scholarly journals From admission to discharge in mental health services: a qualitative analysis of service user involvement

2015 ◽  
Vol 19 (2) ◽  
pp. 367-376 ◽  
Author(s):  
Nicola Wright ◽  
Emma Rowley ◽  
Arun Chopra ◽  
Kyriakos Gregoriou ◽  
Justin Waring
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Health Services ◽  
Qualitative Analysis ◽  
Service User ◽  
User Involvement ◽  
Service User Involvement

scholarly journals How do managers and leaders in the National Health Service and social care respond to service user involvement in mental health services in both its traditional and emergent forms? The ENSUE study

2014 ◽  
Vol 2 (10) ◽  
pp. 1-94 ◽  
Author(s):  
Diana Rose ◽  
Marian Barnes ◽  
Mike Crawford ◽  
Edward Omeni ◽  
Dee MacDonald ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Health Services ◽  
Service User ◽  
Social Care ◽  
Positive Impact ◽  
User Involvement ◽  
Decision Makers ◽  
Service User Involvement ◽  
New Social Movement

BackgroundThis study set out to measure the extent and perceived impact of service user involvement (SUI) in mental health services and to explore different forms of SUI, both collective and individual. The focus was on service users’ (SUs’) interactions with managers and other key decision-makers in the UK NHS and social care. The theoretical frameworks used were organisational theory and new social movement theory.ObjectivesTo explore the impact of service user involvement in mental health on shaping policy agendas and delivery specifically in terms of their impact on key decision-makers.DesignA mixed-methods design was used.SettingThe study took place in three NHS foundation trusts (FTs): two metropolitan and one rural.MethodsThe methods included surveys, interviews, ethnographies, case studies and focus groups.ResultsIn the first phase of the study, which took the form of surveys, it was found that ‘ordinary’ SUs had a relatively high level of involvement in at least one service domain and that where they were involved they believed this had produced a positive impact on service development and delivery. Likewise a majority of front-line staff encouraged SUI and thought this had a positive impact although social workers were more likely to have directly participated in SUI initiatives than nurses. In the second phase of the study, which used qualitative methods, an ethnography of user-led organisations (ULOs) was conducted, which showed that ULOs were being forced to adapt in an organisational climate of change and complexity, and that decision-makers no longer claimed the high moral ground for working with ULOs, but expected them to work within a system of institutional behavioural norms. This posed many challenges for the ULOs. In phase 2 of the research we also examined the role of SU governors in NHS FTs. We posed the question of whether or not SU governors represented a shift away from more collective forms of organisation to a more individual form. It was found that SU governors, too, had to work within a system of norms deriving from the organisational structure and culture of the NHS, and this impacted on how far they were able to exercise influence. There was also evidence that user governors were beginning to organise collectively. In respect of individual forms of involvement we also attempted to run focus groups of people in receipt of personal budgets but concluded that, as yet, they are not embedded in mental health services.ConclusionsIt was concluded that SUs and managers are working in a climate of dynamic and complex organisational change, of which user involvement is an integral part, and that this has impacted on the nature of SUI as a new social movement. Managers need to attend to this in their interactions with SUs and their organisations.FundingThe National Institute for Health Research Health Services and Delivery Research programme.

scholarly journals Service user, patient, client, user or survivor: describing recipients of mental health services

2010 ◽  
Vol 34 (1) ◽  
pp. 20-23 ◽  
Author(s):  
Peter Simmons ◽  
Chris J. Hawley ◽  
Tim M. Gale ◽  
Thanusha Sivakumaran
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Health Services ◽  
Social Worker ◽  
Service User ◽  
Rank Order ◽  
Occupational Therapists ◽  
Clinical Implications ◽  
Evidence Based ◽  
Care Community

Aims and methodTo determine which terms receivers of mental health services wish to be known by (service user, patient, client, user, survivor) according to the professional consulted (psychiatrist, nurse, psychologist, social worker, occupational therapist). We conducted a questionnaire study to assess terms by like or dislike and by rank order. There were 336 participants from local catchment area secondary care community and in-patient settings in east Hertfordshire.ResultsPatient is the preferred term when consulted by psychiatrists and nurses, but it is equally preferable to client for social workers and occupational therapists. Service user is disliked more than liked overall, particularly by those who consulted a health professional, but not by those who consulted a social worker. A significant minority wish to be regarded as a survivor or user.Clinical implicationsNational and local mental health services should adopt evidence-based terminology in referring to ‘patient’ or, in some groups, ‘patient or client’ in preference to ‘service user’.

Contemporary mental health services

2019 ◽  
pp. 79-110
Author(s):  
Ian Cummins
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Health Services ◽  
Service User ◽  
Health It ◽  
User Movement ◽  
User Perspectives

This chapter begins with a discussion of the development of the service user movement within mental health. It emphasises the importance of service user perspectives before going on to examine a range of contemporary concerns within services.

scholarly journals Politics of Recognition: What Can a Human Rights Perspective Contribute to Understanding Users' Experiences of Involvement in Mental Health Services?

2009 ◽  
Vol 8 (2) ◽  
pp. 257-274 ◽  
Author(s):  
Lydia Lewis
Keyword(s):  
Mental Health ◽  
Human Rights ◽  
Mental Health Services ◽  
Health Services ◽  
User Involvement ◽  
Politics Of Recognition ◽  
Implementation Gap ◽  
The Core ◽  
Mental Health Service User ◽  
The Uk

In the UK, participation in decision-making is increasingly being viewed as a right for users of mental health services. Yet research repeatedly finds a policy implementation gap in this area. Drawing on a localised, qualitative study involving three mental health service user/community groups, this article frames this issue in terms of a ‘politics of recognition’. It demonstrates how whilst government user involvement policies officially attempt to recognise users and their voices, they simultaneously reconstitute failures of recognition in terms of status subordination and a disqualified identity for service users, thereby obstructing participatory parity and amounting to a dereliction of the core principles underlying human rights.

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