scholarly journals Is it worth it? Patient and public views on the impact of their involvement in health research and its assessment: a UK-based qualitative interview study

2016 ◽  
Vol 20 (3) ◽  
pp. 519-528 ◽  
Author(s):  
Joanna C. Crocker ◽  
Anne-Marie Boylan ◽  
Jennifer Bostock ◽  
Louise Locock
Keyword(s):  
Health Research ◽  
Qualitative Interview ◽  
Interview Study ◽  
Qualitative Interview Study ◽  
Public Views ◽  
The Impact

scholarly journals The Experience of Participating in an Internet-Based Cognitive Behavioral Therapy Program Among Patients with Cardiovascular Disease and Depression: A Qualitative Interview Study

2022 ◽  
Author(s):  
Mats Westas ◽  
Ghassan Mourad ◽  
Gerhard Andersson ◽  
Margit Neher ◽  
Johan Lundgren ◽  
...  
Keyword(s):  
Cardiovascular Disease ◽  
Cognitive Behavioral Therapy ◽  
Behavioral Therapy ◽  
Controlled Trial ◽  
Qualitative Interview ◽  
Interview Study ◽  
Cognitive Behavioral ◽  
Qualitative Interview Study ◽  
And Behaviors ◽  
The Impact

Abstract Background Depression in cardiovascular disease (CVD) is associated with poor outcomes and there is a treatment gap of depression in CVD patients. Recently we found that an Internet-based cognitive behavioral therapy (iCBT) tailored for CVD patients led to reduced symptoms of depression. However, we still have little knowledge about CVD patients’ experiences of working with iCBT. The aim of this study was therefore to explore CVD patients experience of engaging with a tailored iCBT program. Methods A qualitative interview study using inductive thematic analysis. Data was obtained from 20 patients with CVD and depressive symptoms who had participated in a randomized controlled trial (RCT) evaluating the impact of a nine-week iCBT program on depression. Results Three main themes emerged: (1) Taking control of the disease, (2) Not just a walk in the park, and (3) Feeling a personal engagement with the iCBT program. The first theme included comments that the tailored program gave the patients a feeling of being active in the treatment process and helped them achieve changes in thoughts and behaviors necessary to take control of their CVD. The second theme showed that patients also experienced the program as demanding and emotionally challenging. However, it was viewed as helpful to challenge negative thinking about living with CVD and to change depressive thoughts. In the third theme patients reported that the structure inherent in the program, in the form of organizing their own health and the scheduled feedback from the therapist created a feeling of being seen as an individual. The feeling of being acknowledged as a person also made it easier to continuously work with the changes necessary to improve their health. Conclusions Engaging in an iCBT program tailored for patients with CVD and depression was by the patients perceived as helpful in the treatment of depression. They experienced positive changes in emotions, thoughts, and behaviors which a result of learning to take control of their CVD, being confirmed and getting support. The patients considered working with the iCBT program as demanding and emotionally challenging, but necessary to achieve changes in emotions, thoughts, and behaviors.

The impact of unsolicited findings in clinical exome sequencing, a qualitative interview study

2021 ◽  
Author(s):  
Vyne van der Schoot ◽  
Simone J. Viellevoije ◽  
Femke Tammer ◽  
Han G. Brunner ◽  
Yvonne Arens ◽  
...  
Keyword(s):  
Exome Sequencing ◽  
Qualitative Interview ◽  
Interview Study ◽  
Clinical Exome Sequencing ◽  
Qualitative Interview Study ◽  
The Impact

scholarly journals Everyday life in a Swedish nursing home during the COVID-19 pandemic: a qualitative interview study with persons 85 to 100 years

BMJ Open ◽  
2021 ◽  
Vol 11 (6) ◽  
pp. e048503
Author(s):  
Qarin Lood ◽  
Maria Haak ◽  
Synneve Dahlin-Ivanoff
Keyword(s):  
Nursing Home ◽  
Nursing Homes ◽  
Older People ◽  
Everyday Life ◽  
Older Persons ◽  
Qualitative Interview ◽  
Interview Study ◽  
Main Theme ◽  
Qualitative Interview Study ◽  
The Impact

ObjectiveTo understand and report on the impact of the COVID-19 pandemic on the everyday lives of frail older persons living in nursing homes by exploring their experiences of how the pandemic-related restrictions had influenced them and in what way.DesignEmpirical qualitative interview study.SettingA publicly run nursing home in an urban area in Sweden in June 2020. The nursing home had visitor restrictions, cancelled activities and physical distancing requirements since March 2020.ParticipantsA total of 10 persons, 85–100 years, living in a Swedish nursing home during the COVID-19 pandemic, were recruited through nursing home management and interviewed in June 2020 using medically approved visors and physical distancing.AnalysisInterviews were analysed using thematic analysis, which involves familiarisation, coding and definition of themes. Transcripts were coded into data-driven categories before being organised into categories that described and explained the data.ResultsThe analysis resulted in the main theme ‘It is like living in a bubble’, that describes everyday life in the nursing home during the pandemic as a world of its own in which the older persons felt both protected and isolated. This is described in four subthemes: living 1 day at a time, without fear of the virus; feeling taken care of; having limited freedom and missing out on the little extras.ConclusionsContributing to the growing area of COVID-19-related research, our findings provide novel insights into how pandemic-related restrictions in nursing homes represent a risk of isolating older people from the outside world and diminishing their freedom. Put in relation to the previous research, these findings could be applied beyond the pandemic, to develop research and practice that puts focus on how to support older people to decide for themselves how to spend the rest of their lives.

Sign in / Sign up

Export Citation Format

Share Document