Obtaining a genetic diagnosis in a child with disability: impact on parental quality of life

2015 ◽  
Vol 89 (2) ◽  
pp. 258-266 ◽  
Author(s):  
M. Lingen ◽  
L. Albers ◽  
M. Borchers ◽  
S. Haass ◽  
J. Gärtner ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Genetic Diagnosis ◽  
Parental Quality

scholarly journals The clinically important impact of preschool food oral immunotherapy on parental quality of life

2021 ◽  
Vol 147 (2) ◽  
pp. AB125
Author(s):  
Rishma Chooniedass ◽  
Lianne Soller ◽  
Sandeep Kapur ◽  
Gregory Rex ◽  
Mary McHenry ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Oral Immunotherapy ◽  
Parental Quality ◽  
Important Impact

Dyadic Effect of Coping on the Perceived Impact of ASD of Children on Parental Quality of Life: Report from the ELENA Cohort

2022 ◽  
Author(s):  
Leïla Brillet ◽  
Marianne Peries ◽  
Christelle Vernhet ◽  
Cécile Rattaz ◽  
Cécile Michelon ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Parental Quality ◽  
Perceived Impact

scholarly journals Validation of the English Version of the Scale for Psychosocial Factors in Food Allergy and the Relationship with Mental Health, Quality of Life, and Self-Efficacy

2016 ◽  
Vol 2016 ◽  
pp. 1-7 ◽  
Author(s):  
Rebecca C. Knibb ◽  
Aaron Cortes ◽  
Christopher Barnes ◽  
Carol Stalker
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Food Allergy ◽  
Psychosocial Factors ◽  
Self Efficacy ◽  
Holistic View ◽  
Parental Quality ◽  
The Uk ◽  
The Impact

Background. The Scale for Psychosocial Factors in Food Allergy (SPS-FA) is based on the biopsychosocial model of health and was developed and validated in Chile to measure the interaction between psychological variables and allergy symptoms in the child. We sought to validate this scale in an English speaking population and explore its relationship with parental quality of life, self-efficacy, and mental health. Methods. Parents (n=434) from the general population in the UK, who had a child with a clinical diagnosis of food allergy, completed the SPS-FA and validated scales on food allergy specific parental quality of life (QoL), parental self-efficacy, and general mental health. Findings. The SPS-FA had good internal consistency (alphas = .61–.86). Higher scores on the SPS-FA significantly correlated with poorer parental QoL, self-efficacy, and mental health. All predictors explained 57% of the variance in SPS-FA scores with QoL as the biggest predictor (β=.52). Discussion. The SPS-FA is a valid scale for use in the UK and provides a holistic view of the impact of food allergy on the family. In conjunction with health-related QoL measures, it can be used by health care practitioners to target care for patients and evaluate psychological interventions for improvement of food allergy management.

Healthcare for children depend on medical technology and parental quality of life in Japan

2021 ◽  
Author(s):  
Akemi Matsuzawa ◽  
Junichi Arai ◽  
Yuko Shiroki ◽  
Akemi Hirasawa
Keyword(s):  
Quality Of Life ◽  
Medical Technology ◽  
Parental Quality

The impact of cleft lip and/or palate on parental quality of life: A pilot study

2019 ◽  
Vol 126 ◽  
pp. 109598 ◽  
Author(s):  
Elise De Cuyper ◽  
Frederick Dochy ◽  
Els De Leenheer ◽  
Helen Van Hoecke
Keyword(s):  
Quality Of Life ◽  
Pilot Study ◽  
Cleft Lip ◽  
Parental Quality ◽  
The Impact

Impact of children's influenza-like illnesses on parental quality of life: A qualitative study

2013 ◽  
Vol 49 (8) ◽  
pp. 664-670 ◽  
Author(s):  
Maria Yui Kwan Chow ◽  
Angela M Morrow ◽  
Robert Booy ◽  
Julie Leask
Keyword(s):  
Quality Of Life ◽  
Qualitative Study ◽  
Parental Quality

scholarly journals Parenting Stress and Quality Of Life Of Special Need Chidren’s Parents: A School Health Survey Among Disabled Children in Badean Bondowoso

2020 ◽  
Vol 4 (2) ◽  
pp. 84
Author(s):  
Muhammad Cholilurrohman Hadi ◽  
Tantut Susanto ◽  
Kholid Rosyidi Muhammad Nur
Keyword(s):  
Quality Of Life ◽  
Parenting Stress ◽  
School Health ◽  
Cross Sectional Study ◽  
World Health ◽  
Disabled Children ◽  
Cross Sectional ◽  
World Health Organization Quality ◽  
Parental Quality

The family with special need children experience children’s dependency behavior. This situations related to parenting stress which affected parental quality of life. The objective of this study was to examine the correlation characteristic of parents and parenting stress and parental quality of life among special need children’s parents. A cross sectional study design conducted among 52 parents with special need children in School of Disabled Children in Badean Bondowoso. A self-administered questionnaire including the Alabama Parenting Questionnaire and the World Health Organization Quality of Life-BREF Indonesian version were used to assess parenting stress; and parental quality of life, respectively. Pearson Product Moment and Spearman Rank was performed to answer the objective of this study. The results showed that, there were no correlation between parenting stress and parental quality of life of special need children’s parents (p >0.05). However, length of disability correlated with parenting stress (r = 0.339; p = 0.014). Meanwhile; parent’s gender (Z = -2.089; p = 0.037), special need children’s gender (Z = -2.102; p = 0.036), and number of childrens (r = -0.297; p = 0.033) were correlated with parental quality of life. This study concluded that characteristic of parents and children with special needs correlated with parental quality of life. Therefore, adaptive parenting environment should implement to reduce parenting stress.  

PO-1039 The Impact Of Asthma On Child And Parental Quality Of Life In Lithuania

2014 ◽  
Vol 99 (Suppl 2) ◽  
pp. A589.3-A589
Author(s):  
E Vaitkaitiene ◽  
V Taminskiene ◽  
A Valiulis
Keyword(s):  
Quality Of Life ◽  
Parental Quality ◽  
The Impact
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