A comparison of quality of life and psychological distress in heart transplantation patients at adult and pediatric ages

2019 ◽  
Vol 33 (5) ◽  
pp. e13335
Author(s):  
Chiara Cavalli ◽  
Vincenzo Tarzia ◽  
Massimo Marini ◽  
Dario Gregori ◽  
Silvia Casella ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Heart Transplantation

2007 Katharine A. Lembright Award and Lecture—Stage D Heart Failure: Quality-of-Life Outcomes After Transplantation and Mechanical Support

Circulation ◽  
2007 ◽  
Vol 116 (suppl_16) ◽  
Author(s):  
Kathleen Grady
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Psychological Distress ◽  
Heart Transplantation ◽  
Functional Disability ◽  
Left Ventricular ◽  
Heart Failure Patients ◽  
Improved Outcomes ◽  
Stage D

Approximately 5 million individuals have heart failure in the United States. The 1-year mortality rate for patients with New York Heart Association class IV heart failure is 50%. Treatment options for patients with refractory symptoms and stage D heart failure include heart transplantation and mechanical circulatory support devices. Improved outcomes have been demonstrated in these advanced heart failure patients who undergo surgical therapies. Prolongation of life is relevant only if quality of life (QOL) is improved. Improvement in QOL outcomes has been demonstrated before and after heart transplantation, including improved outcomes when bridged to transplantation with left ventricular assist devices (LVADs). While listed for transplantation, worse QOL is significantly related to more symptoms, psychological distress, and functional disability. Patients who are bridged to heart transplantation with an LVAD report significantly improved QOL and decreased symptoms from before to early after LVAD implantation, as well as fairly good and stable QOL outcomes through 1 year after implantation. At 1 year after transplantation, better QOL is significantly related to less psychological distress, functional disability, and symptom distress; older age; and fewer complications. At 5 to 10 years after heart transplantation, QOL is positive and stable. Improved QOL is significantly related to biopsychosocial variables, including less depression, more positive emotions, more social support, and less fatigue. Thus, for stage D heart failure patients, heart transplantation conveys significant short-and long-term QOL benefit, including in those patients who are bridged to transplantation with an LVAD.

Health‐related quality of life after pediatric heart transplantation in early childhood

2020 ◽  
Vol 24 (7) ◽  
Author(s):  
Gonzalo Garcia Guerra ◽  
Gwen Y. Bond ◽  
Ari R. Joffe ◽  
Irina A Dinu ◽  
Morteza Hajihosseini ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Early Childhood ◽  
Heart Transplantation ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related ◽  
Pediatric Heart Transplantation

Psychological Distress and Quality of Life in Endocrine Disease

1990 ◽  
Vol 54 (2-3) ◽  
pp. 140-144 ◽  
Author(s):  
Nicoletta Sonino ◽  
Giovanni A. Fava ◽  
Franco Fallo ◽  
Marco Boscaro
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Endocrine Disease

Surgical methods of treatment of chronic heart failure and their place in modern clinical recommendations

2020 ◽  
Vol 22 (4) ◽  
pp. 183-191
Author(s):  
O. T. Kotsoeva ◽  
A. V. Koltsov ◽  
V. V. Tyrenko ◽  
A. A. Ialovets
Keyword(s):  
Quality Of Life ◽  
Heart Failure ◽  
Chronic Heart Failure ◽  
Left Ventricle ◽  
Heart Transplantation ◽  
Mechanical Circulatory Support ◽  
Circulatory Support ◽  
Surgical Methods ◽  
The Moment

This review discusses a number of aspects of surgical methods for treating severe chronic heart failure: resynchronizing therapy, mechanical circulatory support systems, and heart transplantation. Surgical methods for the treatment of heart failure are a rapidly developing field of modern cardiology and cardiac surgery. The main surgical method of treatment was and remains orthotopic transplantation of a donor heart. The advent of implantable systems has affected the problem of heart transplantation. Over the past decade, the use of mechanical circulatory support systems has grown significantly. At the moment, there are 3 main directions: creating devices for auxiliary blood circulation, various modes and methods of electrical stimulation of the myocardium, creating devices that mechanically remodel the heart chambers (left ventricle). All of these directions to some extent (depending on the evidence base) have found their place in modern recommendations for the treatment of chronic heart failure. The use of mechanical left ventricular remodeling shows good results in patients suffering from symptomatic heart failure, which leads to a significant and persistent decrease in the volume of the left ventricle and improvement of its function, symptoms and quality of life. Despite the fact that at the moment the geography and prevalence of their use is small, the number of implanted devices will only grow. Thus, given the need for frequent hospitalizations and high treatment costs, it is necessary to improve modern methods of surgical treatment of severe and terminal heart failure, make them more accessible, which will affect the duration and quality of life of these patients.

Patients’ Awareness of Advanced Disease Status, Psychological Distress and Quality of Life Among Patients With Advanced Cancer: Results From the APPROACH Study, India

2021 ◽  
pp. 104990912110428
Author(s):  
Aanchal Satija ◽  
Sushma Bhatnagar ◽  
Semra Ozdemir ◽  
Eric Finkelstein ◽  
Chetna Maholtra ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Advanced Cancer ◽  
Cancer Diagnosis ◽  
Advanced Disease ◽  
Disease Status ◽  
Educational Background ◽  
Solid Cancer ◽  
Cross Sectional

Background: Prognostic disclosure to patients with advanced cancer facilitates treatment decisions and goals of care discussions. However, the perspectives of patients, families and physicians differ in this regard across different cultures. Non-disclosure of cancer diagnosis or prognosis is commonly observed in family-centric cultures such as India. Aim: To assess the prevalence of and factors associated with cancer patients’ awareness of advanced disease status; and its with quality of life and psychological distress. Methods: Patients for this cross-sectional questionnaire-based survey were recruited from oncology and palliative medicine clinics at a tertiary cancer hospital in India from January 2017 to June 2018. Patients aged ≥ 21 years, aware of cancer diagnosis and receiving oncology treatment for Stage IV solid cancer were included in the study after obtaining written informed consent. Results: Two hundred patients were enrolled, of which 146 (73%) were not aware of the stage of their malignancy and 9 (4.5%) believed that their disease was at stage I, II or III. Those who were aware of their advanced cancer stage had more years of education (9.9 years vs 8.1 years, p = .05) and had poorer spiritual wellbeing in the faith domain (adjusted difference −1.6, 95% confidence interval −3.1 to −0.1, p = .03) compared to those who were unaware. Conclusion: It is recommended that future studies may explore prognostic understanding in Indian patients according to their socio-cultural, spiritual and educational background.

scholarly journals Quality of life and psychological distress in cancer survivors: The role of psycho‐social resources for resilience

2018 ◽  
Vol 28 (2) ◽  
pp. 271-277 ◽  
Author(s):  
Craig A. Harms ◽  
Lynne Cohen ◽  
Julie Ann Pooley ◽  
Suzanne K. Chambers ◽  
Daniel A. Galvão ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Psychological Distress ◽  
Cancer Survivors ◽  
Social Resources
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