Insight into health-related quality of life of young children with haemophilia B treated with long-acting nonacog beta pegol recombinant factor IX

Haemophilia ◽  
2017 ◽  
Vol 23 (3) ◽  
pp. e222-e224 ◽  
Author(s):  
M. Carcao ◽  
S. Kearney ◽  
E. Santagostino ◽  
J. O. O. Oyesiku ◽  
N. L. Young ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Factor Ix ◽  
Health Related Quality ◽  
Related Quality ◽  
Recombinant Factor Ix ◽  
Health Related ◽  
Long Acting ◽  
Insight Into

scholarly journals Health-related quality of life in children with congenital heart disease aged 5 to 7 years: a multicentre controlled cross-sectional study

2020 ◽  
Vol 18 (1) ◽  
Author(s):  
Hamouda Abassi ◽  
Helena Huguet ◽  
Marie-Christine Picot ◽  
Marie Vincenti ◽  
Sophie Guillaumont ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Young Children ◽  
Congenital Heart ◽  
Cross Sectional Study ◽  
Health Related Quality ◽  
Sectional Study ◽  
Cross Sectional ◽  
Related Quality ◽  
Health Related

Abstract Background In the context of tremendous progress in congenital cardiology, more attention has been given to patient-related outcomes, especially in assessing health-related quality of life (HRQoL) of patients with congenital heart diseases (CHD). However, most studies have mainly focused on teenagers or adults and currently, few HRQoL controlled data is available in young children. This study aimed to evaluate HRQoL of children with CHD aged 5 to 7 y.o., in comparison with contemporary peers recruited in school, as well as the factors associated with HRQoL in this population. Methods This multicentre controlled prospective cross-sectional study included 124 children with a CHD (mean age = 6.0 ± 0.8 y, 45% female) during their outpatient visit and 125 controls (mean age = 6.2 ± 0.8 y, 54% female) recruited at school. A generic paediatric HRQoL instrument was used (PedsQL 4.0). Results Self-reported HRQoL in children with CHD was similar to controls, overall (73.5 ± 1.2 vs. 72.8 ± 1.2, P = 0.7, respectively), and for each dimension. Parents-reported HRQoL was significantly lower in the CHD group than in controls. HRQoL was predicted by the disease severity and by repeated invasive cardiac procedures (surgery or catheterization). Conclusion HRQoL in young children with CHD aged 5 to 7 years old was good and similar to controls. This study contributed to the growing body of knowledge on HRQoL in congenital cardiology and emphasized the need for child and family support in the most complex CHD. Trial registration This study was approved by the institutional review board of Montpellier University Hospital (2019_IRB-MTP_02-19) on 22 February 2019 and was registered on ClinicalTrials.gov (NCT03931096) on 30 April 2019, https://clinicaltrials.gov/ct2/show/NCT03931096.

scholarly journals 500 – Health-Related Quality of Life in Young Children with Hepatitis C Treated with Sofosbuvir and Ribavirin and Sofosbuvir/Ledipasvir

2019 ◽  
Vol 156 (6) ◽  
pp. S-1202
Author(s):  
Zobair M. Younossi ◽  
Maria Stepanova ◽  
Stefan Wirth ◽  
William F. Balistreri ◽  
Kathleen B. Schwarz ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Hepatitis C ◽  
Young Children ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Tu1729 - Health Related Quality of Life in Young Children with Avoidant Restrictive Food Intake Disorder

2018 ◽  
Vol 154 (6) ◽  
pp. S-1003
Author(s):  
Hilde Krom ◽  
Liesbeth van der Sluijs Veer ◽  
Suzanne van Zundert ◽  
Marie-Anne Otten ◽  
Marc A. Benninga ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Food Intake ◽  
Young Children ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related
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