Mothers’ experiences of giving medicines to children with severe and profound intellectual disabilities – the impact on time

2022 ◽  
Author(s):  
Carmel Doyle
Keyword(s):  
Intellectual Disabilities ◽  
The Impact ◽  
Mothers Experiences

scholarly journals Sexual Health in Spanish People with Intellectual Disability: the Impact of the Lockdown due to COVID-19

2021 ◽  
Author(s):  
M. Dolores Gil-Llario ◽  
Irene Díaz-Rodríguez ◽  
Vicente Morell-Mengual ◽  
Beatriz Gil-Juliá ◽  
Rafael Ballester-Arnal
Keyword(s):  
Sexual Abuse ◽  
Sexual Behavior ◽  
Sexual Health ◽  
Intellectual Disabilities ◽  
Sexual Activity ◽  
Policy Implications ◽  
The People ◽  
People With Intellectual Disabilities ◽  
Technological Improvements ◽  
The Impact

Abstract Introduction The lockdown due to COVID-19 affected the sexual health of the people with intellectual disabilities by differentially modifying the frequency and characteristics of people’s sexual activity depending on whether or not they lived with a partner during this period. The aim of this study was to analyze the extent to which the sexual behavior of people with intellectual disabilities (with and without a partner) was affected during the lockdown. Methods The sample consisted of 73 people with intellectual disabilities between 21 and 63 years old (M = 39.63; SD = 10.11). The variables analyzed were the physical, social, and technological environment during the lockdown, sexual appetite, sexual behavior, online sexual activity, and sexual abuse. The data were collected between the months of May and June of 2020. Results The lockdown increased the sexual appetite of a third of the sample (38%), especially the youngest participants. Sexual activity focused on autoeroticism and online behavior, particularly sending nude images of oneself (88%) and viewing pornography (83.6%). Rates of sexual abuse during this period were relatively high (6.8%). Conclusions The sexual activity of people with ID was important during the lockdown, and they had to adapt to the circumstances of isolation in a similar way to the general population. Technological improvements in terms of devices and connection quality at home allowed their sexual behavior to be reoriented, opening the door to new risks for the sexual health of people with ID. Policy Implications Cybersex and the increase in sexual abuse due to confinement are aspects that should be included in programs to improve the sexual health of this group.

A systematic review of adverse childhood experiences (ACEs) with people with intellectual disabilities: an unsafe gap in the literature

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Chloe Crompton ◽  
Bethany Duncan ◽  
Graham Simpson-Adkins
Keyword(s):  
Systematic Review ◽  
Intellectual Disabilities ◽  
Adverse Childhood Experiences ◽  
World Health ◽  
Inclusion Criteria ◽  
Childhood Experiences ◽  
Content Type ◽  
Adverse Childhood ◽  
People With Intellectual Disabilities ◽  
The Impact

Purpose This paper aims to systematically review the available evidence that explores adverse childhood experiences (ACEs) in people with intellectual disabilities (PwID). It is important to systematically review this literature as, to date, there is little known about the number of studies in this area, despite the World Health Organization declaring ACE prevention and support as a global public health priority. Design/methodology/approach Published studies were identified from electronic database searches. Key journals and reference lists were also hand searched. Findings Two studies met the inclusion criteria and the prevalence and frequency of ACEs experienced by participants of these studies analysed. Overall, due to the small number of studies meeting the inclusion criteria, it is difficult to establish any meaningful conclusions. Originality/value This appears to be the first systematic review to try and identify a research base looking at the prevalence of ACEs within a PwID population. Findings suggest that this is a highly neglected area of research, and the authors hope to have identified that further evidence is required to draw clearer conclusions about the impact of ACEs on PwID.

scholarly journals A United Kingdom Pilot Study of Kinetic Shift Therapy and Mindfulness Based Therapy for Clients Living with Intellectual Disabilities and Enduring Mental Health Problems

2021 ◽  
Vol 6 (1) ◽  
Author(s):  
Collins-McGroarty J ◽  
Faulkes-Sharrock E ◽  
Wilkes R
Keyword(s):  
Mental Health ◽  
Intellectual Disabilities ◽  
Mental Health Problems ◽  
Positive Impact ◽  
Health Problems ◽  
Behavioral Issues ◽  
Client Group ◽  
Sensitive Topics ◽  
Kinetic Shift ◽  
The Impact

Objective: Clients with moderate intellectual disabilities are reported to struggle with ongoing mental health problems, especially around emotional and behavioral issues around sensitive topics like their sexuality, which is not always easy to communicate through traditional talking therapies for this client group, therefore a group of individuals were selected to determine the impact of a newer energy psychotherapy technique called Kinetic Shift Therapy (KS) alongside Mindfulness based therapy (MBT) which is utilized more, however with limited published research to determine the positive impact on the symptoms and behaviors that affect this client group.

Huronia's Double Bind: How Institutionalisation Bears Out on the Body

Somatechnics ◽  
2021 ◽  
Vol 11 (1) ◽  
pp. 92-111
Author(s):  
Jen Rinaldi ◽  
Kate Rossiter
Keyword(s):  
Intellectual Disabilities ◽  
Lived Experiences ◽  
Institutional Care ◽  
The Body ◽  
Interview Data ◽  
Double Bind ◽  
Total Institution ◽  
People With Intellectual Disabilities ◽  
Gendered Bodies ◽  
The Impact

Frequently missing from histories of forced institutionalisation are close readings of the enduring impact on survivors' corporeality. In this article the authors analyse interview data featuring people who survived the Huronia Regional Centre: a total institution designed to warehouse people with intellectual disabilities that operated in Canada from 1876 to 2009. These interviews reveal the impact of institutional technologies on the bodies of the institutionalised, and how institutional survivors resisted those technologies. Institutional rituals meant to organise and cleanse residents, resulted in the reification of institutional subjects as inescapably contaminated. Drawing from Mary Douglas's theory of dirt and Julia Kristeva's interpretation of dirt as abjection, the authors engage with interview data on daily institutional care routines, particularly dressing, eating, showering, and the administration of medication, to show how these rituals produced for the institutionalised subject meanings around gender and disability as markers of defilement. The authors argue that the kinds of deeply oppressive and often violent rituals central to lived experiences of institutionalisation are grounded in the assumption that disabled gendered bodies are already-abject, hence the institutional demand for the institutionalised to be brought under control.

Pregnancy warning labels on alcohol packaging: results of an exploratory study

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
A Millot ◽  
K Gallopel-Morvan
Keyword(s):  
Content Analysis ◽  
Alcohol Consumption ◽  
Intellectual Disabilities ◽  
Exploratory Study ◽  
Drinking Alcohol ◽  
Thematic Content Analysis ◽  
French Government ◽  
The Impact ◽  
Depth Interviews ◽  
In Pregnancy

Abstract Background In 2017, approximately 11% of pregnant women in France consumed alcohol despite its harmful consequences on the fetus (Andler, 2018). Our research aims at exploring the impact of warnings displayed on alcohol packaging: the current pictogram and alternative possible messages that differ regarding content and design will be explored. Methods In-depth interviews were conducted with 20 French women, including women who did not drink alcohol during their pregnancy, women who drank alcohol, women in pregnancy planning and breastfeeding mothers. Questions were asked about the participants perception of drinking alcohol during pregnancy, alcohol warnings: the current pictogram, new contents (negative and positive) for warnings and new designs (different pictograms combined with or without text). A thematic content analysis was carried out. Results The current pictogram lacks visibility and has no impact on the behaviour of the women. New suggested contents were on the whole welcomed. It can be noted that some participants felt that specific messages (e.g. intellectual disabilities, facial malformations etc.) were a more effective way of preventing alcohol consumption during pregnancy than general ones. On the contrary, other participants felt that a general message such as ’Zero alcohol during pregnancy’, or positive messages such as a cessation service message, was more effective. The majority of participants believed that pictograms with a better visibility; more eye-catching; vivid images of fetuses, etc., would have a greater impact on alcohol consumption. Conclusions This study highlights the need for changes to pictogram currently used on alcohol packaging in France. Our results show that recent changes proposed by the French government (a slight increase in the size of the current pictogram) will most likely have little effect on preventing alcohol consumption during pregnancy. Key messages The current pictogram on alcohol bottles in France has little or no effect. The French government should implement new warnings both in terms of content and design.

scholarly journals The role of technology-mediated music-making in enhancing engagement and social communication in children with autism and intellectual disabilities

2018 ◽  
Vol 24 (1) ◽  
pp. 118-138 ◽  
Author(s):  
Lila Kossyvaki ◽  
Sara Curran
Keyword(s):  
Intellectual Disabilities ◽  
Communication Skills ◽  
Social Communication ◽  
Children With Autism ◽  
School Staff ◽  
Video Recordings ◽  
Social Communication Skills ◽  
Music Making ◽  
Group Interviews ◽  
The Impact

Very little research has explored the impact of interventions combining music and technology on children with a dual diagnosis of autism and intellectual disabilities (ID) incorporating the active involvement of school staff. Video recordings and group interviews were used to collect data in this study. Video recordings of five children with autism and ID were conducted as they engaged with a technology-mediated music-making intervention over a period of 5 weeks. Additionally, five group interviews with classroom staff were carried out. This study is the first to explore the impact of a technology-mediated music-making intervention on the engagement levels and social communication skills of children with autism and ID at school. Some positive outcomes, especially regarding social communication skills, are reported, which are of significant value to educational researchers and school staff.

scholarly journals Latch-related nipple pain in breastfeeding women: the impact on breastfeeding outcomes

2020 ◽  
Vol 28 (7) ◽  
pp. 406-414
Author(s):  
Katie Bourdillon ◽  
Tom McCausland ◽  
Stephanie Jones
Keyword(s):  
Online Survey ◽  
Physical Symptoms ◽  
Breastfeeding Duration ◽  
Significant Positive Effect ◽  
Breastfeeding Rates ◽  
Perceived Impact ◽  
The Impact ◽  
Positive Effect ◽  
Mothers Experiences

Background Nipple pain is a common issue experienced by breastfeeding mothers and if not resolved, can contribute to early cessation of breastfeeding. Aims To investigate mothers experiences of nipple pain, the solutions used to manage their issues, and the perceived impact on breastfeeding outcomes with particular focus on latch-related nipple pain with no clear underlying cause (LRNP). Methods Data was collected via an online survey of UK-based women (n=1084). Findings LRNP was the most common issue as experienced by 52% of mothers surveyed. Various solutions were utilised to try to manage LRNP. Use of Highly Purified Anhydrous (HPA) Lanolin to manage LRNP was associated with a substantial increase in breastfeeding duration (average 33.2 weeks compared to 26.5 weeks for those who didn't report using HPA Lanolin). Discussion HPA Lanolin is a key solution used by mothers in the management of latch-related nipple pain and one which they perceive as having a significant positive effect on the physical symptoms and pain associated with nipple trauma. Use of HPA Lanolin was also associated with a substantial increase in breastfeeding duration which ultimately aids women in meeting their personal breastfeeding goals and improves overall breastfeeding rates.

scholarly journals The Design, Content and Delivery of Relationship and Sexuality Education Programmes for People with Intellectual Disabilities: A Systematic Review of the International Evidence

2020 ◽  
Vol 17 (20) ◽  
pp. 7568
Author(s):  
Michael Brown ◽  
Edward McCann ◽  
Maria Truesdale ◽  
Mark Linden ◽  
Lynne Marsh
Keyword(s):  
Intellectual Disabilities ◽  
Sexuality Education ◽  
Inclusion Criteria ◽  
Quality Appraisal ◽  
Programme Development ◽  
People With Intellectual Disabilities ◽  
Adults With Intellectual Disabilities ◽  
Meta Analyses ◽  
The Impact ◽  
The Relationship

There is growing empirical evidence regarding the relationship and sexuality experiences and needs of children, young people and adults with intellectual disabilities. A total of twelve papers met the inclusion criteria regarding relationship and sexuality education (RSE) programmes specific to the needs of this population. The preferred reporting items for systematic reviews and meta-analyses (PRISMA) guidelines were followed and quality appraisal undertaken. The four themes identified were principles informing RSE programme development, design and content of RSE programmes, delivery of RSE programmes and evaluation of RSE programmes. The discussion presents areas that need to be addressed to ensure that people with intellectual disabilities, their families, carers and professionals are fully involved in the design and delivery of RSE programmes. Further research is required to identify the impact of the programmes and the sustained outcomes achieved. Recommendations are made regarding the activities required to enable the development of evidence-based and person-centred approaches to relationship and sexuality programmes.

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