Optimizing delivery of recovery-oriented online self-management strategies for bipolar disorder: a review

2014 ◽  
Vol 17 (2) ◽  
pp. 115-127 ◽  
Author(s):  
Nuwan D Leitan ◽  
Erin E Michalak ◽  
Lesley Berk ◽  
Michael Berk ◽  
Greg Murray
Keyword(s):  
Bipolar Disorder ◽  
Management Strategies ◽  
Self Management

Self-management strategies used by ‘high functioning’ individuals with bipolar disorder: from research to clinical practice

2010 ◽  
Vol 18 (2) ◽  
pp. 95-109 ◽  
Author(s):  
Greg Murray ◽  
Melinda Suto ◽  
Rachelle Hole ◽  
Sandra Hale ◽  
Erica Amari ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Clinical Practice ◽  
Management Strategies ◽  
Self Management ◽  
High Functioning

scholarly journals Engaging Youth in the Bipolar Youth Action Project: Community-Based Participatory Research (Preprint)

2020 ◽  
Author(s):  
Laura Lapadat ◽  
Anusha Balram ◽  
Joanna Cheek ◽  
Eugenia Canas ◽  
Andrea Paquette ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Data Analysis ◽  
Participatory Research ◽  
Management Strategies ◽  
Community Based Participatory Research ◽  
Academic Community ◽  
Self Management ◽  
Community Based ◽  
Action Project ◽  
Peer Researchers

BACKGROUND We describe the methodological dimensions of community-based participatory research through a description of study design, youth engagement, and methods/processes in the cocreation of knowledge within a Canadian study, the Bipolar Youth Action Project. This collaborative partnership—carried out by a team composed of academic, community, and youth partners—was designed to investigate self-management and wellness strategies for young adults living with bipolar disorder. OBJECTIVE The aim is to describe the opportunities and challenges of this collaboration and to reflect upon the process of involving youth with bipolar disorder in health research that concerns them, and share lessons learned. METHODS The project was conducted in multiple phases over 2 years: (1) grant-writing, with youth contributing to the process; (2) recruitment, in which 12 youth were selected and trained to help shape and conduct two research forums; (3) the first research forum, where more youth were consulted about the strategies they apply to stay well (self-management strategies); (4) data analysis of Forum I findings; (5) research Forum II, which consulted youth with bipolar disorder about knowledge translation of Forum I findings; and (6) data analysis of Forum II findings. Youth peer researchers with bipolar disorder were involved in a significant capacity at every stage in the process. RESULTS Of the initial 12 youth peer researchers, 7 remained on the project from the recruitment phase until the project ended. They collaborated in the creation of two youth research forums that consulted youth with bipolar disorder on their self-management strategies. CONCLUSIONS This article shares what was learned from the process of partnering with youth with bipolar disorder in a community-based participatory research study. CLINICALTRIAL

scholarly journals Development of Coaching Support for LiveWell: A Smartphone-Based Self-Management Intervention for Bipolar Disorder (Preprint)

2020 ◽  
Author(s):  
Cynthia A. Dopke ◽  
Alyssa McBride ◽  
Pamela Babington ◽  
Geneva K. Jonathan ◽  
Tania Michaels ◽  
...  
Keyword(s):  
Mental Health ◽  
Bipolar Disorder ◽  
Management Strategies ◽  
Self Management ◽  
Care Providers ◽  
Attrition Rates ◽  
Health Technologies ◽  
Management Intervention ◽  
Training And Supervision ◽  
Human Support

UNSTRUCTURED Despite effective pharmacological treatment, bipolar disorder is a leading cause of disability due to the common recurrence of episodes, long episode durations, and persistence of inter-episode symptoms. While adding psychotherapy to pharmacotherapy improves outcomes, the availability of adjunctive psychotherapy is limited. To extend the accessibility and functionality of psychotherapy for bipolar disorder, we developed LiveWell, a smartphone-based self-management intervention. Unfortunately, many mental health technology interventions suffer from high attrition rates with users rapidly failing to maintain engagement with the intervention technology. Human support reduces this commonly observed engagement problem but does not consistently improve clinical and recovery outcomes. To facilitate ongoing efforts to develop human support for digital mental health technologies, this paper describes the design decisions, theoretical framework, content, mode, and timing of delivery, as well as the training and supervision for coaching support of the LiveWell technology. This support includes three clearly defined and structured roles that aim to encourage use of the technology, self-management strategies, and communication with care providers. A clear division of labor is established between the coaching support roles and the intervention technology to allow lay personnel to serve as coaches and thereby maximize accessibility to the LiveWell intervention.

scholarly journals Engaging Youth in the Bipolar Youth Action Project: Community-Based Participatory Research

10.2196/19475 ◽  
2020 ◽  
Vol 12 (3) ◽  
pp. e19475
Author(s):  
Laura Lapadat ◽  
Anusha Balram ◽  
Joanna Cheek ◽  
Eugenia Canas ◽  
Andrea Paquette ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Data Analysis ◽  
Participatory Research ◽  
Management Strategies ◽  
Community Based Participatory Research ◽  
Academic Community ◽  
Self Management ◽  
Community Based ◽  
Action Project ◽  
Peer Researchers

Background We describe the methodological dimensions of community-based participatory research through a description of study design, youth engagement, and methods/processes in the cocreation of knowledge within a Canadian study, the Bipolar Youth Action Project. This collaborative partnership—carried out by a team composed of academic, community, and youth partners—was designed to investigate self-management and wellness strategies for young adults living with bipolar disorder. Objective The aim is to describe the opportunities and challenges of this collaboration and to reflect upon the process of involving youth with bipolar disorder in health research that concerns them, and share lessons learned. Methods The project was conducted in multiple phases over 2 years: (1) grant-writing, with youth contributing to the process; (2) recruitment, in which 12 youth were selected and trained to help shape and conduct two research forums; (3) the first research forum, where more youth were consulted about the strategies they apply to stay well (self-management strategies); (4) data analysis of Forum I findings; (5) research Forum II, which consulted youth with bipolar disorder about knowledge translation of Forum I findings; and (6) data analysis of Forum II findings. Youth peer researchers with bipolar disorder were involved in a significant capacity at every stage in the process. Results Of the initial 12 youth peer researchers, 7 remained on the project from the recruitment phase until the project ended. They collaborated in the creation of two youth research forums that consulted youth with bipolar disorder on their self-management strategies. Conclusions This article shares what was learned from the process of partnering with youth with bipolar disorder in a community-based participatory research study.

Effective self-management strategies for bipolar disorder: A community-engaged Delphi Consensus Consultation study

2016 ◽  
Vol 206 ◽  
pp. 77-86 ◽  
Author(s):  
Erin E. Michalak ◽  
Melinda J. Suto ◽  
Steven J. Barnes ◽  
Sharon Hou ◽  
Sara Lapsley ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Management Strategies ◽  
Self Management ◽  
Delphi Consensus

Beyond symptom monitoring: Consumer needs for bipolar disorder self-management using smartphones

2017 ◽  
Vol 44 ◽  
pp. 210-216 ◽  
Author(s):  
J. Nicholas ◽  
K. Boydell ◽  
H. Christensen
Keyword(s):  
Bipolar Disorder ◽  
Young Adults ◽  
Technology Use ◽  
Data Privacy ◽  
Management Strategies ◽  
Ease Of Use ◽  
Warning Signs ◽  
Self Management ◽  
Scientific Quality ◽  
Wide Range

AbstractObjectives:To investigate the potential use of smartphone apps to support self-management in young adults with bipolar disorder.Methods:We recruited 89 young adults (18–30 years) with bipolar disorder to complete a cross-sectional online survey. The survey contained quantitative and qualitative questions regarding technology use, current use of disorder-management apps, types of apps desired for disorder management, and app features that users would consider important when selecting apps. Results were analysed using descriptive statistics and thematic analysis.Results:Almost all participants used a smartphone daily and 40% currently used apps for disorder management. Of those not currently using apps, 79% indicated they would like to try them. On average, participants rated 61% of the self-management strategies listed as desirable for app support, with sleep-management, understanding early warning signs and triggers, and stay-well plans the most frequently endorsed. App features considered important during app selection were ease-of-use, scientific quality, flexibility/customisation, and data privacy.Conclusions:The results indicate that young adults with bipolar disorder are interested in a wide range of apps for self-management. Participants were interested in apps to support self-management strategies considered clinically important for disorder management. Many of these app needs are currently unmet. Results suggest diversifying and prioritising app capabilities to ensure evidence-based resources for a broader range of app functions are available to consumers.

scholarly journals Integrating Delphi Consensus Consultation and Community- Based Participatory Research

2019 ◽  
Vol 5 (1) ◽  
pp. 21-35
Author(s):  
Melinda J. Suto ◽  
Sara Lapsley ◽  
Anusha Balram ◽  
Steven J. Barnes ◽  
Sharon Hou ◽  
...  
Keyword(s):  
Bipolar Disorder ◽  
Participatory Research ◽  
Management Strategies ◽  
Community Based Participatory Research ◽  
Self Management ◽  
Delphi Consensus ◽  
Community Members ◽  
Community Based ◽  
Personal Reflections ◽  
Five Phases

Delphi consensus consultation methods and community-based participatory research (CBPR) are distinct approaches that have traditionally been employed separately. This paper explores the integration of Delphi methods with CBPR in a research project that sought to identify effective self-management strategies for bipolar disorder (BD). We introduce our Canadian-based network which specializes in CBPR in BD, and outline the key principles of CBPR approaches. Delphi consensus consultation methods are described and we present the five phases of our Delphi consensus consultation project, conducted within a CBPR framework. Examples of how each project phase incorporated the principles of CBPR are provided, as are personal reflections of community members involved in the project, and broader reflections on challenges commonly encountered in CBPR projects. 

A Case Study: Unique Challenges of an Adolescent Female With Autism Spectrum Disorder

2020 ◽  
Vol 5 (1) ◽  
pp. 314-325
Author(s):  
Kimberly F. Frazier ◽  
Jessica Collier ◽  
Rachel Glade
Keyword(s):  
Autism Spectrum Disorder ◽  
Cognitive Abilities ◽  
Social Cognitive ◽  
Social Performance ◽  
Management Strategies ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Self Management ◽  
Adolescent Female ◽  
Social Thinking

Background The aim of this study was to determine the clinical efficacy of combining self-management strategies and a social thinking approach to address the social performance and executive function of an adolescent female with autism spectrum disorder. Method This research examined the effects of a social knowledge training program, “Think Social,” as well as strategies to improve higher order cognitive abilities. Results and Conclusion Although quantitative improvement was not found, several qualitative gains in behavior were noted for the participants of this study, suggesting a benefit from using structured environmental cues of self-management strategies, as well as improved social understanding through social cognitive training.

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