scholarly journals Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation

2018 ◽  
Vol 21 (6) ◽  
pp. 1056-1065 ◽  
Author(s):  
Laila Øksnebjerg ◽  
Ana Diaz-Ponce ◽  
Dianne Gove ◽  
Esme Moniz-Cook ◽  
Gail Mountain ◽  
...  
Keyword(s):  
Psychosocial Intervention ◽  
Intervention Research ◽  
People With Dementia

scholarly journals The Meeting Centre Support Programme: International Evaluation of a Dyadic Intervention in Dementia

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 758-758
Author(s):  
Dorota Szcześniak ◽  
Katarzyna Lion ◽  
Franka Meiland ◽  
Dawn Brooker ◽  
Elisabetta Farina ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Psychosocial Intervention ◽  
Cultural Barriers ◽  
User Evaluation ◽  
Great Satisfaction ◽  
Everyday Activities ◽  
Support Programme ◽  
People With Dementia

Abstract In Europe, 10 million people are living with dementia. Most of them reside in their own home, cared for by their loved ones. As a consequence, there is a great need to provide both, people with dementia and their carers, tailored support. The Dutch Meeting Centres Support Programme (MCSP), adaptively implemented in three European countries within the JPND-MEETINGDEM project, is an excellent example of an effective dyadic psychosocial intervention, which seems to have no cultural barriers. The mixed-methods analysis showed that participant-dyads reported great satisfaction with MCSP. People with dementia experienced improvement of their quality of life, motivation and ability to participate in everyday activities, as well as improvement in their relationship with family members. Carers felt less burdened and highly appreciated the emotional and social support they received. Repeated user evaluation shows that this dyadic support effectively helps people with dementia and their families better deal with dementia.

scholarly journals How to Achieve the Desired Outcomes of a Complex Intervention in Nursing Homes: A Theory of Change

2020 ◽  
Vol 4 (Supplement_1) ◽  
pp. 383-383
Author(s):  
Martin Dichter ◽  
Jonas Hylla ◽  
Almuth Berg ◽  
Daniela Eggers ◽  
Ralph Möhler ◽  
...  
Keyword(s):  
Nursing Homes ◽  
Psychosocial Intervention ◽  
Sleep Disturbances ◽  
Intervention Development ◽  
Psychosocial Interventions ◽  
Causal Chain ◽  
Theory Of Change ◽  
Expert Survey ◽  
People With Dementia ◽  
Individual Knowledge

Abstract Background Recent systematic reviews suggest the effectiveness of complex psychosocial interventions to reduce sleep disturbances in people with dementia (PwD) living in nursing homes. However, it is unclear how and under which circumstances these interventions work and which components and processes are crucial determinants for effectiveness. Objectives To develop a Theory of Change (ToC) that describes a causal chain for the reduction of sleep disturbances. Design and Methods The ToC approach is a participatory method in intervention development to generate knowledge about how, why, and under which circumstances interventions are effective. We conducted two expert workshops, a subsequent expert survey (n=12), a systematic literature review, and expert interviews (day and night nurses). Results Necessary preconditions for the reduction of sleep disturbances were identified on staff, management and cultural levels of nursing homes. Intermediate goals like “individual knowledge on PwD is available”, “a specific institutional concept to promote sleep is implemented”, “person-centred care is implemented” and “sleep preferences of PwD are fulfilled” were defined. The intermediate goals, interventions, promoting and inhibiting factors as well as rationales were sorted into a causal chain. All intermediate goals were rated as relevant or highly relevant based on the expert survey. Conclusions The ToC model displays how a complex psychosocial intervention is likely to be effective in reducing sleep disturbances and meeting sleep preferences of PwD in nursing homes. The model is the basis for the development and evaluation of a planned complex psychosocial intervention to prevent and reduce sleep disturbances in PwD.

scholarly journals Cognitive stimulation therapy in dementia care: exploring the views and experiences of service providers on the barriers and facilitators to implementation in practice using Normalization Process Theory

2017 ◽  
Vol 29 (11) ◽  
pp. 1869-1878 ◽  
Author(s):  
Claire Dickinson ◽  
Grant Gibson ◽  
Zoe Gotts ◽  
Lynne Stobbart ◽  
Louise Robinson
Keyword(s):  
Psychosocial Intervention ◽  
Cost Effective ◽  
Dementia Care ◽  
Normalization Process Theory ◽  
Cognitive Stimulation ◽  
Process Theory ◽  
Evidence Based ◽  
Cognitive Stimulation Therapy ◽  
People With Dementia ◽  
Normalization Process

ABSTRACTBackground:Cognitive stimulation therapy (CST) is an evidence-based, cost-effective psychosocial intervention for people with dementia but is currently not a standard part of post-diagnostic care. This qualitative study explored the views and experiences of dementia care providers on the barriers and facilitators to its implementation in usual care.Method:Thirty four semi-structured interviews (24 participants) were conducted across four dementia care sites in the North of England; ten were follow-up interviews. Data were analyzed using thematic analysis and then mapped to the Normalization Process Theory framework.Results:Participants considered CST a “good fit” with their “preferred” ways of working and goals of dementia care namely the provision of person-centered services. For facilitators delivering the intervention, compared to other behavioral interventions, CST was seen to offer benefits to their work and was easy to understand as an intervention. Training in CST and seeing benefits for clients were important motivators. Time and resources were crucial for the successful implementation of CST. Participants were keen to objectively measure benefits to participants but unsure how to do this.Conclusions:CST is a cost-effective psychosocial intervention for people with dementia, recommended by national guidance. Despite our findings which show that, using the NPT framework, there are more facilitators than barriers to the implementation of CST, it is still not a standard part of post-diagnostic dementia care. Further research is needed to explore the reasons for this implementation gap in ensuring evidence-based care in translated into practice.

Factors to consider for motor neurone disease carer intervention research: A narrative literature review

2016 ◽  
Vol 15 (5) ◽  
pp. 600-608 ◽  
Author(s):  
Cathy Gluyas ◽  
Susan Mathers ◽  
Nicole Hennessy Anderson ◽  
Anna Ugalde
Keyword(s):  
Social Support ◽  
Lived Experience ◽  
Psychosocial Intervention ◽  
Emotional Health ◽  
Intervention Research ◽  
Motor Neurone ◽  
Motor Neurone Disease ◽  
Factors Affecting ◽  
Narrative Literature Review ◽  
Relationship Factors

ABSTRACTObjective:The experience of caregiving in the context of motor neurone disease (MND) is extremely challenging. Over the past 15 years, quantitative and qualitative studies have delineated the psychosocial aspects of this experience, exploring its impact on caregivers' quality of life, rates of depression, distress, anxiety, and burden. Our paper aimed to provide an overview of the lived experience of MND caregivers, identifying the variables that can influence MND caregiver functioning that are relevant to the development of an intervention.Method:A narrative review was conducted, synthesizing the findings of literature retrieved from 2000 to early 2016.Results:A total of 37 articles were included in the review. The articles varied considerably in terms of methodology and quality. The main influential aspects reported and identified were factors pertaining to the patient, factors intrinsic to the caregiver, relationship factors, and social support factors.Significance of Results:There is evidence to support the fact that caregivers have poorer outcomes when they care for patients with a more severe clinical profile, poorer emotional health or neurobehavioral concerns, or when the caregivers themselves struggle with adaptive problem-solving and coping skills. The availability and use of social support are also likely to be important for caregiver psychosocial outcomes. Further investigation is required to clarify the influence of changes in the relationship with the patient. Significant factors affecting the caregiver experience are considered in relation to their amenability to psychosocial intervention. Recommendations are made regarding the optimal features of future psychosocial intervention research.

scholarly journals Latinos and HIV/AIDS: Examining Factors Related to Disparity and Identifying Opportunities for Psychosocial Intervention Research

2008 ◽  
Vol 13 (3) ◽  
pp. 582-602 ◽  
Author(s):  
Jeffrey S. Gonzalez ◽  
Ellen Setsuko Hendriksen ◽  
Erin Marie Collins ◽  
Ron E. Durán ◽  
Steven A. Safren
Keyword(s):  
Psychosocial Intervention ◽  
Intervention Research ◽  
Hiv Aids
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