The development of a family participatory dignity therapy programme for patients with haematologic neoplasms and their family caregivers in China: A feasibility study

2020 ◽  
Vol 29 (2) ◽  
Author(s):  
Chunfeng Wang ◽  
Jingyi Chen ◽  
Ying Wang ◽  
Rong Hu ◽  
Yong Wu
Keyword(s):  
Family Caregivers ◽  
Feasibility Study ◽  
Dignity Therapy ◽  
Haematologic Neoplasms ◽  
Therapy Programme

scholarly journals Supporting people with dementia and their family caregivers through a home‐based, dyadic, multisensory stimulation intervention: A feasibility study

2020 ◽  
Vol 16 (S7) ◽  
Author(s):  
Patrick Pui Kin Kor ◽  
Clare Yu ◽  
Justina Yat Wa Liu ◽  
Daphne Sze Ki Cheung ◽  
Rick Yiu Cho Kwan ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Feasibility Study ◽  
Multisensory Stimulation ◽  
People With Dementia ◽  
Home Based

scholarly journals Evaluation of a manualised speech and language therapy programme for children with social communication disorder: the SCIP feasibility study

2020 ◽  
Vol 6 (1) ◽  
Author(s):  
Catherine Adams ◽  
Jacqueline Gaile ◽  
Hazel Roddam ◽  
Janet Baxendale ◽  
Laura Clitheroe ◽  
...  
Keyword(s):  
Feasibility Study ◽  
Social Communication ◽  
Expert Panel ◽  
Communication Disorder ◽  
Future Trial ◽  
Speech And Language ◽  
Language Therapy ◽  
Post Intervention ◽  
Social Communication Disorder ◽  
Therapy Programme

Abstract Background Children with Social (Pragmatic) Communication Disorder (SPCD) have long-term needs in using and processing social language and have a high risk of later mental health difficulties. A manualised speech and language therapy programme, the Social Communication Intervention Programme (SCIP) provides therapy content for SPCD. A feasibility study is required to derive more precise estimates of key parameters for a future trial of SCIP. Aims To assess the feasibility of conducting a substantive randomized controlled trial of SCIP for children with SPCD. Methods A questionnaire was distributed to paediatric speech and language therapists in England. Survey questions addressed number of eligible children, routine intervention provision and trial recruitment factors. In the second phase, a single-arm intervention feasibility study was completed. Fifteen speech and language practitioners identified 24 children aged 5–11 years with SPCD. Practitioners received training/supervision to deliver 20 SCIP therapy sessions to each child. At time 1, parents of participating children provided three communication goals; expected steps in each goal were defined. After intervention, parents and practitioners independently rated each goal compared to baseline ability. Two research practitioners compared parent post-intervention commentaries with outcome scores to derive guidance about clinical significance. All practitioners recorded audio commentaries on therapy experiences. Post-intervention interviews were conducted with 6 practitioners and 6 parents. An expert panel completed a Delphi consultation on trial design. Results Routine practice for SPCD varies widely. Children tend to be embedded in autism provision. Participation in a future trial was well supported provided resources are available to services. Outcomes analysis indicated all children except one made some progress on parent ratings; all children made progress on practitioner ratings. A power analysis for a future trial was carried out using current outcome measure as putative primary endpoint. Practitioners’ audio-diaries provided suggestions for training and adaption in a future trial. Outcomes and therapy methods were acceptable to practitioners and parents. Conclusions The feasibility study evaluated a novel outcome measure of social communication skills in SPCD. A power calculation indicated a feasible framework for a trial within a realistic period of time. Recommendations for recruitment methods, adaptation of manual and training were supported by practitioners and an expert panel. Trial registration Title: Speech-language therapy for child social communication disorder Trial ID: ISRCTN48030419. Date registered: January 1, 2017. Registered retrospectively.

How Do Military Family Caregivers Who Completed a Supportive Intervention Differ From Those Who Dropped Out?

2020 ◽  
pp. 152483992090275
Author(s):  
Sherrie Wilcox ◽  
Deborah Girasek
Keyword(s):  
Quality Of Life ◽  
Family Caregivers ◽  
Feasibility Study ◽  
Somatic Symptoms ◽  
Military Family ◽  
Care Recipient ◽  
Patient Health Questionnaire ◽  
Health Questionnaire ◽  
Patient Health

Background. To create efficacious interventions for military family caregivers (MFCs), it is important to understand the characteristics and predictors of completers and dropouts of newly developed supportive interventions. Aim. The purpose of this study was to examine completion patterns in MFCs enrolled in an educational intervention feasibility study. Method. Baseline data are presented from MFC completers ( n = 64) and dropouts ( n = 60) of a national feasibility study for an innovative intervention. Measures include depression (Patient Health Questionnaire–2), anxiety (Generalized Anxiety Disorder–7), somatic symptoms (Patient Health Questionnaire–15), quality of life (World Health Organization Quality of Life–Brief), relationship satisfaction (Relationship Assessment Scale), and military care recipient number of injuries. Analysis of variance was used to evaluate differences between completers and dropouts and logistic regression was used to identify predictors of intervention completion. Results. Results indicated that MFCs with greater anxiety, χ2(3) = 10.33, p = .02; depression, χ2(1) = 8.18, p = .004; somatic symptoms, F(1, 106) = 6.26, p = .01; care recipient number of injuries, F(1, 118) = 16.31, p < .001; lower general satisfaction with treatment, F(1, 96) = 4.34, p = .04; and lower satisfaction with accessibility and convenience with treatment, F(1, 89) = 4.18, p = .04, were significantly more likely to complete the intervention. After multivariate analysis, the sole predictor of intervention completion was the number of care recipients’ injuries, χ2(6) = 14.89, N = 77, p < .05. Conclusions. Overall, findings indicate that MFCs who were more “at risk” were more likely to complete the intervention. Findings present patterns of intervention completion and provide insight on areas in need of further investigation on intervention development supporting the needs of MFCs.

A feasibility study of Dignity Psychotherapy delivered via telemedicine

2004 ◽  
Vol 2 (2) ◽  
pp. 149-155 ◽  
Author(s):  
STEVEN D. PASSIK ◽  
KENNETH L. KIRSH ◽  
SUZANNE LEIBEE ◽  
LISA S. KAPLAN ◽  
CELIA LOVE ◽  
...  
Keyword(s):  
Feasibility Study ◽  
Great Promise ◽  
A Value ◽  
Dignity Therapy ◽  
Level Of Satisfaction ◽  
Timely Fashion ◽  
Dying At Home ◽  
High Level ◽  
Therapy Sessions

Objective: Dignity Psychotherapy has shown great promise as a value-affirming intervention for patients with advanced disease. We delivered the Dignity Psychotherapy intervention in a feasibility study of a series of eight cancer patients via videophone technology to deliver the therapy into their homes.Methods: Once eligible patients were consented on this IRB-approved study, they completed baseline assessments and were scheduled to have the videophone placed in their homes. The Dignity Therapy sessions then encompassed a first session, which was transcribed and edited, followed by a second session to go over the edited transcript and allow the patient to make changes. Patients then filled out follow-up questionnaires and had the telemedicine equipment removed from their homes, and their legacy document delivered.Results: Participants had a mean age of 56.32 years (range = 41–66, SD = 7.65) and were diagnosed with lung (n = 5, 62.5%), breast (n = 2, 25%), or colon cancer (n = 1, 12.5%). They reported overall benefit from the intervention along with a high level of satisfaction. We were able to deliver the intervention in a timely fashion, with minimal length between sessions and transcript delivery and few technical difficulties.Significance of results: Telemedicine can greatly extend the benefits of Dignity Psychotherapy by bringing it to patients who are dying at home. Our very preliminary work suggests that delivering the intervention to patients who are too ill to leave their homes or who are in rural locations may be a feasible way to help them.

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