Case study: hidden complexity of medicines use: information provided by a person with intellectual disability and diabetes to a pharmacist

2015 ◽  
Vol 43 (3) ◽  
pp. 234-242 ◽  
Author(s):  
Bernadette Flood ◽  
Martin C. Henman
Keyword(s):  
Intellectual Disability ◽  
Medicines Use

scholarly journals Restrictive practices on refugees in Australia with intellectual disability and challenging behaviours: a family’s story

2016 ◽  
Vol 10 (4) ◽  
pp. 222-232 ◽  
Author(s):  
Julie King ◽  
Niki Edwards ◽  
Ignacio Correa-Velez ◽  
Rosalyn Darracott ◽  
Maureen Fordyce
Keyword(s):  
Intellectual Disability ◽  
Service Provision ◽  
Service System ◽  
Ethnographic Study ◽  
Refugee Status ◽  
Content Type ◽  
Loved One ◽  
Restrictive Practice ◽  
Complex Disability

Purpose The purpose of this paper is to explore the experiences of a refugee family navigating complex disability and restrictive practice service systems. Living with disability, or caring for someone with disability can compound the disadvantage and marginalisation already experienced by refugees. The nexus between disability and refugee status, particularly intellectual disability and restrictive practices, has received little scholarly attention and almost nothing is known of people’s experiences in this situation. Design/methodology/approach Thematic analysis of a case study is used to illustrate the experiences of a refugee family in this situation. The case study presented was part of a larger ethnographic study exploring the experiences of people of refugee background living with disability. Findings There were numerous barriers to accessing appropriate services. The family experienced high levels of stress simultaneously navigating the resettlement process and the disability service system. They were poorly informed and disempowered regarding the care of their loved one and the use of restrictive practices. Experiences in the country of origin, employment responsibilities, and unfamiliarity with the service system were key factors in this family’s difficulty in safeguarding the rights of their family member with disability. Originality/value This case study examines the complexity experienced when disability intersects with refugee background. Areas for additional research and significant gaps in service provision are identified. The case study clearly demonstrates the importance of understanding people’s pre- and post-settlement experiences to inform policy and service provision.

scholarly journals An AAC Mobile-Based Application for People with Intellectual Disability: A Case Study in Brazil

2020 ◽  
Vol 2020 ◽  
pp. 1-12
Author(s):  
Mauro José Conte ◽  
Marcelo Gitirana Gomes Ferreira ◽  
Alejandro R. García Ramírez
Keyword(s):  
Intellectual Disability ◽  
Augmentative And Alternative Communication ◽  
Communication Disorders ◽  
User Centered Design ◽  
Alternative Communication ◽  
Educational Value ◽  
Rehabilitation Process ◽  
System Usability Scale ◽  
System Usability

Augmentative and Alternative Communication (AAC) techniques are employed to mediate communication with people who have communication disorders, as in cases of intellectual disability. Although there are various digital solutions that promote alternative communication options for individuals with communication disorders, only a few of them have been specifically designed or targeted to people with intellectual disability (ID). This work is motivated by the lack of AAC solutions contributing to the rehabilitation processes of individuals with intellectual disability in Brazil. The study presents a mobile-based AAC solution conceived as a tool to assist the rehabilitation process of people with ID. The design was based on user-centered design principles and accessibility standards. The System Usability Scale (SUS) questionnaire was used to evaluate the solution. Four specialists and twenty-five students participated in this study. The proposed solution shows the potential educational value for professionals who assist individuals with intellectual disability in Brazil.

scholarly journals SIBLING RIVALRY ANTARA ANAK DENGAN MILD INTELLECTUAL DISABILITY DAN SAUDARA KANDUNG

2015 ◽  
Vol 2 (2) ◽  
Author(s):  
Nago Tejena ◽  
Tience Debora Valentina
Keyword(s):  
Intellectual Disability ◽  
Sampling Technique ◽  
Sibling Rivalry ◽  
Data Organization ◽  
Mild Intellectual Disability ◽  
Case Study Approach ◽  
Study Approach ◽  
Field Note ◽  
Children With Intellectual Disability

Human grow and develop throughout their life. There are several factors that influence human development. When there is an interference on these factors, it will cause developmental delays in children, such as intellectual disability. Children with intellectual disability require extra attention from the family. This will trigger a fight for resources between children with intellectual disability and their siblings. This situation will create conflict between them, which leads to sibling rivalry. The aim of this study is to determine the dynamics of sibling rivalry between child with mild intellectual disability and her siblings. This qualitative research is designed with case study approach. Sampling technique used is purposive sampling. Subject of this study is an 11 years old child with mild intellectual disability, who has two siblings. Data collecting techniques used are observation, interview, field note and audio- visual recording. The data were analyzed using data organization technique for qualitative study with case study approach according to Cresswell (1998). Based on the results from data organization,  this study found 33 categories that can be grouped into 6 patterns. The patterns are 1) sibling rivalry factors; 2) fight’s trigger; 3) types of sibling rivalry; 4) problem solving method when there is a conflict; 5) situation after the fight finished; and 6) the differences of point of view between subject and her siblings.   Keywords : sibling rivalry, mild intellectual disability, child.

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