scholarly journals Self-management support from the perspective of patients with a chronic condition: a thematic synthesis of qualitative studies

2015 ◽  
Vol 19 (2) ◽  
pp. 194-208 ◽  
Author(s):  
Jolanda Dwarswaard ◽  
Ellen J.M. Bakker ◽  
AnneLoes van Staa ◽  
Hennie R. Boeije
Keyword(s):  
Chronic Condition ◽  
Qualitative Studies ◽  
Self Management ◽  
Management Support ◽  
Thematic Synthesis

Self-management support preferences of people with asthma or chronic obstructive pulmonary disease: A systematic review and meta-synthesis of qualitative studies

2019 ◽  
pp. 174239531986944 ◽  
Author(s):  
Selena O’Connell ◽  
Vera JC McCarthy ◽  
Eileen Savage
Keyword(s):  
Chronic Obstructive Pulmonary Disease ◽  
Pulmonary Disease ◽  
Healthcare Professionals ◽  
Qualitative Studies ◽  
Self Management ◽  
Chronic Obstructive ◽  
Management Support ◽  
Obstructive Pulmonary Disease ◽  
The Individual ◽  
Behavioural Sciences

Objectives To synthesise findings from qualitative studies on the preferences of people with asthma or chronic obstructive pulmonary disease (COPD) for self-management support. Methods A thematic synthesis of literature was carried out. Six databases (ASSIA, CINAHL, MEDLINE, PsycINFO, Psychology and the Behavioural Sciences and SSCI) were used to search for qualitative studies eliciting perspectives of adults with asthma and/or COPD on self-management support, published between May 2008 and April 2018. Results A total of 968 articles were retrieved across databases, with 15 articles included in the synthesis. Three themes were identified: Types of Support described the range of supports valued by participants in the studies, particularly education provided by competent healthcare professionals; The Support Relationship highlighted the importance of a collaborative relationship with one’s healthcare professional which was characterised by communication, trust and continuity over time and Accessibility identified the considerations of participants relating to physically accessible, prompt support which is provided in a format preferred by the individual. Discussion Increased understanding of patients’ preferences may provide insight which can be used to enhance engagement with self-management support. Further research needs to examine self-management support preferences outside the context of evaluating interventions for people with asthma/COPD and needs to address the optimal means of enhancing accessibility.

scholarly journals Self-management of patients with advanced cancer: A systematic review of experiences and attitudes

2020 ◽  
Vol 34 (2) ◽  
pp. 160-178 ◽  
Author(s):  
Sophie I van Dongen ◽  
Kim de Nooijer ◽  
Jane M Cramm ◽  
Anneke L Francke ◽  
Wendy H Oldenmenger ◽  
...  
Keyword(s):  
Systematic Review ◽  
Advanced Cancer ◽  
Healthcare Professionals ◽  
Management Strategies ◽  
Personal Characteristics ◽  
Qualitative Studies ◽  
Medical Decision ◽  
Self Management ◽  
Management Support ◽  
Quality Of Reporting

Background: Patients with advanced cancer are increasingly expected to self-manage. Thus far, this topic has received little systematic attention. Aim: To summarise studies describing self-management strategies of patients with advanced cancer and associated experiences and personal characteristics. Also, to summarise attitudes of relatives and healthcare professionals towards patient self-management. Design: A systematic review including non-experimental quantitative and qualitative studies. Data were analysed using critical interpretive synthesis. Included studies were appraised on methodological quality and quality of reporting. Data sources: MEDLINE, Embase, Cochrane Central, PsycINFO, CINAHL, Web of Science and Google Scholar (until 11 June 2019). Results: Of 1742 identified articles, 31 moderate-quality articles describing 8 quantitative and 23 qualitative studies were included. Patients with advanced cancer used self-management strategies in seven domains: medicine and pharmacology, lifestyle, mental health, social support, knowledge and information, navigation and coordination and medical decision-making (29 articles). Strategies were highly individual, sometimes ambivalent and dependent on social interactions. Older patients and patients with more depressive symptoms and lower levels of physical functioning, education and self-efficacy might have more difficulties with certain self-management strategies (six articles). Healthcare professionals perceived self-management as desirable and achievable if based on sufficient skills and knowledge and solid patient–professional partnerships (three articles). Conclusion: Self-management of patients with advanced cancer is highly personal and multifaceted. Strategies may be substitutional, additional or even conflicting compared to care provided by healthcare professionals. Self-management support can benefit from an individualised approach embedded in solid partnerships with relatives and healthcare professionals.

scholarly journals Between knowing and doing person-centredness: A qualitative examination of health professionals’ perceptions of roles in self-management support

2019 ◽  
pp. 136345931988908
Author(s):  
Marika Franklin ◽  
Karen Willis ◽  
Sophie Lewis ◽  
Anne Rogers ◽  
Lorraine Smith
Keyword(s):  
Health Professionals ◽  
Chronic Condition ◽  
Social Representations ◽  
Self Management ◽  
Clinical Aspects ◽  
Management Support ◽  
Health Capital ◽  
Clinical Interactions ◽  
Depth Interviews ◽  
Unrealistic Expectations

Self-management is a contemporary model of chronic condition care that places expectations on, and roles for, both patients and health professionals. Health professionals are expected to form partnerships with their patients, and patients are expected to be active participants in their own care. In these new roles, control and responsibility for self-management are shared between people with chronic conditions and their health professionals. We still have limited knowledge about how these new roles are enacted in self-management support. In this article, we examine how health professionals perceive the roles of patients and professionals in chronic condition self-management, drawing on Bourdieu’s concepts of field, doxa and capital. In this qualitative study, 32 in-depth interviews were conducted with 11 health professionals in Sydney, Australia. Data were analysed thematically. Three themes were derived. First, there was incongruence between how participants characterised and enacted their roles. Second, participants compartmentalised clinical and non-clinical aspects of self-management support. Finally, the roles of health professionals entwined with emotions and judgements of patienthood revealed that the provision of self-management support was linked to a fit between individuals’ cultural health capital and the expectations governing the field. We argue that ‘taken for granted’ assumptions about self-management and self-management support must be challenged to mitigate negative social representations and unrealistic expectations placed on patients and health professionals, particularly those patients with less capital, who are more marginalised within clinical interactions.

An evaluation of the self-management support capacity of providers of chronic condition primary care

2012 ◽  
Vol 18 (2) ◽  
pp. 112 ◽  
Author(s):  
Tracy E. Cheffins ◽  
Julie A. Twomey ◽  
Jane A. Grant ◽  
Sarah L. Larkins
Keyword(s):  
Health Care ◽  
Primary Health Care ◽  
Health Professionals ◽  
Chronic Condition ◽  
Health Care Services ◽  
Readiness To Change ◽  
Structured Interview ◽  
Self Management ◽  
Management Support ◽  
Primary Health

Self-management support (SMS) is an important skill for health professionals providing chronic condition management in the primary health care sector. Training in SMS alone does not always lead to its utilisation. This study aimed to ascertain whether SMS is being used, and to identify barriers and enablers for SMS in practice. Health professionals who underwent SMS training were invited to participate in a semi-structured interview. A response rate of 55% (14 of 24) was achieved. All interviewees rated their understanding of the principles of SMS as moderate or better. In relation to how much they use these principles in their practice, several (5 of 14) said minimally or not at all. The tools they were most likely to use were SMART goals (8 of 14) and decision balance (5 of 14). Core skills that were being used included problem solving (11 of 14), reflective listening (13 of 14), open-ended questions (12 of 14), identifying readiness to change (12 of 14) and goal setting (10 of 14). The most important barriers to implementing SMS were current funding models for health care, lack of space and staff not interested in change. The most highly rated enabling strategies were more training for general practitioners and more training for practice nurses; the lowest rated was more training for receptionists. The increasing prevalence of chronic conditions due to ageing and lifestyle factors must be addressed through new ways of delivering primary health care services. Self-management support is a necessary component of such programs, so identified barriers to SMS must be overcome.

Better knowledge, better health: piloting an education intervention in chronic condition self-management support

2011 ◽  
Vol 17 (1) ◽  
pp. 4 ◽  
Author(s):  
Jennifer M. Newton ◽  
Leah Falkingham ◽  
Lyn Clearihan
Keyword(s):  
General Practice ◽  
Pilot Study ◽  
Chronic Condition ◽  
Self Management ◽  
Learning Needs ◽  
Management Support ◽  
Management Skills ◽  
Allied Health Professionals ◽  
Lifestyle Risk ◽  
Risk Modification

Chronic condition self-management and lifestyle risk modification education is paramount for General Practice registrars. A multi-dimensional learning package ‘Better Knowledge, Better Health’ was developed and piloted to improve General Practice registrars’ understanding of their role in supporting chronic condition self-management in patients with osteoarthritis. This pilot study was supported by the Australian Better Health Initiative. Pre-training learning needs analysis with a new intake of General Practice registrars (n = 40) indicated high levels of confidence in supporting patients in chronic condition management and lifestyle risk modification, and locating and interacting with local resources and allied health professionals. Conversely, interviews with General Practice Supervisors (n = 13) found most would not identify chronic condition self-management skills as priorities for registrar learning. Supervisors were also not familiar with core principles of chronic condition self-management, in particular application of motivational interviewing to behaviour change. Disparities between General Practice Supervisors’ perceptions of the importance of chronic condition self-management and lifestyle risk modification education and levels of access to learning opportunities in chronic condition self-management for registrars are discussed. Difficulties in implementing a pilot study within tight timeframes are also explored.

Self-Management Support Needs From the Perspectives of Persons With Severe Mental Illness: A Systematic Review and Thematic Synthesis of Qualitative Research

2019 ◽  
Vol 26 (5) ◽  
pp. 464-482 ◽  
Author(s):  
Titus A. A. Beentjes ◽  
Betsie G. I. van Gaal ◽  
Theo van Achterberg ◽  
Peter J. J. Goossens
Keyword(s):  
Systematic Review ◽  
Mental Illness ◽  
Severe Mental Illness ◽  
Essential Element ◽  
Self Management ◽  
Support Needs ◽  
Management Support ◽  
Thematic Synthesis ◽  
Management Interventions ◽  
Important Others

BACKGROUND: The development of de-hospitalization policies in mental health has resulted in a growing emphasis on self-management. In the chronic care model, self-management support is an essential element. Because of the episodic nature of severe mental illness (SMI) and its high relapse rates, we assume that the extent of self-management support needs of individuals with an SMI is considerable. However, a clear overview of the nature of the self-management support needs of persons with SMI is missing. AIMS: This study aimed to identify self-management support needs from the perspective of individuals with SMI. METHOD: A systematic review was conducted using the method of thematic synthesis of qualitative studies. After searching the databases MEDLINE, PsycINFO, CINAHL, and EMBASE, we screened the papers for the eligibility criteria: individuals with an SMI, adequately representing the voice of persons with SMI and describing their self-management support needs. Thirty-one papers were included. RESULTS: The main findings showed that participants in the studies described the need for informational support, emotional support, acknowledgment, encouragement, and guidance to make sense of their illness experiences, ease suffering, obtain validation and recognition, execute self-management tasks, and be led through unfamiliar territory. CONCLUSION: The perspectives of persons with SMI can provide a road map for constructing a self-management support intervention for persons with SMI. Important others have an essential role in fulfilling support needs. Independently managing an SMI is difficult. Therefore, it is preferable to let important others participate in self-management interventions and to introduce peer support.

scholarly journals Toward consensus on self-management support: the international chronic condition self-management support framework

2016 ◽  
pp. daw030 ◽  
Author(s):  
Susan L. Mills ◽  
Teresa J. Brady ◽  
Janaki Jayanthan ◽  
Shabnam Ziabakhsh ◽  
Peter M. Sargious
Keyword(s):  
Chronic Condition ◽  
Self Management ◽  
Management Support

scholarly journals Chronic condition self-management support: proposed competencies for medical students

2009 ◽  
Vol 5 (1) ◽  
pp. 7-14 ◽  
Author(s):  
Rene G. Pols ◽  
Malcolm W. Battersby ◽  
Martha Regan-Smith ◽  
Mignon J. Markwick ◽  
John Lawrence ◽  
...  
Keyword(s):  
Medical Students ◽  
Chronic Condition ◽  
Self Management ◽  
Management Support

Chronic condition self-management support for Aboriginal people: Adapting tools and training

2018 ◽  
Vol 26 (4) ◽  
pp. 232-237
Author(s):  
Malcolm Battersby ◽  
Sharon Lawn ◽  
Inge Kowanko ◽  
Sue Bertossa ◽  
Coral Trowbridge ◽  
...  
Keyword(s):  
Chronic Condition ◽  
Aboriginal People ◽  
Self Management ◽  
Management Support ◽  
And Training
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