Narrowed lives: Meaning, moral value and profound intellectual disability. Simo Vehmas and Reetta Mietola. Stockholm University Press, 2021 ISBN 978‐91‐7635‐151‐2 £12.50 and Open Access

Author(s):  
Ben Simmons
2017 ◽  
Vol 26 (3) ◽  
pp. 505-516 ◽  
Author(s):  
SIMO VEHMAS ◽  
BENJAMIN CURTIS

Abstract:This article engages with debates concerning the moral worth of human beings with profound intellectual and multiple disabilities (PIMDs). Some argue that those with such disabilities are morally less valuable than so-called normal human beings, whereas others argue that all human beings have equal moral value and that, therefore, each group of humans ought to be treated with equal concern. We will argue in favor of a view that takes points from opposing camps in the debates about the moral worth of humans with such disabilities. Our position, roughly, is this: most humans with PIMDs are persons in the morally significant sense and, therefore, deserve moral consideration equal to that granted to so-called “normal” human beings. Some humans with PIMD may not be persons, but nevertheless deserve moral consideration equal to that of persons because they stand in a special relation to persons.


2018 ◽  
Vol 2 (2a) ◽  
pp. 22-35
Author(s):  
Muhammad Zainal Abidin

Abstrak Tujuan penelitian ini yaitu unutk menganalisis proses implementasi asesmen yang diterapkan untuk anak tunagrahita, menemukan pola perkembangan anak tunagrahita, serta mencari problematika pelaksanaan asesmen di TK LB C1 Dharma Rena Ring Putra. Penelitian ini merupakan penelitian kualitatif dengan metode pengumpulan data observasi, wawancara, dan dokumentasi. Analisis data dilakukan dengan langkah mereduksi data, menyajikan data serta menyimpulkan data. Pemerikasan keabsahan data dilakukan dengan menggunakan triangulasi teknik. Hasil penelitian menunjukan proses pelaksanaan asesmen di TK LB C 1 Drama Rena Ringputra I Yogyakarta dialkukan dengan dua cara yaitu: Pertama, Asesmen perkembangan anak disabilitas, pelaksanan dimulai dengan asesmen prasekolah yang bertujuan untuk mendiskripsikan kemampuan serta hambatan pada anak sebelum masuk sekolah, kemudia dilanjutkan asemen pasca sekolah, sebagai tindak lanjut sesmen pasca sekolah yang bertujuan mengembangkan kemampuan anak dengan mengacu tahapan perkembangan anak disabilitas atau TPPAD (Tingkat Pencapaian Perkembangan Anak Disabilitas). Kedua, Asesmen perkembangan anak tunagrahita dari sudut kenormal, pelaksanan asesmen anak disabilitas dari kenormal dimulai dengan pengamatan setiap hari, pencatatan harian, menganalisa data setiap bulan dan rekap perkembangan selama semester dengan mengacu pada STPPA (Setandar tingkat pencapaian perkembangan anak). Pola perkembangan anak tunagrahrita selalu berkembang berpasang-pasangan, aspek kognitif selalu berpasangan dengan aspek motorik, aspek sosial emosional berpasangan dengan nilai moral agama sedangakan aspek perkembangan bahasa dan seni selalu mengiringi aspek-aspek tersebut. Problem matika pelaksanaan asesmen, masih kurang pahamnya akan pelaksanaan asesmen, kurangnya buku panduan asesmen.   Kata Kunci: Tunagrahita, Asesmen, Perkembangan anak. Abstract The purpose of this study is to analyze the assessment implementation process applied to mentally retarded children, find patterns of development of mentally retarded children, and look for problems in carrying out assessments at TK LB C1 Dharma Rena Ring Putra. This research is a qualitative research with location in SLB C-1 Dharma Rena Ring Putra I Yogyakarta. Data collection is done by observation, interview, and documentation. Data analysis is done by reducing, presenting and concluding data. Data validity is done by using technique triangulation. The results showed the process of conducting the assessment in TK LB C 1 Drama Rena Ringputra I Yogyakarta was conducted in two ways: disabled child development assessment, the implementation begins with a preschool assessment that aims to describe the ability and barriers to the children before entering school, then continued assessment of post-school, as a follow-up post-school assessment that aims to develop and maximize the ability of children by referring to the development stage of children with disability or commonly called TPPAD (Level Achievement of Children Development Disability). Second, the assessment of the development of the intellectual disability children from the normal point, the implementation of the child's assessment of disability from the normality begins with daily observation, daily recording, analyzing data every month and recap the progress during the semester. The process of implementing the child's assessment of intellectual disability from the angle of normality refers to STPPA (Standard level of child development achievement).. Pattern development of intellectual disability children always develop in pairs, cognitive aspect always pairs with motor aspect, emotional social aspect paired with religion moral value while the aspect of language development and art always accompany those aspects. Problematic implementation of the assessment is the absence of assessment standards and appraisal books for intellectual disability children. Keyword : mentally disabled, assessment, childrent development


10.16993/bbl ◽  
2021 ◽  
Author(s):  
Simo Vehmas ◽  
Reetta Mietola

What is day-to-day life like for people with profound intellectual and multiple disabilities who live in group homes? How do they express their desires and wishes? How do care workers think about them and treat them? Do they have basic rights to activities most of us take for granted: activities like sociability, sexuality, and moral affirmation? Narrowed Lives is an illuminating portrait of what life is like in Finnish group homes where adults who have profound intellectual and multiple disabilities live their lives. Based upon ethnographic data, it documents how care workers strive to guarantee individuality and dignity against a backdrop of scarce resources and misguided policies. This book argues that the lives of people with profound disabilities need not be determined by their impairments. It calls for a re-evaluation of disability policy so that its underlying conviction of people with profound intellectual and multiple disabilities as equally valuable fellow humans would materialise in practice. This novel and accessible book combines ethnography and philosophy, and will be of interest to researchers and students in disability studies, special education and philosophy, as well as parents, professionals and policy makers.


2019 ◽  
Vol 42 ◽  
Author(s):  
Laurent Mottron

Abstract Stepping away from a normocentric understanding of autism goes beyond questioning the supposed lack of social motivation of autistic people. It evokes subversion of the prevalence of intellectual disability even in non-verbal autism. It also challenges the perceived purposelessness of some restricted interests and repetitive behaviors, and instead interprets them as legitimate exploratory and learning-associated manifestations.


2000 ◽  
Vol 44 (6) ◽  
pp. 666-676 ◽  
Author(s):  
J. Robertson ◽  
E. Emerson ◽  
N. Gregory ◽  
C. Hatton ◽  
S. Kessissoglou ◽  
...  

2016 ◽  
Vol 22 ◽  
pp. 12
Author(s):  
Laura Gray ◽  
Yogini Chudasama ◽  
Alison Dunkley ◽  
Freya Tyrer ◽  
Rebecca Spong ◽  
...  

2009 ◽  
Vol 20 (2) ◽  
pp. 47-48
Author(s):  
G.-Jürgen Hogrefe
Keyword(s):  

2017 ◽  
Vol 46 (3) ◽  
pp. 176-186 ◽  
Author(s):  
Jürgen Margraf ◽  
Jan Christopher Cwik ◽  
Verena Pflug ◽  
Silvia Schneider

Zusammenfassung. Psychische Störungen können über die ganze Lebensspanne auftreten. Strukturierte klinische Interviews sind zentrale Hilfsmittel für ihre rasche, zuverlässige und umfassende Diagnostik. Im deutschsprachigen Raum stehen mit den Verfahren der DIPS-Familie Interviews zur Diagnostik psychischer Störungen über die gesamte Lebensspanne zur Verfügung, die seit den 90er Jahren regelmäßig aktualisiert wurden. Ihre Reliabilität, Validität und Akzeptanz wurde wiederholt in großen Stichproben aus ambulanten, stationären und Forschungssettings überprüft. Die Einführung des DSM-5 erforderte eine umfassende Überarbeitung der DIPS-Interviews, deren wesentliche Merkmale dargestellt werden. Um die breitere Verwendung von strukturierten klinischen Interviews zu fördern, werden die Verfahren der DIPS-Familie neu als „Open Access-Dokumente“ zur Verfügung gestellt. Abschließend werden weitere Entwicklungen zu Training, Dissemination und Computerisierung im Ausblick angesprochen.


2009 ◽  
Vol 25 (3) ◽  
pp. 131-132
Author(s):  
Karl Schweizer ◽  
Eric E.J. De Bruyn ◽  
G.-Jürgen Hogrefe
Keyword(s):  

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