To what extent do disease severity and illness perceptions explain depression, anxiety and quality of life in hidradenitis suppurativa?

2018 ◽  
Vol 180 (2) ◽  
pp. 338-345 ◽  
Author(s):  
A. Pavon Blanco ◽  
M.A. Turner ◽  
G. Petrof ◽  
J. Weinman
Keyword(s):  
Quality Of Life ◽  
Disease Severity ◽  
Hidradenitis Suppurativa ◽  
Illness Perceptions

Trends in Hidradenitis Suppurativa Disease Severity and Quality of Life Outcome Measures: A Systematic Review (Preprint)

2021 ◽  
Author(s):  
Jalal Maghfour ◽  
Torunn Elise Sivesind ◽  
Cory A. Dunnick ◽  
Robert Paul Dellavalle
Keyword(s):  
Quality Of Life ◽  
Systematic Review ◽  
Disease Severity ◽  
Outcome Measures ◽  
Hidradenitis Suppurativa ◽  
Life Quality ◽  
Clinical Score ◽  
Validity And Reliability ◽  
Patient Reported

BACKGROUND While there has been an increase in the number of randomized, controlled trials (RCTs) evaluating treatment efficacy for HS, instrument measurements of disease severity and quality of life (QoL) are varied, making compilation of data and comparison between studies a challenge for clinicians. OBJECTIVE The aim of this review is to evaluate trends in disease severity scales and patient reported outcome measures used in RCTs assessing treatment interventions among HS patients. METHODS A primary systematic literature review was conducted in August 2020. PubMed/MEDLINE, Embase, Web of Science, and Cochrane databases were used to identify all articles published from January 1964 to July 2020. The study was prospectively registered with PROSPERO (ID: 209582). Twenty-five articles were included in the systematic review. RESULTS Sartorius and modified Sartorius scores (n=8), and Hidradenitis Suppurativa Clinical score (HiSCs) (n=8) were the most commonly used instruments for disease severity. Participants’ pain, followed by Dermatology Life Quality Index (DLQI), were the most common QoL measures used in the reviewed studies. CONCLUSIONS Heterogeneity of data characterizing both the validity and reliability of existing outcome measures hinders interpretation and translation of the results from RCTs into clinical practice. Many of the QoL measures identified were not specific to HS and may not be representative of all factors impacting patients.

scholarly journals Trends in Hidradenitis Suppurativa Disease Severity and Quality of Life Outcome Measures (Preprint)

10.2196/27869 ◽  
2021 ◽  
Author(s):  
Jalal Maghfour ◽  
Torunn Elise Sivesind ◽  
Robert Paul Dellavalle ◽  
Cory Dunnick
Keyword(s):  
Quality Of Life ◽  
Disease Severity ◽  
Outcome Measures ◽  
Hidradenitis Suppurativa

scholarly journals Patients with Hidradenitis Suppurativa Suffer from Low Health-Related Quality of Life as Measured by the Generic 15D Instrument

2021 ◽  
pp. 1-7
Author(s):  
Mirkka J. Hirvonen ◽  
Rafael Pasternack ◽  
Tiina Lipitsä ◽  
Armi Vihervaara ◽  
Rauno Harvima ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Disease Severity ◽  
Hidradenitis Suppurativa ◽  
Clinical Severity ◽  
Dimensional Measure ◽  
Measurement Tools ◽  
Health Related Qol ◽  
Related Quality ◽  
Health Related

<b><i>Introduction:</i></b> Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease associated with various comorbidities and diminished quality of life (QoL). Among dermatological conditions, HS is reported to most severely diminish QoL. This study aimed to analyse the health-related QoL (HRQoL) of patients with HS in more detail by using generic to disease-specific HRQoL questionnaires. Correlations between the HRQoL measures and HS disease severity measures were assessed. <b><i>Methods:</i></b> We analysed the HRQoL and clinical severity of patients with HS (<i>N</i> = 92) treated in 5 Finnish hospitals using HRQoL measurement tools most often used in dermatological clinics, as well as the generic 15D instrument (standardized and self-administered 15-dimensional measure of HRQoL). The disease severity was assessed using the Hurley stage, International Hidradenitis Suppurativa Severity Score System, and disease severity evaluation by the investigator. <b><i>Results:</i></b> The mean 15D score of HS patients was low and comparable with that of patients with cancers. No correlation was found between HS severity measures and 15D score, indicating that even mild HS has a high impact on HRQoL. <b><i>Conclusions:</i></b> Our findings strengthen the understanding about HS as a debilitating disease and even compared with non-dermatological conditions and highlight the need of comprehensive care of patients with HS.

The impact of illness perceptions and disease severity on quality of life in congenital heart disease

2015 ◽  
Vol 26 (1) ◽  
pp. 100-109 ◽  
Author(s):  
Claire E. O’Donovan ◽  
Liz Painter ◽  
Boris Lowe ◽  
Hayley Robinson ◽  
Elizabeth Broadbent
Keyword(s):  
Quality Of Life ◽  
Congenital Heart Disease ◽  
Heart Disease ◽  
Disease Severity ◽  
Congenital Heart ◽  
Illness Perceptions ◽  
Psychological Outcomes ◽  
Relative Impact ◽  
Regression Analyses

AbstractBackgroundDespite an increasing prevalence of adults living with a CHD, little is known about the psychosocial impact of CHD. We sought to investigate the relative impact of disease severity and patients’ perceptions about their condition on depression, anxiety, and quality of life over a period of a year.MethodsA total of 110 patients aged over 16 years completed an initial questionnaire containing measures for anxiety, depression, quality of life, and illness perceptions when they attended the Adult Congenital Heart Disease Clinic. Cardiologists rated the patients’ disease severity and illness course. A year later, patients were invited to complete the same measures. Regression analyses were performed to determine the relative impact of illness perceptions and disease severity on psychological outcomes a year later.ResultsAt baseline, 23% of the study population had depressive symptoms and 30% had elevated trait anxiety. After controlling for associations with disease-related variables, illness perceptions explained 28% of the variance in depression, 40% anxiety, and 27% overall quality of life at baseline. Baseline illness perceptions bivariately predicted quality of life, cardiac anxiety, and depression 1 year later, and regression analyses controlling for other factors showed that they were significant predictors of outcomes 1 year later.ConclusionSymptoms of depression and anxiety are common among adults with CHD. Patients’ illness perceptions are related to psychological outcomes, especially cross-sectionally. Future research could investigate whether an intervention to discuss patients’ perceptions about their CHD can improve mental health and quality of life.

Role of disease severity, illness perceptions, and mood on quality of life in muscle disease

2012 ◽  
Vol 46 (3) ◽  
pp. 351-359 ◽  
Author(s):  
Michael R. Rose ◽  
Reza Sadjadi ◽  
John Weinman ◽  
Tayyaba Akhtar ◽  
Shree Pandya ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Disease Severity ◽  
Illness Perceptions ◽  
Muscle Disease
Sign in / Sign up

Export Citation Format

Share Document