qualitative interviews data and a scoping review. Using a parallel approach, we combined results of an interview study with 10 participants of a job-reintegration program in Germany and a scoping review. The interviews, conducted in early 2021, focused on health topics of interest to the participants and their sources of health-related information. Data were analysed using thematic analysis. For the scoping review, we searched MEDLINE, CINAHL, PsycInfo and SCOPUS up to January 2021 for studies containing “unemployed” AND “health literacy” in titles/abstracts. Study selection and data extraction were done independently by two researchers. Nutrition and physical activity emerged as core themes during the interviews, with some participants referring to the importance of both for mental health. Doctors and the institution running the job-reintegration program were the sources of health-related information often mentioned. The Corona pandemic was reported to have limited physical activity and affected psycho-social well-being. Five out of 2696 studies were included in the review. Four focused on mental health literacy, the fifth assessed information seeking practices in unemployed adults. The qualitative analysis revealed that health literacy needs of unemployed adults go beyond mental health literacy. As nutrition and physical activity impact mental health, interventions targeting such topics might also improve mental health literacy in unemployed adults. Study findings will be discussed with unemployed persons and social workers in co-production workshops that aim to identify and prioritize health literacy needs for intervention development. Key messages Health literacy programs for unemployed adults should target nutrition and physical activity. Workforce re-integration programs play a pivotal role in improving health literacy of unemployed adults.

scholarly journals Promotion of Mental Health Literacy in Adolescents: A Scoping Review

2021 ◽  
Vol 18 (18) ◽  
pp. 9500
Author(s):  
Joana Nobre ◽  
Ana Paula Oliveira ◽  
Francisco Monteiro ◽  
Carlos Sequeira ◽  
Carme Ferré-Grau
Keyword(s):  
Mental Health ◽  
Health Literacy ◽  
Scoping Review ◽  
Classroom Environment ◽  
Mental Health Literacy ◽  
Mental Health Problems ◽  
Stigma Reduction ◽  
Face To Face ◽  
School Settings ◽  
Good Mental Health

In recent years, there has been an important commitment to the development of programs to promote mental health literacy (MHL) among adolescents, due to the prevalence of mental health problems and the low level of MHL that affects this group. The aim of this study was to map the structure and context of programmes/interventions for promoting MHL among adolescents in school settings. A scoping review was conducted following the guidelines of The Joanna Briggs Institute. We searched for studies on programmes/interventions promoting at least one of the components of MHL of adolescents, written in Portuguese, English or Spanish, published from 2013 to 2020, in MEDLINE, CINAHL Plus with Full Text, SciELO, SCOPUS, OpenGrey, RCAAP and in the article reference lists. This review included 29 articles. The majority of programmes/interventions addressed one or more of the four components of MHL, with the knowledge of mental disorders and stigma reduction components being the most covered; were taught by adolescent’s regular teachers; used face to face interventions; had a height variable duration; used non-validated instruments; were implemented in a classroom environment; and showed statistically significant improvements in adolescent’s MHL levels. More research is needed to implement/construct programmes/interventions promoting adolescents’ MHL concerning knowledge on how to obtain and maintain good mental health.

scholarly journals Men’s health literacy: a review and recommendations

2019 ◽  
Vol 35 (5) ◽  
pp. 1037-1051 ◽  
Author(s):  
John L Oliffe ◽  
Emma Rossnagel ◽  
Mary T Kelly ◽  
Joan L Bottorff ◽  
Cherisse Seaton ◽  
...  
Keyword(s):  
Health Promotion ◽  
Health Literacy ◽  
Scoping Review ◽  
Help Seeking ◽  
Medical Knowledge ◽  
Men’S Health ◽  
Future Research ◽  
Men's Health ◽  
Colon Cancers ◽  
Health Promotion Programs

Abstract Although men’s health promotion efforts have attracted programmatic and evaluative research, conspicuously absent are gendered insights to men’s health literacy. The current scoping review article shares the findings drawn from 12 published articles addressing men’s health literacy in a range of health and illness contexts. Evident was consensus that approaches tailored to men’s everyday language and delivered in familiar community-based spaces were central to advancing men’s health literacy, and, by extension, the effectiveness of men’s health promotion programs. However, most men’s health literacy studies focussed on medical knowledge of disease contexts including prostate and colon cancers, while diversity was evident regards conceptual frameworks and/or methods and measures for evaluating men’s health literacy. Despite evidence that low levels of health literacy fuel stigma and men’s reticence for health help-seeking, and that tailoring programs to health literacy levels is requisite to effective men’s health promotion efforts, the field of men’s health literacy remains underdeveloped. Based on the scoping review findings, recommendations for future research include integrating men’s health literacy research as a needs analysis to more effectively design and evaluate targeted men’s health promotion programs.

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