Supporting parents following childhood traumatic brain injury: a qualitative study to examine information and emotional support needs across key care transitions

2014 ◽  
Vol 41 (2) ◽  
pp. 303-313 ◽  
Author(s):  
S. Kirk ◽  
D. Fallon ◽  
C. Fraser ◽  
G. Robinson ◽  
G. Vassallo
2021 ◽  
pp. 1-12
Author(s):  
Maria Jeannette Hennessy ◽  
Karen A. Sullivan

Abstract Objective: This qualitative study aimed to identify the service and support needs of people with a recent history of traumatic brain injury (TBI) living in the community. Methods: A postal survey was sent to 662 people 6–18 months after hospital admission for a mild-to-severe TBI. The survey included an open-ended item (‘wish-basket’) for collecting ideas about important unmet needs. Results: Responses from 53 individuals were coded and processed using thematic analysis. Five themes (n = 39) were identified, three of which were related to personal needs. These personal wishes were about being symptom-free, independent and emotionally supported by, and connected to, loved ones. The remaining themes were about the wished-for changes to the health system and society, such as wishing for health care continuity (as opposed to being abandoned), and for greater understanding and support by society. Conclusions: There is scope to improve the services and support for people living with TBI in the community. This includes reconsidering the way that discharge occurs, addressing the personal needs that remain when living in the community and promoting greater social awareness of TBI to counteract disadvantage.


2017 ◽  
Vol 29 (3) ◽  
pp. 376-394 ◽  
Author(s):  
Kate Rachel Gould ◽  
Amelia J. Hicks ◽  
Malcolm Hopwood ◽  
Justin Kenardy ◽  
Iveta Krivonos ◽  
...  

Brain Injury ◽  
2020 ◽  
Vol 34 (8) ◽  
pp. 1010-1019
Author(s):  
Ellie Knight ◽  
Alyson Norman ◽  
Grahame K Simpson

2017 ◽  
Vol 139 ◽  
pp. 27-37 ◽  
Author(s):  
Olubunmi A. Ojelade ◽  
Musibau A. Titiloye ◽  
Meghan A. Bohren ◽  
Akinpelu O. Olutayo ◽  
Adebimpe A. Olalere ◽  
...  

2016 ◽  
Vol 28 (7) ◽  
pp. 1161-1178 ◽  
Author(s):  
Christian E. Salas ◽  
Martin Casassus ◽  
Leanne Rowlands ◽  
Steve Pimm ◽  
Desmond A. J. Flanagan

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