scholarly journals The genome empowerment scale: An assessment of parental empowerment in families with undiagnosed disease

2019 ◽  
Vol 96 (6) ◽  
pp. 521-531
Author(s):  
Allyn McConkie‐Rosell ◽  
Kelly Schoch ◽  
Jennifer Sullivan ◽  
Heidi Cope ◽  
Rebecca Spillmann ◽  
...  
Keyword(s):  
Undiagnosed Disease ◽  
Parental Empowerment

scholarly journals Parental empowerment in paediatric rehabilitation: Exploring the role of a digital tool to help parents prepare for consultation with a physician

2019 ◽  
Vol 45 (5) ◽  
pp. 623-636 ◽  
Author(s):  
Mattijs W. Alsem ◽  
Marjolein Verhoef ◽  
Jessica Braakman ◽  
Karen M. Meeteren ◽  
Renate C. Siebes ◽  
...  
Keyword(s):  
Digital Tool ◽  
Parental Empowerment ◽  
Paediatric Rehabilitation

scholarly journals Effect of Genetic Diagnosis on Patients with Previously Undiagnosed Disease

2018 ◽  
Vol 379 (22) ◽  
pp. 2131-2139 ◽  
Author(s):  
Kimberly Splinter ◽  
David R. Adams ◽  
Carlos A. Bacino ◽  
Hugo J. Bellen ◽  
Jonathan A. Bernstein ◽  
...  
Keyword(s):  
Genetic Diagnosis ◽  
Undiagnosed Disease

scholarly journals Early Detection of Public Health Emergencies of International Concern through Undiagnosed Disease Reports in ProMED-Mail

2020 ◽  
Vol 26 (2) ◽  
pp. 336-339 ◽  
Author(s):  
Camille Rolland ◽  
Clément Lazarus ◽  
Coralie Giese ◽  
Bastien Monate ◽  
Anne-Sophie Travert ◽  
...  
Keyword(s):  
Public Health ◽  
Early Detection ◽  
Public Health Emergencies ◽  
Undiagnosed Disease

Clues to duration of undiagnosed disease from retinopathy and maculopathy at diagnosis in type 2 diabetes: a cross-sectional study

2010 ◽  
Vol 95 (9) ◽  
pp. 1229-1233 ◽  
Author(s):  
J. D. Ellis ◽  
T. Zvandasara ◽  
G. Leese ◽  
R. McAlpine ◽  
C. J. MacEwen ◽  
...  
Keyword(s):  
Type 2 Diabetes ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Undiagnosed Disease

Family genetic result communication in rare and undiagnosed disease communities: Understanding the practice

2020 ◽  
Author(s):  
Courtney M. Studwell ◽  
Emily G. Kelley ◽  
Janet S. Sinsheimer ◽  
Christina G. S. Palmer ◽  
Kimberly LeBlanc ◽  
...  
Keyword(s):  
Undiagnosed Disease ◽  
Genetic Result
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