scholarly journals “I'm not what I used to be”: A qualitative study exploring how young people experience being diagnosed with a chronic illness

2019 ◽  
Vol 45 (2) ◽  
pp. 216-226 ◽  
Author(s):  
Susan Kirk ◽  
Denise Hinton
Keyword(s):  
Chronic Illness ◽  
Young People ◽  
Qualitative Study

The experiences of young people with chronic illness in New Zealand: A qualitative study

2019 ◽  
Vol 45 (5) ◽  
pp. 660-669 ◽  
Author(s):  
Judith Sligo ◽  
Bernadette Jones ◽  
Cheryl Davies ◽  
Richard Egan ◽  
Tristram Ingham ◽  
...  
Keyword(s):  
New Zealand ◽  
Chronic Illness ◽  
Young People ◽  
Qualitative Study

YOUTH WELLBEING IN SOUTH AFRICA: WHAT DIMENSIONS SHOULD WE MEASURE?

2016 ◽  
Vol 13 (1) ◽  
pp. 1-17 ◽  
Author(s):  
Dabesaki Mac-Ikemenjima
Keyword(s):  
South Africa ◽  
Health Education ◽  
Young People ◽  
Qualitative Study ◽  
South African ◽  
Time Use ◽  
Economic Relationships ◽  
African Cities ◽  
South African Cities ◽  
Selection Of

There is growing interest in the development of measures and indexes of youth wellbeing. However, there has been a limited discussion on indicators to measure and select them. This paper reports on the results of a qualitative study on the selection of indicators to measure the wellbeing of young people in South Africa, and reflects on the relevance of the content of their values in choosing indicators for measuring their wellbeing. The data used in this analysis is based on telephone (9) and email (6) interviews conducted with 15 young people (male=5, female=10) aged 22 to 32 from five South African cities during July 2010. In the interviews, participants were asked to identify five issues they considered important to their lives, after which they were asked to rank them in order of importance. The issues indicated by the participants are described and discussed in six dimensions: economic, relationships, spiritual and health, education, time use and material. The indicators developed from this study are discussed in terms of their relevance for use in a measure of youth wellbeing in South Africa.

#GomorraLaSerie: Converging audience and enhanced authorship on twenty-first-century Italian screens

Modern Italy ◽  
2015 ◽  
Vol 20 (4) ◽  
pp. 335-349 ◽  
Author(s):  
Pierluigi Erbaggio
Keyword(s):  
Social Media ◽  
Quantitative Analysis ◽  
Young People ◽  
Qualitative Study ◽  
Organised Crime ◽  
First Century ◽  
Social Media Platform ◽  
Screen Viewing ◽  
The Social ◽  
Media Platform

Based on Roberto Saviano's book Gomorra (2006), production of the TV series Gomorra – La serie (2014) was met with scepticism as many feared it would glamorise organised crime and, consequently, attract young people toward Camorra affiliation. The series' bleak portrayal of criminals and criminality was offered as a response to such concerns. Despite the preoccupations, Gomorra – La serie was hugely successful and, because of its quality, was sold to other countries. In Italy, the series' success can be measured by the popularity of its Twitter hashtag #GomorraLaSerie. Engaged with Henry Jenkins' theories of media convergence and based on a corpus of tweets bearing this official hashtag, this article proposes a quantitative analysis and advances conclusions regarding the Italian TV audience and second-screen viewing practices. Additionally, through a qualitative study of Saviano's tweets about the series, it examines the writer's use of the social media platform as a tool of narrative continuity. Finally, the article highlights a few examples of fan-generated media and concludes with remarks regarding Saviano's problematic position at the centre of a transmedia object.

Smoking and peer groups: Results from a longitudinal qualitative study of young people in Northern Ireland

2005 ◽  
Vol 44 (3) ◽  
pp. 397-414 ◽  
Author(s):  
Barbara J. Stewart-Knox ◽  
Julie Sittlington ◽  
Jorun Rugkåsa ◽  
Sheila Harrisson ◽  
Margaret Treacy ◽  
...  
Keyword(s):  
Northern Ireland ◽  
Young People ◽  
Qualitative Study ◽  
Peer Groups

FRI0562 THE PERSPECTIVE OF YOUNG PEOPLE WITH INFLAMMATORY ARTHRITIS ON PATIENT REPORTED OUTCOME MEASURES: RESULTS OF A EUROPE-WIDE SURVEY

2020 ◽  
Vol 79 (Suppl 1) ◽  
pp. 883-883
Author(s):  
A. Alunno ◽  
E. Mosor ◽  
T. Stamm ◽  
P. Studenic
Keyword(s):  
Young People ◽  
Qualitative Study ◽  
Personal Experience ◽  
Large Scale ◽  
Young Patients ◽  
Patient Reported Outcome Measures ◽  
Patient Reported Outcome ◽  
Self Management ◽  
Research Support ◽  
Patient Reported

Background:Although patient-reported outcome measures (PROMs) are widely used in clinical practice and research, it is unclear if these instruments adequately cover the perspective of young people (18-35 years) with inflammatory arthritis (IA). We recently performed focus groups on PROMs with 53 young IA patients from 4 European countries, but the perspective of these patients has never been explored on a large scale.Objectives:To explore personal experience, opinions and beliefs of young people with IA across Europe concerning PROMs content, characteristics and ways of administration in order to inform EULAR points to consider (PtC) for including the perspective of young patients with IA into PROMs.Methods:Based on the results of our previous qualitative study, a task force including patients, rheumatologists and health professionals developed an online survey. The survey covered personal experience, preferences and opinions concerning PROMs. After being pilot tested and revised accordingly, the survey was distributed through the EULAR people with arthritis and rheumatism in Europe (PARE), Young PARE networks and the Emerging EULAR Network (EMEUNET).Results:547 people (88% females) from 29 countries aged 18-35 years with a diagnosis of juvenile idiopathic arthritis, rheumatoid arthritis, Still’s disease, psoriatic arthritis or spondyloarthritis completed the survey (Figure 1). Thirty-seven percent of respondents reported they never filled a PROM. A North-South and West-East Europe gradient was observed (30.4% vs 56.3% and 25.5% vs 58.8% respectively). Figure 2 outlines key findings of our survey. Among respondents having filled PROMs (n=313), two thirds perceived their access to PROM results useful for self-management of their health. Discomfort while filling PROMs was an issue for nearly half of the respondents, as questions were perceived as scaring or not relevant. This discomfort, the fear of judgement, or inadequate assessed time frames were major reasons for difficulties in translating the health experience into a rating scale. Still 75% use their own experience in the past as reference. Among several reasons, people scored differently from what they felt to emphasize how much better or worse they felt from previous assessment. Concerning preferences of numerical rating scales (NRS) or visual analogue scales (VAS) explored in all respondents regardless having ever filled in PROMs, those in favour of VAS mainly reasoned this by having more possibilities to select and those favouring NRS by better readability and interpretation. Maintaining a sitting position, preparing food, doing physical activity, intimacy and sleep problems were the items selected most frequently in the survey as in the qualitative study to be included in PROMs. The implementation of discussion on self-management, education/work and support possibilities at regular clinic visits was considered important by over 60% of responders. Overall, electronic capturing of PROMs was preferred over paper-based questionnaires (57% vs 13%).Conclusion:Our survey explored for the first time the personal experience and opinions of young people with IA concerning PROMs on a large scale and confirmed the results obtained in the qualitative study. This survey informed the EULAR PtC for including the perspective of young patients with IA into PROMs.References:[1] Mosor E et al. Arthritis Rheumatol. 2019; 71 (suppl 10)Disclosure of Interests:Alessia Alunno: None declared, Erika Mosor: None declared, Tanja Stamm Grant/research support from: AbbVie, Roche, Consultant of: AbbVie, Sanofi Genzyme, Speakers bureau: AbbVie, Roche, Sanofi, Paul Studenic Grant/research support from: Abbvie

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