scholarly journals The Time Moving exhibit: Exploring perceptions of time in end‐of‐life experiences

2022 ◽  
Author(s):  
Kate Sellen ◽  
Molly McGovern ◽  
Emma MacGregor ◽  
Laura Halleran ◽  
Lawrence Ly
Keyword(s):  
End Of Life ◽  
Life Experiences

scholarly journals 26 The end-of-life experiences for cancer patients with COVID-19; reflections from 2 UK cancer centres

2021 ◽  
Author(s):  
Philippa McFarlane ◽  
Mary Miller ◽  
Matthew Carey ◽  
Angela Halley ◽  
Sophie Wilson ◽  
...  
Keyword(s):  
End Of Life ◽  
Cancer Patients ◽  
Life Experiences

An exploration into the palliative and end-of-life experiences of carers of people with Parkinson’s disease

2010 ◽  
Vol 24 (7) ◽  
pp. 731-736 ◽  
Author(s):  
Felicity Hasson ◽  
W George Kernohan ◽  
Marian McLaughlin ◽  
Mary Waldron ◽  
Dorry McLaughlin ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
End Of Life ◽  
Life Experiences

scholarly journals ‘Til Death Do Us Part: End‐of‐Life Experiences of Married Couples in a Nationally Representative Survey

2018 ◽  
Vol 66 (12) ◽  
pp. 2360-2366 ◽  
Author(s):  
Ashwin A. Kotwal ◽  
Emily Abdoler ◽  
L. Grisell Diaz‐Ramirez ◽  
Amy S. Kelley ◽  
Katherine A. Ornstein ◽  
...  
Keyword(s):  
End Of Life ◽  
Life Experiences ◽  
Married Couples ◽  
Representative Survey ◽  
Nationally Representative

Supporting Pediatric Patients and Their Families at the End of Life: Perspectives From Bereaved Parents

2020 ◽  
Vol 37 (12) ◽  
pp. 1009-1015
Author(s):  
Laura K. Sedig ◽  
Jessica L. Spruit ◽  
Trisha K. Paul ◽  
Melissa K. Cousino ◽  
Harlan McCaffery ◽  
...  
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
Health Care Providers ◽  
Life Experiences ◽  
The United States ◽  
Parental Perception ◽  
Care Providers ◽  
Supportive Services ◽  
Bereaved Parents ◽  
Actual Decision

Background: Cancer remains the leading cause of death by disease for children in the United States. It is imperative to optimize measures to support patients and families facing the end of a child’s life. This study asked bereaved parents to reflect on their child’s end-of-life care to identify which components of decision-making, supportive services, and communication were helpful, not helpful, or lacking. Methods: An anonymous survey about end-of-life experiences was sent to families of children treated at a single institution who died of a malignancy between 2010 and 2017. Results: Twenty-eight surveys were returned for a 30.8% response rate. Most of the bereaved parents (61%) reported a desire for shared decision-making; this was described by 52% of families at the end of their child’s life. There was a statistically significant association between how well death went and whether the parental perception of actual decision-making aligned with desired decision-making ( P = .002). Families did not utilize many of the supportive services that are available including psychology and psychiatry (only 22% used). Respondents felt that additional services would have been helpful. Conclusions: Health care providers should strive to participate in decision-making models that align with the preferences of the patient and family and provide excellent communication. Additional resources to support families following the death of a child should be identified for families or developed and funded if a gap in available services is identified.

scholarly journals End-of-life experiences in dementia with Lewy bodies: Qualitative interviews with former caregivers

PLoS ONE ◽  
2019 ◽  
Vol 14 (5) ◽  
pp. e0217039 ◽  
Author(s):  
Melissa J. Armstrong ◽  
Slande Alliance ◽  
Angela Taylor ◽  
Pamela Corsentino ◽  
James E. Galvin
Keyword(s):  
End Of Life ◽  
Dementia With Lewy Bodies ◽  
Life Experiences ◽  
Qualitative Interviews ◽  
Lewy Bodies

scholarly journals End-of-life Experiences of Hospitalized Young Adults With Cancer (SA506-B)

2013 ◽  
Vol 45 (2) ◽  
pp. 395-396
Author(s):  
Jessica Keim-Malpass ◽  
Jeanne Erickson ◽  
Howard Charles Malpass
Keyword(s):  
Young Adults ◽  
End Of Life ◽  
Life Experiences

Cause of Death and End-of-Life Experiences in Individuals with Dementia with Lewy Bodies

2018 ◽  
Vol 67 (1) ◽  
pp. 67-73 ◽  
Author(s):  
Melissa J. Armstrong ◽  
Slande Alliance ◽  
Pamela Corsentino ◽  
Steven T. DeKosky ◽  
Angela Taylor
Keyword(s):  
End Of Life ◽  
Cause Of Death ◽  
Dementia With Lewy Bodies ◽  
Life Experiences ◽  
Lewy Bodies
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