scholarly journals Decision‐making experiences of health professionals in withdrawing treatment for children and young people: A qualitative study

2022 ◽  
Author(s):  
Shanara Abdin ◽  
Gemma Heath ◽  
Susan Neilson ◽  
James Byron‐Daniel ◽  
Nic Hooper
Keyword(s):  
Decision Making ◽  
Young People ◽  
Qualitative Study ◽  
Health Professionals ◽  
Withdrawing Treatment ◽  
Children And Young People

scholarly journals Researching disabled children and young people’s views on decision-making: Working reflexively to rethink vulnerability

Childhood ◽  
2018 ◽  
Vol 25 (3) ◽  
pp. 355-368 ◽  
Author(s):  
Sarah Louise Skyrme ◽  
Simon Woods
Keyword(s):  
Decision Making ◽  
Qualitative Research ◽  
Duchenne Muscular Dystrophy ◽  
Muscular Dystrophy ◽  
Young People ◽  
Medical Research ◽  
Disabled Children ◽  
Structured Interviews ◽  
Children And Young People ◽  
Research Assumptions

Issues relating to qualitative research with disabled children and young people will be discussed. Semi-structured interviews with boys who have Duchenne muscular dystrophy were conducted to explore their thoughts on how they might make a decision to take part in medical research. Assumptions about disabled children’s vulnerability can impact how researchers conduct qualitative research, and how they are involved in significant decision-making. Working reflexively and in partnership with children illustrates their competence, supporting reconsideration of their vulnerability.

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