‘He is a New Man, a Proper Family Man’: The Impact of a Specialist ‘Family Wing’ on the Quality of Family Relationships and Paternal Identity among Imprisoned Fathers

2020 ◽  
Author(s):  
ANNA CLANCY ◽  
MIKE MAGUIRE
Keyword(s):  
Family Relationships ◽  
New Man ◽  
Paternal Identity ◽  
The Impact

scholarly journals Impact of Pediatric COVID-19 on Family Health-Related Quality of Life: A Qualitative Study from Latvia

2021 ◽  
Vol 8 ◽  
pp. 2333794X2110123
Author(s):  
Inese Stars ◽  
Liene Smane ◽  
Zanda Pucuka ◽  
Ieva Roge ◽  
Jana Pavare
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Family Relationships ◽  
Family Health ◽  
Support Network ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
The Impact

Information on family health-related quality of life (FHRQoL) among families of children with the coronavirus disease 2019 (COVID-19) is limited. This qualitative study explores the impact of pediatric COVID-19 on FHRQoL from the parents’ perspective. Semi-structured interviews were conducted with parents (n = 20) whose children had tested positive for the severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). Inductive thematic analysis revealed the following 10 themes that represented parents’ perception of FHRQoL while taking care of a child with COVID-19: pediatric COVID-19 as a disease with many unknowns; emotional saturation; internal family relationships in the context of “a new experience”; routine household activities and daily regimen while family is in lockdown; plenty of free time; a wide social support network; social stigma associated with COVID-19; different options for work; savings and debts; challenges with family housing and transport availability. Our results show that parents experience multiple effects of pediatric COVID-19 with regard to FHRQoL.

scholarly journals SAT-427 Quality of Life Following Treatment for Graves’ Disease: A Comparison of Radioactive Iodine Ablation and Surgery

2020 ◽  
Vol 4 (Supplement_1) ◽  
Author(s):  
Christopher W Rowe ◽  
Nicholas D Blefari ◽  
Natalie Rutherford ◽  
Cino Bendinelli ◽  
Chris O’Neill
Keyword(s):  
Quality Of Life ◽  
Family Relationships ◽  
Radioactive Iodine ◽  
Physical Symptom ◽  
Treatment Modalities ◽  
Graves Disease ◽  
Tertiary Institution ◽  
Cross Sectional ◽  
The Impact

Abstract Introduction: Quality of Life (QoL) is reduced in patients with Graves’ disease, however the impact of treatment modality is unclear, with conflicting evidence from recent studies (1–3). We hypothesized that surgery would have a greater impact than radioiodine on QoL in Graves’ disease, especially with regard to the physical-symptom subdomain. Methods: Patients treated with thyroid surgery for benign disease (n=425) or radioactive iodine for hyperthyroidism (n=1637) at a single tertiary institution between 2000 and 2017 were invited to complete a validated thyroid-specific QoL instrument (City of Hope), reporting scores 0–10, where higher scores are associated with greater QoL. Responses were received from 307 patients, of whom 114 (37%) had Graves’ disease, treated with total thyroidectomy (n=23) or doses of 15mCi (550MBq) radioiodine (n=91, including 19 patients receiving 2 or more doses). The results of patients with Graves’ disease are reported here. Medians [interquartile ranges] are compared with the Mann-Whitney test (alpha 0.05). Results: 85% of respondents were female, with no difference in gender between groups (p=0.11). Thyroidectomy patients were more likely to be younger (36 [31–49] vs 50 [39–59] years, p=0.004); and have a shorter duration between treatment and survey (5.9 [2.4–9.6] vs 7.6 [4.9–11.6] years, p=0.04). No overall QoL deficit was seen in patients treated with surgery compared to radioiodine (6.8 [5.2–7.3] vs 7.0 [5.8–8.1], p=0.08). However, patients treated with surgery reported reduce QoL in psychological (6.6 [4.7–7.5] vs 7.0 [5.9–8.2] p=0.05) and social (7.9 [6.4 – 8.9] vs 8.9 [7.4–9.8] p=0.01) subdomains compared to radioiodine-only treated patients. Within the social subdomain, the QoL detriment was driven by lower scores relating to questions regarding impact on personal and family relationships, support, and isolation (p<0.001), and not by impact on activities of daily living or employment concerns. Interestingly, there was no between group difference in the physical symptom subdomain (p=0.16). QoL differences between treatment modalities were preserved when patients receiving multiple doses of radioiodine were excluded. Discussion In this non-randomised cross-sectional study from a tertiary-hospital population in Australia, a QoL deficit was demonstrable in subdomain scores for patients with Graves’ disease treated with surgery compared to radioiodine, although the overall result was not significantly different. Better understanding of patient experiences is required to guide treatment strategies and appropriately counsel patients. References (1) Torring et al. Thyroid. 2019;29(3):322–31. (2) Abraham-Nordling et al. Thyroid. 2005;15(11):1279–86. (3) Ljunggren et al. Thyroid. 1998;8(8):653–9.

Are friends and romantic partners the “best medicine”? How the quality of other close relations mediates the impact of changing family relationships on adjustment

2007 ◽  
Vol 31 (6) ◽  
pp. 559-568 ◽  
Author(s):  
Wim Beyers ◽  
Inge Seiffge-Krenke
Keyword(s):  
Family Relationships ◽  
Close Relationships ◽  
Developmental Trajectories ◽  
Romantic Partners ◽  
Adolescent Relationships ◽  
Mediating Role ◽  
Development Trajectories ◽  
The Impact ◽  
Internalizing And Externalizing

In this longitudinal study, the link between changing relationships between adolescents and their parents and the mediating role of friendships and support from romantic partners on internalizing and externalizing symptoms were analyzed. Based on data on parent—child relationships obtained in 228 adolescents (ages 14 to 17) and their fathers and mothers, three different developmental trajectories were found which were differently linked with internalizing and externalizing symptomatology at ages 17 and 21. The quality of relationships with friends and romantic partners mediated the links between earlier parent—adolescent relationships and later problem behavior. The impact of close relationships with friends and romantic partners as a mediating process between family development trajectories and adaptation was more prominent for females than for males, highlighting the darker side of females' close relationships.

Quality of life Evaluation in patients receiving Steroids (the QuESt tool): initial development in children and young people with acute lymphoblastic leukaemia

2015 ◽  
Vol 101 (3) ◽  
pp. 241-246 ◽  
Author(s):  
M Adams ◽  
M Robling ◽  
J Grainger ◽  
J Tomlins ◽  
A Johnson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Adults ◽  
Acute Lymphoblastic Leukaemia ◽  
Family Relationships ◽  
Lymphoblastic Leukaemia ◽  
Cognitive Interviewing ◽  
Initial Development ◽  
Children And Young Adults ◽  
The Impact

BackgroundThe powerful cytotoxic and immunomodulatory effects of corticosteroids are an important element of the success that has been achieved in the treatment of acute lymphoblastic leukaemia (ALL). In addition to physical side effects, corticosteroids can adversely influence behaviour, cognitive function and mood leading to significantly impaired quality of life (QoL). A number of tools exist for assessing QoL, but none of these specifically examines changes attributable to steroids.MethodsChildren and young adults aged 8–24 years and parents of children receiving maintenance therapy for ALL from four UK centres were invited to participate. The study comprised three stages carried out over 2 years: (1) focus groups and interviews where participants were asked to describe their experiences of dexamethasone; (2) analysis of questionnaires sent to healthcare professionals and patients to evaluate the importance and relevance of the questions; and (3) cognitive interviewing.ResultsInterpretative phenomenological analysis of focus group and interview transcripts identified that dexamethasone adversely influenced behaviour, appetite, body image, mood and family relationships. 157 electronic survey responses were analysed leading to further item development. Cognitive interviewing confirmed face validity and internal consistency. QuESt comprises 28 questions within four domains and has three age-specific versions.ConclusionsQuESt is the first treatment-specific QoL measure for children and young adults receiving corticosteroids. It can be completed in 10–15 min by children aged ≥8 years. Further validity and reliability testing will be undertaken. Although the initial application is for ALL, QuESt may also be a valuable tool for understanding the impact of corticosteroids in other paediatric conditions.

Impact of Sickle Cell Disease on Parents.

Blood ◽  
2006 ◽  
Vol 108 (11) ◽  
pp. 3348-3348
Author(s):  
Alison M. Blyth ◽  
Lisa M. Foerster ◽  
Julie A. Panepinto
Keyword(s):  
Quality Of Life ◽  
Sickle Cell Disease ◽  
Family Functioning ◽  
Sickle Cell ◽  
Family Relationships ◽  
Summary Score ◽  
Family Impact ◽  
Cell Disease ◽  
The Impact

Abstract Background: Caregivers of patients with chronic illness experience a heavy burden leading to their own negative health outcomes and decreased quality of life. Parents may experience a similar burden caring for children with sickle cell disease, a chronic illness characterized by intermittent hospitalizations, recurrent painful crises, and reduced life expectancy. There are little data evaluating how caring for a child with sickle cell disease affects family functioning and parental health-related quality of life (HRQL). Purpose: To examine family functioning and HRQL of parents of children with sickle cell disease. Methods: During a routine clinic visit, parents completed the PedsQL Family Impact Module, which measures the HRQL of parents who are caring for a child with chronic disease by assessing parental fatigue, stress and difficulty concentrating, etc. In addition, the PedsQL Family Impact Module measures family functioning by assessing family relationships and daily activities. Scores range from 0, representing poor family functioning or HRQL, to 100, representing better family functioning or HRQL. To highlight the impact of caring for a chronically ill child living at home, we compared mean family functioning and HRQL scores of parents of children with sickle cell disease to parents of children with a complex chronic health condition who lived in a long-term Children’s Convalescent Hospital (Varni et al.) using a one-sample t-test. Results: Forty-three parents (41 female and 2 male) of children with sickle cell disease completed the PedsQL Family Impact Module. The mean age (standard deviation) of the children was 9.9 yrs (4.9). Parents of children with sickle cell disease had a significantly lower HRQL summary score than the comparison population (71.99 versus 83.75; p≤.001). In addition, parents of children with sickle cell disease had a significantly lower family functioning summary score than the comparison population (73.91 versus 84.27; p=.002) Table 1 shows the mean HRQL and family functioning scores for each scale in both groups of parents. Conclusions: Caring for a child with sickle cell disease has a significant impact on the parent’s HRQL and family functioning. Parents of children with sickle cell disease are more fatigued, have more trouble concentrating and remembering things, and struggle with stress within their families. Future research in sickle cell disease needs to examine the impact of the child’s treatment and care on family functioning and parental HRQL to improve the burden on these parents. Additionally, greater parent education, family-centered support, and social support may be needed to lessen this burden. Health Related Quality of Life and Family Functioning of Parents of Children With Sickle Cell Disease Scale Sickle Cell Disease (n=43) Comparison Group (n=12)(Varni et al.) *p<.005 HRQL Physical Functioning 59.07* 82.99 Emotional Functioning 74.63 78.33 Social Functioning 79.07 85.42 Cognitive Functioning 76.17* 88.75 Family Functioning Family Daily Activities 67.46* 85.14 Family Relationships 78.02 83.75

scholarly journals Experiences and Implications on Family Relationships for Grandmothers Raising Their Grandchildren

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 345-345
Author(s):  
Carol Musil ◽  
Elizabeth Tracy ◽  
Rashon Braxton ◽  
McKenzie Wallace ◽  
Alexandra Jeanblanc
Keyword(s):  
Family Relationships ◽  
Research Team ◽  
Family Members ◽  
Primary Caregivers ◽  
Grandparent Caregivers ◽  
Spousal Relationships ◽  
Need Support ◽  
The Impact ◽  
The U.S

Abstract In the U.S., over 2.7 million grandparents are primary caregivers to grandchildren. It is critical to understand the experiences of grandparent caregivers to design tailored, supportive programs. Our aim was to analyze written journals of 129 grandmothers with respect to the impact of raising grandchildren on relationships with family members. As part of a national RCT study of grandmother caregivers, participants completed daily journals for 4 weeks. Employing thematic data analysis, three members of the research team coded using NVIVO 12 Plus. The research team met regularly to compare and resolve discrepancies in coding. Percent agreement was &gt; 80%. Relationships with the grandchild’s mother were characterized by anger/tension, resentment, and the realization that the mother was incapable of parenting while at the same time expressing worry/concern for her. Relationships with the grandchild’s father mirrored these dynamics while also depicting the father as a distant figure, inconsistent, and financially absent. Spousal relationships were marked by challenges faced by the spouse, their shared role/influence as a grandparent, and the quality of their time spent together. The other relationships described were often focused on their other adult children, as well as their own adult siblings. Grandmother caregivers expressed stress or strain and frustration within these relationships. Caregivers also verbalized gratitude for support from family members within the context of familial and financial stress. Grandmother caregivers may need support in managing familial relationships and stress within these relationships, which may be a target for future interventions.

scholarly journals Children’s well-being and intra-household family relationships during the first COVID-19 lockdown in France

2021 ◽  
Author(s):  
Ariane Pailhé ◽  
Lidia Panico ◽  
Anne Solaz
Keyword(s):  
Family Relationships ◽  
Well Being ◽  
Family Routines ◽  
School Closures ◽  
Parents And Children ◽  
Aged Child ◽  
Strengths And Difficulties ◽  
Nationally Representative ◽  
The Impact

Objective: This article explores the consequences of the first COVID-19 lockdown in the spring of 2020 in France on intra-family relationships and 9-year-old children's socio-emotional well-being. Background: On 17th March 2020, France began a strict lockdown to contain the COVID-19 pandemic, with school closures and limited outings permitted until early June. All family routines and work-life arrangements were impacted. A major concern relates to how these measures impacted family and child well-being. Method: We use data from the Elfe Sapris survey, administered during the first lockdown to about 5,000 families participating to the Etude longitudinale française depuis l'enfance (Elfe), a nationally representative birth cohort of children born in 2011. We analysed correlations between parents' socioeconomic and living conditions on four relational indicators: the experience of lockdown, the quality of relationships between parents and children, and between siblings, and an indicator of children’s socio-emotional well-being, the Strengths and Difficulties Questionnaire (SDQ). Results: The impact of the lockdown on family well-being was conditional on socio-economic factors and their changes over the period. Deterioration of households' financial situation and having to work outside the home during lockdown was negatively correlated with family relationships and children’s socio-emotional well-being. Conclusion: Overall, our results suggest that while France's first lockdown was a relatively positive period for many households with a primary-school-aged child, we highlight that restrictions exacerbated existing difficulties for disadvantaged families.

scholarly journals Evaluation of the quality of life and the impact of pain in patients with temporomandibular disorder

2021 ◽  
Vol 10 (2) ◽  
pp. 215-220
Author(s):  
Claudio Marcio Rodrigues Santana Junior ◽  
Victor Augusto Alves Bento ◽  
Edilson José Zafalon ◽  
Maria Cristina Mesquita ◽  
Daisilene Baena Castillo
Keyword(s):  
Quality Of Life ◽  
Family Relationships ◽  
Negative Impact ◽  
Temporomandibular Disorder ◽  
Public Institution ◽  
Significance Level ◽  
The Mean ◽  
Two Stages ◽  
The Impact

Objective: To evaluate the quality of life and the impact of pain in patients with Temporomandibular Disorder (TMD) Muscle/joint TMJ of a public institution in Brazil. Methods: The study consisted of two stages: the first step was the application of the Ohip-14 questionnaires, Fonseca's Anamnestic Questionnaire and the McGill Questinionaire (Br-MPQ). In the next step, after the clinical treatment, only the Ohip-14 questionnaire was applied to compare the results after the treatment. The significance level was set at α = 0,05. Results: Overall, 100 individuals were examined and diagnosis with TMD Muscle/joint TMJ. The score OHIP-14 scale before the treatment was 30.02 ± 1.26 (mean ± standard error of the mean) points, being that after treatment it was 8.94 ± 0.63 points, statistically significant (p<0,001). The mean score in the Fonseca scale was 73.25 ± 1.93 points. Regarding the Br-MPQ, the results showed that TMD pain affects the patient in the area of work, leisure, home activities, family relationships, relationships with friends, sleep and appetite. Conclusion: SERDOF-DTM patients had severe TMD with a negative impact on quality of life, directly affecting their daily activities. The treatment proved to be effective in improving this condition.

scholarly journals Mental health status and quality of life of people with disabilities in social isolation

2021 ◽  
Vol 31 (3) ◽  
pp. 470-475
Author(s):  
Alan Patricio Silva ◽  
Leticia Maria Factore Pacheco ◽  
Francisco Leitão ◽  
Matheus Paiva Emidio Cavalcanti ◽  
João Batista Francalino da Rocha ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Family Relationships ◽  
Social Withdrawal ◽  
Self Care ◽  
People With Disabilities ◽  
Factors Associated ◽  
The Impact ◽  
Parents And Caregivers

Introduction: at this critical moment of the COVID -19 pandemic, we observe the social withdrawal and the break from the routine of individuals in society, for people with disabilities who need adequate support and a routine of more intense and effective activities may feel a greater need for care and attention of family support for solving everyday problems. Objective: to identify factors associated with the impact of the pandemic on the quality of life of individuals with disabilities and their caregivers. Methods: a virtual survey was carried out with parents and caregivers of people with disabilities to identify the main factors associated with the impact of the Pandemic on daily life and social relationships between family and community. Results: of the parents and caregivers we had access to and answered the questionnaire, 90% are residents of the ABC region of São Paulo. Their children and adolescents with disabilities are between 4 and 18 years old. The main scores of caregivers on difficulties in care during the pandemic, 70% felt helpless at some point, 17% had difficulties in performing self-care activities, 42% had anguish and fear during the period, 83% have the greatest responsibility for household decisions, and about 50% can share those decisions. Conclusion: the main complaints about the care of people with disabilities during the COVID-19 pandemic are related to the feeling of fear and anguish that affects decision-making and family relationships, which influences self-care activities and mental health of this population.

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