scholarly journals Available, but not always accessible: A nationwide, qualitative study of multidisciplinary healthcare providers’ experiences with follow‐up care after paediatric brain tumour

2020 ◽  
Author(s):  
Anette Ålykkja ◽  
Ellen Ruud ◽  
Marie Hamilton Larsen ◽  
Torun Marie Vatne ◽  
Hanne C. Lie
Keyword(s):  
Qualitative Study ◽  
Brain Tumour ◽  
Healthcare Providers ◽  
Follow Up Care ◽  
Paediatric Brain Tumour

Clinging to My Child: Mothers’ Experiences Taking Care of a Child Hospitalized with Leukemia

2020 ◽  
pp. 105477382095747
Author(s):  
Dasuel Lee ◽  
Sunhee Lee
Keyword(s):  
Qualitative Study ◽  
Study Design ◽  
Healthcare Providers ◽  
Sociocultural Context ◽  
Follow Up Care ◽  
Study Participants ◽  
Feeling Overwhelmed ◽  
Mothers Experiences ◽  
Taking Care

The purpose of this study was to investigate, within the sociocultural context of Korea, mothers’ experiences caring for their child being treated in a hospital for leukemia. Study participants included 11 mothers who visited a hospital for their child’s follow-up care after treatment for leukemia. The researchers investigated the mothers’ experiences in caring for their children using a qualitative study design. Through interviews, the researchers identified five categories of experiences among participants, including, “Death anxiety,” “Feeling guilty,” “Fulfilling responsibilities as a mom,” “Feeling overwhelmed by life,” and “Feeling grateful.” In the course of treatment, mothers tended to feel pressured to be a good mother, and sometimes felt overwhelmed by life. Healthcare providers need to grasp the difficulties faced by mothers taking care of their children hospitalized for treatment of leukemia, and must develop programs to reduce the burden on mothers and increase their families’ functioning.

scholarly journals TIA and minor stroke: A qualitative study of long-term impact and experiences of follow-up care

2019 ◽  
Author(s):  
Grace M Turner ◽  
Christel McMullan ◽  
Lou Atkins ◽  
Robbie Foy ◽  
Jonathan Mant ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Stroke Prevention ◽  
Community Care ◽  
Minor Stroke ◽  
Framework Analysis ◽  
Diverse Range ◽  
Follow Up Care ◽  
The Impact

Abstract Background Transient ischaemic attack (TIA) and minor stroke are often considered transient events; however, many patients experience residual problems and reduced quality of life. Current follow-up healthcare focuses on stroke prevention and care for other long-term problems is not routinely provided. We aimed to explore patient and healthcare provider (HCP) experiences of residual problems post-TIA/minor stroke, the impact of TIA/minor stroke on patients’ lives, and current follow-up care and sources of support. Methods This qualitative study recruited participants from three TIA clinics, seven general practices and one community care trust in the West Midlands, England. Semi-structured interviews were conducted with 12 TIA/minor stroke patients and 24 HCPs from primary, secondary and community care with framework analysis. Results A diverse range of residual problems were reported post-TIA/minor stroke, including psychological, cognitive and physical impairments. Consultants and general practitioners generally lacked awareness of these long-term problems; however, there was better recognition among nurses and allied HCPs. Residual problems significantly affected patients’ lives, including return to work, social activities, and relationships with family and friends. Follow-up care was variable and medically focused. While HCPs prioritised medical investigations and stroke prevention medication, patients emphasised the importance of understanding their diagnosis, individualised support regarding stroke risk, and addressing residual problems. Conclusion HCPs could better communicate lay information about TIA/minor stroke diagnosis and secondary stroke prevention, and improve their identification of and response to important residual impairments affecting patients.

scholarly journals Discharge from the acute hospital: trauma patients’ perceptions of care

2016 ◽  
Vol 40 (6) ◽  
pp. 625 ◽  
Author(s):  
Lara A. Kimmel ◽  
Anne E. Holland ◽  
Melissa J. Hart ◽  
Elton R. Edwards ◽  
Richard S. Page ◽  
...  
Keyword(s):  
Decision Making ◽  
Qualitative Study ◽  
Trauma Patient ◽  
Patient Involvement ◽  
Acute Hospital ◽  
Trauma Patients ◽  
Orthopaedic Trauma ◽  
Lack Of Information ◽  
Follow Up Care

Objective The involvement of orthopaedic trauma patients in the decision-making regarding discharge destination from the acute hospital and their perceptions of the care following discharge are poorly understood. The aim of the present study was to investigate orthopaedic trauma patient experiences of discharge from the acute hospital and transition back into the community. Methods The present qualitative study performed in-depth interviews, between October 2012 and November 2013, with patients aged 18–64 years with lower limb trauma. Thematic analysis was used to derive important themes. Results Ninety-four patients were interviewed, including 35 discharged to in-patient rehabilitation. Key themes that emerged include variable involvement in decision-making regarding discharge, lack of information and follow-up care on discharge and varying opinions regarding in-patient rehabilitation. Readiness for discharge from in-patient rehabilitation also differed widely among patients, with patients often reporting being ready for discharge before the planned discharge date and feeling frustration at the need to stay in in-patient care. There was also a difference in patients’ perception of the factors leading to recovery, with patients discharged to rehabilitation more commonly reporting external factors, such as rehabilitation providers and physiotherapy. Conclusion The insights provided by the participants in the present study will help us improve our discharge practice, especially the need to address the concerns of inadequate information provision regarding discharge and the role of in-patient rehabilitation. What is known about the topic? There is no current literature describing trauma patient involvement in decision-making regarding discharge from the acute hospital and the perception of how this decision (and destination choice; e.g. home or in-patient rehabilitation) affects their outcome. What does this paper add? The present large qualitative study provides information on patients’ opinion of discharge from the acute hospital following trauma and how this could be improved from their perception. Patients are especially concerned with the lack of information provided to them on discharge, their lack of involvement and understanding of the choices made with regard to their discharge and describe concerns regarding their follow-up care. There is also a feeling from the patients that they are ready to leave rehabilitation before their actual planned discharge date, a concept that needs further investigation. What are the implications for practitioners? The patient insights gained by the present study will lead to a change in discharge practice, including increased involvement of the patient in the decision-making in terms of discharge from both the acute and rehabilitation hospitals and a raised awareness of the need to provide written information and follow-up telephone calls to patients following discharge. Further research into many aspects of patient discharge from the acute hospital should be considered, including the use of rehabilitation prediction tools to ensure patient involvement in decision-making and a discharge and/or follow-up coordinator to ensure patients are aware of how to access information after discharge.

scholarly journals TIA and minor stroke: A qualitative study of long-term impact and experiences of follow-up care

2019 ◽  
Author(s):  
Grace M Turner ◽  
Christel McMullan ◽  
Lou Atkins ◽  
Robbie Foy ◽  
Jonathan Mant ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Stroke Prevention ◽  
Community Care ◽  
Minor Stroke ◽  
Framework Analysis ◽  
Diverse Range ◽  
Follow Up Care ◽  
The Impact

Abstract Background Transient ischaemic attack (TIA) and minor stroke are often considered transient events; however, many patients experience residual problems and reduced quality of life. Current follow-up healthcare focuses on stroke prevention and care for other long-term problems is not routinely provided. We aimed to explore patient and healthcare provider (HCP) experiences of residual problems post-TIA/minor stroke, the impact of TIA/minor stroke on patients’ lives, and current follow-up care and sources of support. Methods This qualitative study recruited participants from three TIA clinics, seven general practices and one community care trust in the West Midlands, England. Semi-structured interviews were conducted with 12 TIA/minor stroke patients and 24 HCPs from primary, secondary and community care with framework analysis. Results A diverse range of residual problems were reported post-TIA/minor stroke, including psychological, cognitive and physical impairments. Consultants and general practitioners generally lacked awareness of these long-term problems; however, there was better recognition among nurses and allied HCPs. Residual problems significantly affected patients’ lives, including return to work, social activities, and relationships with family and friends. Follow-up care was variable and medically focused. While HCPs prioritised medical investigations and stroke prevention medication, patients emphasised the importance of understanding their diagnosis, individualised support regarding stroke risk, and addressing residual problems. Conclusion HCPs could better communicate lay information about TIA/minor stroke diagnosis and secondary stroke prevention, and improve their identification of and response to important residual impairments affecting patients.

scholarly journals TIA and minor stroke: a qualitative study of long-term impact and experiences of follow-up care

2019 ◽  
Vol 20 (1) ◽  
Author(s):  
Grace M. Turner ◽  
Christel McMullan ◽  
Lou Atkins ◽  
Robbie Foy ◽  
Jonathan Mant ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Stroke Prevention ◽  
Community Care ◽  
Minor Stroke ◽  
Framework Analysis ◽  
Diverse Range ◽  
Follow Up Care ◽  
The Impact

Abstract Background Transient ischaemic attack (TIA) and minor stroke are often considered transient events; however, many patients experience residual problems and reduced quality of life. Current follow-up healthcare focuses on stroke prevention and care for other long-term problems is not routinely provided. We aimed to explore patient and healthcare provider (HCP) experiences of residual problems post-TIA/minor stroke, the impact of TIA/minor stroke on patients’ lives, and current follow-up care and sources of support. Methods This qualitative study recruited participants from three TIA clinics, seven general practices and one community care trust in the West Midlands, England. Semi-structured interviews were conducted with 12 TIA/minor stroke patients and 24 HCPs from primary, secondary and community care. Data was analysed using framework analysis. Results A diverse range of residual problems were reported post-TIA/minor stroke, including psychological, cognitive and physical impairments. Consultants and general practitioners generally lacked awareness of these long-term problems; however, there was better recognition among nurses and allied HCPs. Residual problems significantly affected patients’ lives, including return to work, social activities, and relationships with family and friends. Follow-up care was variable and medically focused. While HCPs prioritised medical investigations and stroke prevention medication, patients emphasised the importance of understanding their diagnosis, individualised support regarding stroke risk, and addressing residual problems. Conclusion HCPs could better communicate information about TIA/minor stroke diagnosis and secondary stroke prevention using lay language, and improve their identification of and response to important residual impairments affecting patients.

Optimizing Follow-Up Care for Bariatric Surgical Patients: A Qualitative Study Exploring Barriers and Enablers

2015 ◽  
Vol 39 ◽  
pp. S20
Author(s):  
Nardhana Sivapalan ◽  
Seyed Ehsan Nikzad ◽  
Lesley Gotlib ◽  
Sanjeev Sockalingam ◽  
Mary-Anne W. Aarts
Keyword(s):  
Qualitative Study ◽  
Surgical Patients ◽  
Barriers And Enablers ◽  
Follow Up Care

scholarly journals Barriers to and Facilitators of Postpartum Follow-Up Care in Women with Recent Gestational Diabetes Mellitus: A Qualitative Study

2011 ◽  
Vol 20 (2) ◽  
pp. 239-245 ◽  
Author(s):  
Wendy L. Bennett ◽  
Christopher S. Ennen ◽  
Joseph A. Carrese ◽  
Felicia Hill-Briggs ◽  
David M. Levine ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Qualitative Study ◽  
Gestational Diabetes ◽  
Gestational Diabetes Mellitus ◽  
Follow Up Care

scholarly journals Family Perceptions of Newborn Cytomegalovirus Screening: A Qualitative Study

2021 ◽  
Vol 7 (4) ◽  
pp. 80
Author(s):  
Michael J. Cannon ◽  
Denise M. Levis ◽  
Holly McBride ◽  
Danie Watson ◽  
Carol Rheaume ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Healthcare Providers ◽  
Medical College ◽  
Follow Up Study ◽  
Opt Out ◽  
Long Term Follow Up ◽  
Family Perceptions ◽  
Congenital Cmv

Objectives: We sought to understand long-term retrospective parental perceptions of the utility of newborn screening in a context where many affected children never develop sequelae but where intensive support services and ongoing healthcare were provided. Study design: Qualitative study. Methods: Focus groups and interviews among parents (N = 41) of children with congenital CMV who had been enrolled in a long-term follow-up study at a large medical college for a mean of 22 years following diagnosis. Groups included parents whose children were: symptomatic at birth; initially asymptomatic but later developed sensorineural hearing loss; and who remained asymptomatic into adulthood. Results: With proper follow-up support, newborn CMV screening was viewed positively by parents, who felt empowered by the knowledge, though parents often felt that they and healthcare providers needed more information on congenital CMV. Parents in all groups valued newborn CMV screening in the long term and believed it should be embedded within a comprehensive follow-up program. Conclusions: Despite initial distress, parents of CMV-positive children felt newborn CMV screening was a net positive. Mandatory or opt-out screening for conditions with variable presentations and treatment outcomes may be valuable in contexts where follow-up and care are readily available.

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