scholarly journals How to build a game for empirical bioethics research: The case of ‘Tracing Tomorrow’

2021 ◽  
Author(s):  
David M. Lyreskog ◽  
Gabriela Pavarini ◽  
Jessica Lorimer ◽  
Edward Jacobs ◽  
Vanessa Bennett ◽  
...  
Keyword(s):  
2017 ◽  
pp. 195-221 ◽  
Author(s):  
Jackie Leach Scully
Keyword(s):  

SCRIPT-ed ◽  
2017 ◽  
Vol 14 (1) ◽  
pp. 113-122
Author(s):  
Agomoni Ganguli-Mitra
Keyword(s):  

Bioethics ◽  
2020 ◽  
Vol 35 (1) ◽  
pp. 61-71
Author(s):  
Georgina Morley ◽  
Caroline Bradbury‐Jones ◽  
Jonathan Ives

2014 ◽  
Vol 5 (1) ◽  
pp. 1-2 ◽  
Author(s):  
Chris Feudtner ◽  
Jeremy Sugarman ◽  
Barbara A. Koenig ◽  
Peter A. Ubel ◽  
Richard F. Ittenbach ◽  
...  
Keyword(s):  

2021 ◽  
Vol 22 (1) ◽  
Author(s):  
Bernadette Roest ◽  
Megan Milota ◽  
Carlo Leget

AbstractThe use of qualitative research in empirical bioethics is becoming increasingly popular, but its implementation comes with several challenges, such as difficulties in aligning moral epistemology and methods. In this paper, we describe some problems that empirical bioethics researchers may face; these problems are related to a tension between the different poles on the spectrum of scientific paradigms, namely a positivist and interpretive stance. We explore the ideas of narrative construction, ‘genres’ in medicine and dominant discourses in relation to empirical research. We also reflect on the loss of depth and context that may occur with thematic or content analyses of interviews, and discuss the need for transparency about methodologies in empirical bioethics. Drawing on insights from narrative approaches in the social sciences and the clinical-educational discipline of Narrative Medicine, we further clarify these problems and suggest a narrative approach to qualitative interviewing in empirical bioethics that enables researchers to ‘listen (and read) in new ways’. We then show how this approach was applied in the first author’s research project about euthanasia decision-making. In addition, we stress the important ethical task of scrutinizing methodologies and meta-ethical standpoints, as they inevitably impact empirical outcomes and corresponding ethical judgments. Finally, we raise the question whether a ‘diagnostic’, rather than a ‘problem-solving’, mindset could and should be foregrounded in empirical ethics, albeit without losing a commitment to ethics’ normative task, and suggest further avenues for theorizing about listening and epistemic (in)justice in relation to empirical (bio)ethics.


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