Co‐producing to understand what matters to young people living in youth residential rehabilitation services

2021 ◽  
Author(s):  
Priscilla Ennals ◽  
Kate Lessing ◽  
Rebecca Spies ◽  
Rebecca Egan ◽  
Philippa Hemus ◽  
...  
Keyword(s):  
Young People ◽  
Rehabilitation Services ◽  
Residential Rehabilitation ◽  
What Matters

scholarly journals Following severe childhood stroke, specialised residential rehabilitation improves self-care independence but there are ongoing needs at discharge

2020 ◽  
Vol 83 (8) ◽  
pp. 530-537
Author(s):  
Lorna Wales ◽  
Carolyn Dunford ◽  
Kathy Davis
Keyword(s):  
United Kingdom ◽  
Young People ◽  
Negative Impact ◽  
Self Care ◽  
Functional Independence ◽  
Care Needs ◽  
Rehabilitation Centre ◽  
Children And Young People ◽  
The United Kingdom ◽  
Residential Rehabilitation

Introduction Stroke is a major cause of mortality and disability in childhood. There is a false belief that children will recover better than adults and recent research confirms that younger age at injury can have a negative impact on rehabilitation outcomes, resulting in lifelong disability. Self-care is a key rehabilitation outcome for children and young people. Methods This service evaluation reviews routinely collected clinical self-care data from one specialised residential rehabilitation centre in the United Kingdom. Admission and discharge scores from the United Kingdom Functional Independence Measure +Functional Assessment Measure, Rehabilitation Complexity Scale – E and Northwick Park Nursing Dependency Scale were analysed. Results Twenty-six children and young people age 8 years and over with severe stroke were included. Mean scores of independence increased and mean scores of complexity and dependency decreased. A proportion of the sample had ongoing self-care needs in relation to support needed in washing, dressing and bathing. A small number remained highly dependent, requiring assistance from two carers. Conclusion Children and young people make significant gains in self-care independence during specialised rehabilitation. However, a proportion return to the community with high self-care needs. Occupational therapists and the wider care team should address ongoing self-care needs in this population.

scholarly journals “What matters to someone who matters to me”: using media campaigns with young people to prevent interpersonal violence and abuse

2016 ◽  
Vol 20 (4) ◽  
pp. 648-654 ◽  
Author(s):  
Nicky Stanley ◽  
Jane Ellis ◽  
Nicola Farrelly ◽  
Sandra Hollinghurst ◽  
Sue Bailey ◽  
...  
Keyword(s):  
Young People ◽  
Interpersonal Violence ◽  
Media Campaigns ◽  
What Matters

scholarly journals “My Journey Map”: Developing a Qualitative Approach to Mapping Young People's Progress in Residential Rehabilitation

2012 ◽  
Vol 39 (4) ◽  
pp. 715-733 ◽  
Author(s):  
Lynn Roarty ◽  
Helen Wildy ◽  
Sherry Saggers ◽  
Katherine Conigrave ◽  
Mandy Wilson ◽  
...  
Keyword(s):  
Young People ◽  
New South ◽  
Quantitative Measure ◽  
Qualitative Approach ◽  
Treatment Programs ◽  
Adolescent Treatment ◽  
Multiple Viewpoints ◽  
South Wales ◽  
Measurement Tools ◽  
Residential Rehabilitation

Young people with substance misuse issues are at risk of harm from significant negative health and life events. Contemporary research notes both a historical failure to recognize the unique needs of adolescents, and the ongoing need for dedicated adolescent treatment programs and outcome measures. It is concerning that there is so little literature assessing the quality, availability, and effectiveness of adolescent-focused treatment programs, and no adolescent-specific measurement tools centered on a young person's progress in residential treatment. This article reports on the process of developing a qualitative approach to mapping progress in treatment over time. The research seeks to develop an approach that captures, at three points in time and from multiple viewpoints, the progress of young people in four residential rehabilitation services located in New South Wales and Western Australia, across several dimensions of the personal and social aspects of life. Our aim is to develop an approach that is accessible to the alcohol and other drug workforce, and that informs the development of a psychometrically robust quantitative measure of progress that is meaningful and useful both to practitioners and to the young people themselves.

scholarly journals Becoming AGENDA: The Making and Mattering of a Youth Activist Resource on Gender and Sexual Violence

2019 ◽  
Vol 10 (2-3) ◽  
pp. 208-241 ◽  
Author(s):  
Emma Renold
Keyword(s):  
Young People ◽  
Sexual Violence ◽  
Political Context ◽  
Positive Relationships ◽  
Policy And Practice ◽  
Healthy Relationships ◽  
Ethics Of Research ◽  
What Matters

What happens when ‘the margin of manouverability’ (Massumi 2015, p.3) in a specific socio-political context is buzzing with promise and possibility? What might some crafty and serious play with the feminist posthuman ethics of research/er reponse-ability (Barad, 2007) cook up in such a conducive soup? This paper shares the pARTicipatory praxis that informed the making of ‘AGENDA: A Young People’s Guide to Making Positive Relationships Matter’ (Renold, 2016). AGENDA is a 75 page youth-activist bi-lingual (Welsh-English) interactive resource co-created with and for young people in Wales to address gendered and sexual violence. Crafted with an affirmative cut and nurturing a run-a-way praxis that secretes its own co-ordinates, AGENDA invites a care-ful re-mattering of ‘what matters’ when it comes to conventional healthy relationships education. The paper offers a careful cartography of how AGENDA unfolded as a lively resource that continues to matter as it connects to policy and practice assemblages that push-pull the agential becomings of AGENDA on its way.

scholarly journals Development of a Digital Decision Support Tool to Aid Participation of Children With Disabilities in Pediatric Rehabilitation Services: Explorative Qualitative Study (Preprint)

2019 ◽  
Author(s):  
Elin Vinblad ◽  
Ingrid Larsson ◽  
Maria Lönn ◽  
Emma Olsson ◽  
Jens M Nygren ◽  
...  
Keyword(s):  
Health Care ◽  
Decision Support ◽  
Young People ◽  
Children With Disabilities ◽  
People With Disabilities ◽  
Decision Support Tool ◽  
Rehabilitation Services ◽  
Pediatric Rehabilitation ◽  
Children And Young People ◽  
Support Tool

BACKGROUND Building a health care system in accordance with the rule of law requires child-centered care, where children and young people, regardless of ability, are allowed to participate in visits with their health care professionals. As part of an overall project focusing on developing and implementing a digital decision support tool to increase the participation of children with disabilities in pediatric rehabilitation, this study brings new knowledge as to how this specific patient group views participation. OBJECTIVE The aim of this formative study was to explore the experiences of children and young people with disabilities concerning increasing their participation in the pediatric rehabilitation services. METHODS The formative study had an explorative design, based on a latent qualitative content analysis with an inductive approach. Interviews were conducted with 20 children (6-17 years) and 8 young people (19-30 years) with disabilities about their experiences of participation in pediatric rehabilitation services. RESULTS A total of 3 categories emerged reflecting the participants’ possibilities of participation in the pediatric rehabilitation services: to feel involved, to feel independent, and to work in partnership. To feel involved meant being listened to and being connected, to feel independent meant being admitted and being enabled, and to work in partnership meant being supported and being able to entrust others with the decision making. With the overall theme <italic>moving toward empowerment of children in pediatric rehabilitation</italic>, a true feeling of participation can be experienced. CONCLUSIONS The views of children and young people with disabilities are that children should be given the prerequisites for empowerment by being allowed to feel involved and independent as well as to work in partnership to experience true participation in the pediatric rehabilitation services. This finding is essential in the design of a digital decision support tool based on the children’s needs and perspectives.

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