Patient Experiences with Hidradenitis Suppurativa: The Hidradenitis Patient Experience Survey

Author(s):  
N. Kashetsky ◽  
I.M. Mukovozov ◽  
J. Pereira ◽  
R. Manion ◽  
S. Carter ◽  
...  
2018 ◽  
Vol 6 (15) ◽  
pp. 1-174 ◽  
Author(s):  
Chris Graham ◽  
Susanne Käsbauer ◽  
Robyn Cooper ◽  
Jenny King ◽  
Steve Sizmur ◽  
...  

Background The Francis Report (of 2013) provided many recommendations to improve compassionate care in NHS organisations, including more widespread use of real-time feedback (RTF) to collect patient experience data. This research directly addressed these recommendations and aimed to provide an evidence-based toolkit to support NHS quality improvements. Objectives To develop and validate a survey of compassionate care for use in near real time on elderly care wards and accident and emergency (A&E) departments. This research also evaluated the effectiveness of the RTF approach for improving relational aspects of care and provides suggestions for how the approach can be used by other hospitals to strengthen compassionate care. Design The research utilised a mixed-methods design, using quantitative, qualitative and participatory research approaches to collect patients’ experiences of relational care and the views of NHS staff in an effort to evaluate the processes and impacts of near real-time feedback (NRTF) data collection. Data sources included a NRTF patient experience survey, weekly volunteer diaries, staff interviews and surveys, workshops and meetings with case study sites. Setting The research was carried out across six case study sites across England, in wards that predominantly serve elderly patients and in A&E departments. Participants The 3928 participants in the patient experience survey were inpatients on elderly care wards, or persons who had sought medical care in A&E. Frontline staff, service leads, senior management and volunteers also took part in surveys (n = 274) and interviews (n = 82) designed to understand the staff perspectives and opinions of collecting patient experience data. Interventions A patient experience survey was implemented using a tablet computer-based methodology, facilitated by trained volunteers. Responses were used alongside feedback from staff to evaluate the use of a NRTF approach as a method for improving patient experiences of relational aspects of care. Main outcome measures The patient experience survey measured relational aspects of care. Another outcome measure was improvements to care as planned, implemented and reported by staff. Results A small but statistically significant improvement (p = 0.044) in relational aspects of care over the course of the study was noted overall. Staff implemented a variety of improvements to enhance communication with patients. Limitations Maintaining volunteer and staff engagement throughout the study was difficult. Few surveys were completed per ward or department each week. This made examining trends in patient experiences over time challenging. Conclusions Near real-time feedback offers an effective approach for monitoring and improving relational aspects of care. Future work Staff frequently expressed a view that volunteers’ interactions with patients while administering the survey were themselves beneficial to patients. Future research should examine the impact of volunteer interactions with patients on their experiences of relational aspects of care. Study registration The project is registered on the Clinical Research Network portfolio under the primary trial identification number 18449. Funding The National Institute for Health Research Health Services and Delivery Research programme.


2017 ◽  
Vol 9 (2-3) ◽  
pp. 149
Author(s):  
Johanna Kaipio ◽  
Petri Mannonen ◽  
Hanna Stenhammar ◽  
Pekka Lahdenne ◽  
Kari Hiekkanen ◽  
...  

Compared to patient satisfaction, less research has focused on patient experience, which is a complex phenomenon by nature, thereby challenging to define and measure. Today, healthcare organizations are short of appropriate instruments surveying patient experiences. Satisfaction questionnaires are used to evaluate the quality of hospital care from the viewpoint of adult patients. However, questions remain whether the hospitals should use these results to support their development activities.  This article describes the development process of a patient experience survey instrument targeted for the parents of pediatric patients, introduces the first versions of the questionnaire, and the plan for further development. The development process included several phases: interviews with 17 families, identification of aspects which influence patient experiences (5 themes), description of related potential metrics (22 metrics), formulation of the first version of the questionnaire (67 statements) and pilot testing, data gathering at a pediatric outpatient clinic (106 respondents), and based on exploratory factor analysis development of the second version of the questionnaire (22 statements). The further development includes validation with a second round data gathering and statistical analysis. The aim is to condense the number of statements into about 10 and implement the survey in an electronic format. In the Lapsus project similar patient experience questionnaires will be developed for all relevant phases of patients paths. The development work will utilize the reported process and the first version of the questionnaire. The plan is take the instruments in use in the New Children’s hospital in Helsinki and in other similar hospitals.


2021 ◽  
Vol 16 (4) ◽  
pp. S810-S811
Author(s):  
V. Beattie ◽  
W. Boerckel ◽  
M. Rigney ◽  
K. O'Hagan ◽  
M. Hennink ◽  
...  

2021 ◽  
Vol 8 ◽  
pp. 237437352199862
Author(s):  
Stephanie Bayer ◽  
Paul Kuzmickas ◽  
Adrienne Boissy ◽  
Susannah L. Rose ◽  
Mary Beth Mercer

The Ombudsman Office at a large academic medical center created a standardized approach to manage and measure unsolicited patient complaints, including methods to identify longitudinal improvements, accounting for volume variances, as well as incident severity to prioritize response needs. Data on patient complaints and grievances are collected and categorized by type of issue, unit location, severity, and individual employee involved. In addition to granular data, results are collated into meaningful monthly leadership reports to identify opportunities for improvement. An overall benchmark for improvement is also applied based on the number of complaints and grievances received for every 1000 patient encounters. Results are utilized in conjunction with satisfaction survey results to drive patient experience strategies. By applying benchmarks to patient grievances, targets can be created based on historical performance. The utilization of grievance and complaint benchmarking helps prioritize resources to improve patient experiences.


2017 ◽  
Vol 48 (1) ◽  
pp. S11
Author(s):  
Hashmi Fatima ◽  
Gregor Nikolaus ◽  
McGuffin Merrylee ◽  
Turner Angela ◽  
Liszewski Brian ◽  
...  

2017 ◽  
Vol 26 (4) ◽  
pp. e12670 ◽  
Author(s):  
N. J. Hulbert-Williams ◽  
C.O. Plumpton ◽  
P. Flowers ◽  
R. McHugh ◽  
R.D. Neal ◽  
...  

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