scholarly journals Being assigned a clinical nurse specialist is associated with better experiences of cancer care: English population‐based study using the linked National Cancer Patient Experience Survey and Cancer Registration Dataset

2021 ◽  
Author(s):  
Saleh A. Alessy ◽  
Margreet Lüchtenborg ◽  
Janette Rawlinson ◽  
Matthew Baker ◽  
Elizabeth A. Davies
Keyword(s):  
Cancer Patient ◽  
Patient Experience ◽  
Cancer Care ◽  
Population Based ◽  
Cancer Registration ◽  
Nurse Specialist ◽  
Population Based Study ◽  
Clinical Nurse ◽  
English Population ◽  
Experience Survey

scholarly journals The cancer care experiences of gay, lesbian and bisexual patients: A secondary analysis of data from the UK Cancer Patient Experience Survey

2017 ◽  
Vol 26 (4) ◽  
pp. e12670 ◽  
Author(s):  
N. J. Hulbert-Williams ◽  
C.O. Plumpton ◽  
P. Flowers ◽  
R. McHugh ◽  
R.D. Neal ◽  
...  
Keyword(s):  
Cancer Patient ◽  
Patient Experience ◽  
Cancer Care ◽  
Secondary Analysis ◽  
And Bisexual ◽  
Experience Survey ◽  
The Uk

scholarly journals Linking the English Cancer Patient Experience Survey to Cancer registration: relating patient experience to outcomes, a step towards better services and outcomes

2017 ◽  
Vol 1 (1) ◽  
Author(s):  
Isabella Gomes Carneiro ◽  
James Charnock ◽  
Anna Fry ◽  
Vivian Mak ◽  
Nick Ormiston-Smith ◽  
...  
Keyword(s):  
Cancer Patient ◽  
Patient Experience ◽  
Cancer Registration ◽  
Registration Data ◽  
Cancer Support ◽  
Diagnosis Codes ◽  
Experience Survey ◽  
Analysis System ◽  
First Time ◽  
Multiple Tumour

ABSTRACT ObjectivesTo link the English Cancer Patient Experience Survey (CPES) to Public Health England’s cancer registration records and allow new exploration of the association between patient experience and outcomes and eventually improve service provision and patient outcomes. ApproachPatients’ responses from the first 4 waves (2010, 2011/12, 2013, 2014) of CPES were linked to tumour level cancer registration records. Cancer registration is available via the Cancer Analysis System (CAS). A patient may have multiple tumour records in CAS. Therefore, the same CPES survey result could be mapped onto multiple tumour records in the cancer registration data. It was necessary to match the patient records to identify the tumour records in CAS that most likely corresponded to the correct CPES response. The following criteria were used to match records at patient-tumour level: a match in the ICD-10 diagnosis codes from both datasets; and the time frames from diagnosis to discharge to best assess the correct match. In order to increase the matching yield, the linkage also flagged related tumour types in the two datasets, following consultation with clinical and research experts in the field. ResultsOver 75% of records in the survey cohort were successfully linked for each year of the survey waves. Analysis based on concordance between data items in both CPES and cancer registrations were mostly the same in the two datasets. As an example of the linkage potential, the overall experience of patient care was compared with stage at diagnosis. The results show that patients diagnosed at later stages have significantly lower scores of overall care. To our knowledge, this is the first time these two variables have been analysed together in regards to the care of cancer patients in England and emphasise the need for earlier cancer diagnosis. ConclusionThis is the first time the CPES has been linked to cancer registrations. The new linkage provides insight into how well represented the overall cancer patient population is within CPES and also assess concordance of data between them. This work is essential to support a programme of further analysis at NCRAS, in partnership with Macmillan Cancer Support and Cancer Research UK.

scholarly journals Insight into Patients’ Experiences of Cancer Care in Taiwan: An Instrument Translation and Cross-Cultural Adaptation Study

2018 ◽  
Vol 15 (8) ◽  
pp. 1772 ◽  
Author(s):  
Tsung-Hsien Yu ◽  
Kuo-Piao Chung ◽  
Yu-Chi Tung ◽  
Hsin-Yun Tsai
Keyword(s):  
Cancer Patient ◽  
Patient Experience ◽  
Cultural Adaptation ◽  
Cancer Care ◽  
Expert Panel ◽  
Cross Cultural ◽  
Patient Centered ◽  
Cross Cultural Adaptation ◽  
Centered Care ◽  
Experience Survey

Background: Since Taiwan launched the Cancer Prevention Act in 2003, several prevention strategies and early detection programs have been implemented to reduce the incidence, morbidity and mortality rates of cancer. However, most of the programs have concentrated on healthcare providers. Evaluations from the patient’s perspective have been lacking. Thus, in this study a cancer patient experience questionnaire was developed in the Taiwanese context and a preliminary nationwide investigation was conducted on the status of cancer care from the patient’s perspective. Methods: An extensive literature review was first conducted to collect information on the existing instruments used to measure the cancer patient’s experience. Thereafter, a multidisciplinary expert panel was convened to select an optimal instrument based on the IOM’s six domains for evaluating patient-centered care. The European Organisation for Research and Treatment of Cancer (EORTC) translation procedure was applied to the questionnaire for cross-cultural adaptation. A nationwide field test was then implemented at certificated cancer care hospitals. Results: Fifteen questionnaires were collected for the literature review. The expert panel selected the National Cancer Patient Experience Survey based on the IOM’s recommendations. After cross-cultural translation of the questionnaire, a total of 4000 questionnaires were administered in 19 certificated cancer care hospitals and two major cancer patient associations, with 1010 being returned (25.25% response rate). Most of the respondents were middle-aged, and 70% were female. The respondents reported they had a good experience with cancer care, except for “Home care and support” and “Finding out what was wrong with you”. Stratified analysis was conducted, with the results showing that the cancer patients’ experiences varied depending on their sociodemographic and cancer-related characteristics. Conclusions: A Taiwanese version of the cancer patient experience survey questionnaire was developed. Its results showed that the cancer patient’s experiences varied, depending on the patient’s age, cancer type, and cancer history. This study can be used as a basis to establish a patient-centered care model for cancer care in Taiwan.

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