scholarly journals Quality of life in coeliac disease: item reduction, scale development and psychometric evaluation of the Coeliac Disease Assessment Questionnaire (CDAQ)

2018 ◽  
Vol 48 (8) ◽  
pp. 852-862 ◽  
Author(s):  
Helen Crocker ◽  
Crispin Jenkinson ◽  
Michele Peters
Keyword(s):  
Quality Of Life ◽  
Scale Development ◽  
Coeliac Disease ◽  
Psychometric Evaluation ◽  
Disease Assessment ◽  
Item Reduction ◽  
Reduction Scale ◽  
Assessment Questionnaire

Psychometric Evaluation of a New Patient-Completed Questionnaire for Evaluating Anal Incontinence Symptoms and Impact on Quality of Life: The ICIQ-B

2011 ◽  
Vol 54 (10) ◽  
pp. 1235-1250 ◽  
Author(s):  
Nikki Cotterill ◽  
Christine Norton ◽  
Kerry N. L. Avery ◽  
Paul Abrams ◽  
Jenny L. Donovan
Keyword(s):  
Quality Of Life ◽  
Anal Incontinence ◽  
Psychometric Evaluation

scholarly journals The impact of symptoms on quality of life before and after diagnosis of coeliac disease: the results from a Polish population survey and comparison with the results from the United Kingdom

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Emilia Majsiak ◽  
Magdalena Choina ◽  
Dominik Golicki ◽  
Alastair M. Gray ◽  
Bożena Cukrowska
Keyword(s):  
Quality Of Life ◽  
United Kingdom ◽  
Coeliac Disease ◽  
Gluten Free Diet ◽  
Gluten Free ◽  
The United Kingdom ◽  
Before And After ◽  
The Mean ◽  
The Uk

Abstract Background Coeliac disease (CD) is characterised by diverse clinical symptoms, which may cause diagnostic problems and reduce the patients’ quality of life. A study conducted in the United Kingdom (UK) revealed that the mean time between the onset of coeliac symptoms and being diagnosed was above 13 years. This study aimed to analyse the diagnostic process of CD in Poland and evaluate the quality of life of patients before and after CD diagnosis. In addition, results were compared to the results of the original study conducted in the UK. Methods The study included 2500 members of the Polish Coeliac Society. The patients were asked to complete a questionnaire containing questions on socio-demographic factors, clinical aspects and quality of life, using the EQ-5D questionnaire. Questionnaires received from 796 respondents were included in the final analysis. Results The most common symptoms reported by respondents were bloating (75%), abdominal pain (72%), chronic fatigue (63%) and anaemia (58%). Anaemia was the most persistent symptom, with mean duration prior to CD diagnosis of 9.2 years, whereas diarrhoea was observed for the shortest period (4.7 years). The mean duration of any symptom before CD diagnosis was 7.3 years, compared to 13.2 years in the UK. CD diagnosis and the introduction of a gluten-free diet substantially improved the quality of life in each of the five EQ-5D-5L health dimensions: pain and discomfort, anxiety and depression, usual activities, self-care and mobility (p < 0.001), the EQ-Index by 0.149 (SD 0.23) and the EQ-VAS by 30.4 (SD 28.3) points. Conclusions Duration of symptoms prior to the diagnosis of CD in Poland, although shorter than in the UK, was long with an average of 7.3 years from first CD symptoms. Faster CD diagnosis after the onset of symptoms in Polish respondents may be related to a higher percentage of children in the Polish sample. Introduction of a gluten-free diet improves coeliac patients’ quality of life. These results suggest that doctors should be made more aware of CD and its symptoms across all age groups.

scholarly journals A preliminary psychometric evaluation of Music in Dementia Assessment Scales (MiDAS)

2014 ◽  
Vol 26 (6) ◽  
pp. 1011-1019 ◽  
Author(s):  
Orii McDermott ◽  
Vasiliki Orgeta ◽  
Hanne Mette Ridder ◽  
Martin Orrell
Keyword(s):  
Quality Of Life ◽  
Music Therapy ◽  
Sample Size ◽  
Psychometric Properties ◽  
Care Home ◽  
Psychometric Evaluation ◽  
Small Sample ◽  
Rater Reliability ◽  
Assessment Scales

ABSTRACTBackground:Music in Dementia Assessment Scales (MiDAS), an observational outcome measure for music therapy with people with moderate to severe dementia, was developed from qualitative data of focus groups and interviews. Expert and peer consultations were conducted at each stage of the scale development to maximize its content validity. This study aimed to evaluate the psychometric properties of MiDAS.Methods:Care home residents with dementia attended weekly group music therapy for up to ten sessions. Music therapists and care home staff were requested to complete weekly MiDAS ratings. The Quality of Life Scale (QoL-AD) was completed at three time-points.Results:A total of 629 (staff = 306, therapist = 323) MiDAS forms were completed. The statistical analysis revealed that MiDAS has high therapist inter-rater reliability, low staff inter-rater reliability, adequate staff test-retest reliability, adequate concurrent validity, and good construct validity. High factor loadings between the five MiDAS Visual Analogue Scale (VAS) items, levels of Interest, Response, Initiation, Involvement, and Enjoyment, were found.Conclusions:This study indicates that MiDAS has good psychometric properties despite the small sample size. Future research with a larger sample size could provide a more in-depth psychometric evaluation, including further exploration of the underlying factors. MiDAS provides a measure of engagement with musical experience and offers insight into who is likely to benefit on other outcomes such as quality of life or reduction in psychiatric symptoms.

scholarly journals Measurement Scale Development for Mobility-Related Quality of Life among Older Malaysian Drivers

2017 ◽  
Vol 43 (3) ◽  
pp. 265-278 ◽  
Author(s):  
Sok Foon Yeoh ◽  
Jennifer Oxley ◽  
Rahimah Ibrahim ◽  
Tengku Aizan Hamid ◽  
Sharifah Norazizan Syed Abd. Rashid
Keyword(s):  
Quality Of Life ◽  
Scale Development ◽  
Measurement Scale ◽  
Related Quality
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