What are the characteristics of the best type 1 diabetes patient education programmes (from diagnosis to long‐term care), do they improve outcomes and what is required to make them more effective?

2020 ◽  
Vol 37 (4) ◽  
pp. 545-554 ◽  
Author(s):  
S. R. Heller ◽  
C. Gianfrancesco ◽  
C. Taylor ◽  
J. Elliott
Keyword(s):  
Type 1 Diabetes ◽  
Patient Education ◽  
Long Term Care ◽  
Diabetes Patient ◽  
Term Care

Sialidosis type 1: Long-term care of two unrelated patients and effectiveness of low doses of Perampanel

2021 ◽  
Vol 429 ◽  
pp. 117685
Author(s):  
Claudia Cuccurullo ◽  
Lia Santulli ◽  
Serena Troisi ◽  
Paola Russo ◽  
Anna Catone ◽  
...  
Keyword(s):  
Long Term Care ◽  
Low Doses ◽  
Term Care

scholarly journals Diagnosis and Management of Type 1 Sialidosis: Clinical Insights from Long-Term Care of Four Unrelated Patients

2020 ◽  
Vol 10 (8) ◽  
pp. 506
Author(s):  
Antonietta Coppola ◽  
Marta Ianniciello ◽  
Ebru N. Vanli-Yavuz ◽  
Settimio Rossi ◽  
Francesca Simonelli ◽  
...  
Keyword(s):  
Long Term Care ◽  
Age Of Onset ◽  
Late Onset ◽  
Therapeutic Option ◽  
Brain Magnetic Resonance Imaging ◽  
Rare Condition ◽  
Term Care ◽  
New Findings

Background: Sialidosis is a rare autosomal recessive disease caused by NEU1 mutations, leading to neuraminidase deficiency and accumulation of sialic acid-containing oligosaccharides and glycopeptides into the tissues. Sialidosis is divided into two clinical entities, depending on residual enzyme activity, and can be distinguished according to age of onset, clinical features, and progression. Type 1 sialidosis is the milder, late-onset form, also known as non-dysmorphic sialidosis. It is commonly characterized by progressive myoclonus, ataxia, and a macular cherry-red spot. As a rare condition, the diagnosis is often only made after few years from onset, and the clinical management might prove difficult. Furthermore, the information in the literature on the long-term course is scarce. Case presentations: We describe a comprehensive clinical, neuroradiological, ophthalmological, and electrophysiological history of four unrelated patients affected by type 1 sialidosis. The long-term care and novel clinical and neuroradiological insights are discussed. Discussion and conclusions: We report the longest follow-up (up to 30 years) ever described in patients with type 1 sialidosis. During the course, we observed a high degree of motor and speech disability with preserved cognitive functions. Among the newest antiseizure medication, perampanel (PER) was proven to be effective in controlling myoclonus and tonic–clonic seizures, confirming it is a valid therapeutic option for these patients. Brain magnetic resonance imaging (MRI) disclosed new findings, including bilateral gliosis of cerebellar folia and of the occipital white matter. In addition, a newly reported variant (c.914G > A) is described.

Diabetic vitrectomy in a large type 1 diabetes patient population: long-term incidence and risk factors

2013 ◽  
Vol 92 (5) ◽  
pp. 439-443 ◽  
Author(s):  
Christoffer Ostri ◽  
Morten la Cour ◽  
Henrik Lund-Andersen
Keyword(s):  
Risk Factors ◽  
Type 1 Diabetes ◽  
Patient Population ◽  
Diabetes Patient ◽  
Large Type ◽  
Diabetic Vitrectomy

Working With Resistance and Encouraging Buy-In to New Programs

2011 ◽  
Vol 16 (1) ◽  
pp. 18-21
Author(s):  
Sara Joffe
Keyword(s):  
Long Term Care ◽  
Term Care ◽  
Optimal Outcomes ◽  
Speech Language Pathologist

In order to best meet the needs of older residents in long-term care settings, clinicians often develop programs designed to streamline and improve care. However, many individuals are reluctant to embrace change. This article will discuss strategies that the speech-language pathologist (SLP) can use to assess and address the source of resistance to new programs and thereby facilitate optimal outcomes.

Feeding Dependency Issues in the Long-Term Care Environment

2001 ◽  
Vol 10 (1) ◽  
pp. 19-24
Author(s):  
Carol Winchester ◽  
Cathy Pelletier ◽  
Pete Johnson
Keyword(s):  
Long Term Care ◽  
Term Care ◽  
Care Environment

Communication Disordered: Program Implementation in Long-Term Care

2016 ◽  
Vol 1 (15) ◽  
pp. 64-67
Author(s):  
George Barnes ◽  
Joseph Salemi
Keyword(s):  
Program Implementation ◽  
Long Term Care ◽  
Family Satisfaction ◽  
Regulatory Compliance ◽  
Care Staff ◽  
Term Care ◽  
Staff Members ◽  
Change Policy

The organizational structure of long-term care (LTC) facilities often removes the rehab department from the interdisciplinary work culture, inhibiting the speech-language pathologist's (SLP's) communication with the facility administration and limiting the SLP's influence when implementing clinical programs. The SLP then is unable to change policy or monitor the actions of the care staff. When the SLP asks staff members to follow protocols not yet accepted by facility policy, staff may be unable to respond due to confusing or conflicting protocol. The SLP needs to involve members of the facility administration in the policy-making process in order to create successful clinical programs. The SLP must overcome communication barriers by understanding the needs of the administration to explain how staff compliance with clinical goals improves quality of care, regulatory compliance, and patient-family satisfaction, and has the potential to enhance revenue for the facility. By taking this approach, the SLP has a greater opportunity to increase safety, independence, and quality of life for patients who otherwise may not receive access to the appropriate services.

Informal Caregivers As Long-Term Care Providers: Differential Experiences By Gender

2002 ◽  
Author(s):  
Maryam Navaie-Waliser ◽  
Aubrey L. Spriggs ◽  
Penny H. Feldman
Keyword(s):  
Long Term Care ◽  
Informal Caregivers ◽  
Care Providers ◽  
Term Care
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