scholarly journals Paediatric ischaemic stroke is a valid diagnosis in the Swedish National Patient Register

2021 ◽  
Author(s):  
Anna Walås ◽  
Katarina Svensson ◽  
Maria Gyris ◽  
Peter Bang ◽  
Heléne E. K. Sundelin
Keyword(s):  
Ischaemic Stroke ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient

Gender differences in delays to diagnosis of acromegaly: data from the Swedish National Patient Register

2018 ◽  
Author(s):  
Daniel Granfeldt ◽  
AEse Bjorstad ◽  
Marlow Tom ◽  
Anthony Berthon ◽  
Jerome Dinet ◽  
...  
Keyword(s):  
Gender Differences ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient

scholarly journals Validity and reliability of social anxiety disorder diagnoses in the Swedish National Patient Register

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Alba Vilaplana-Pérez ◽  
Josef Isung ◽  
Sonja Krig ◽  
Sarah Vigerland ◽  
Maral Jolstedt ◽  
...  
Keyword(s):  
Anxiety Disorder ◽  
Social Anxiety ◽  
Social Anxiety Disorder ◽  
Validity And Reliability ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient

scholarly journals Validating surgical procedure codes for inflammatory bowel disease in the Swedish National Patient Register

2019 ◽  
Author(s):  
Anders Forss ◽  
Pär Myrelid ◽  
Ola Olén ◽  
Åsa H Everhov ◽  
Caroline Nordenvall ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Sensitivity And Specificity ◽  
Bowel Disease ◽  
Surgical Procedure ◽  
High Sensitivity ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient ◽  
Inflammatory Bowel ◽  
Procedure Codes

Abstract Validating surgical procedure codes for inflammatory bowel disease in the Swedish National Patient Register Background: About 50% of patients with Crohn’s disease (CD) and about 20% of those with ulcerative colitis (UC) undergo surgery at some point during the course of the disease. The diagnostic validity of the Swedish National Patient Register (NPR) has previously been shown to be high for inflammatory bowel disease (IBD), but there are little data on the validity of IBD-related surgical procedure codes. Methods: Using patient chart data as the gold standard, surgical procedure codes registered between 1966 and 2014 in the NPR were abstracted and validated in 262 patients with a medical diagnosis of IBD. Of these, 53 patients had reliable data about IBD-related surgery. The positive predictive value (PPV), sensitivity and specificity of the surgical procedure codes were calculated. Results: In total, 158 codes were registered in the NPR. 155 of these, representing 60 different surgical procedure codes, were also present in the patient charts and validated using a standardized form. Of the validated codes 153/155 were concordant against the patient charts, corresponding to a PPV of 96.8% (95%CI=93.9-99.1). Stratified in abdominal, perianal and other surgery, the corresponding PPVs were 94.1% (95%CI=88.7-98.6), 100% (95%CI=100-100) and 98.1% (95%CI=93.1-100), respectively. Of 164 surgical procedure codes in the validated patient charts, 155 were registered in the NPR, corresponding to a sensitivity of the surgical procedure codes of 94.5% (95%CI=89.6-99.3). The specificity of the NPR was 98.5% (95%CI=97.6-100). Conclusions: Data on IBD-related surgical procedure codes are reliable, with the Swedish National Patient Register showing a high sensitivity and specificity for such surgery. Keywords: Epidemiology, Inflammatory bowel disease, Validation, National Patient Register, Procedure code

scholarly journals Risk of first and recurrent serious infection in sarcoidosis: a Swedish register-based cohort study

2020 ◽  
Vol 56 (3) ◽  
pp. 2000767 ◽  
Author(s):  
Marios Rossides ◽  
Susanna Kullberg ◽  
Anders Eklund ◽  
Daniela Di Giuseppe ◽  
Johan Grunewald ◽  
...  
Keyword(s):  
General Population ◽  
International Classification Of Diseases ◽  
Parametric Models ◽  
National Patient Register ◽  
Patient Register ◽  
Drug Register ◽  
Serious Infection ◽  
Increased Risk ◽  
Serious Infections ◽  
National Patient

Serious infections impair quality of life and increase costs. Our aim was to determine if sarcoidosis is associated with a higher rate of serious infection and whether this varies by age, sex, time since diagnosis or treatment status around diagnosis.We compared individuals with sarcoidosis (at least two International Classification of Diseases codes in the Swedish National Patient Register 2003–2013; n=8737) and general population comparators matched 10:1 on age, sex and residential location (n=86 376). Patients diagnosed in 2006–2013 who were dispensed at least one immunosuppressant ±3 months from diagnosis (Swedish Prescribed Drug Register) were identified. Cases and comparators were followed in the National Patient Register for hospitalisations for infection. Using Cox and flexible parametric models, we estimated adjusted hazard ratios (aHR) and 95% confidence intervals for first and recurrent serious infections (new serious infection >30 days after previous).We identified 895 first serious infections in sarcoidosis patients and 3881 in comparators. The rate of serious infection was increased 1.8-fold in sarcoidosis compared to the general population (aHR 1.81, 95% CI 1.65–1.98). The aHR was higher in females than males and during the first 2 years of follow-up. Sarcoidosis cases treated with immunosuppressants around diagnosis had a three-fold increased risk, whereas nontreated patients had a 50% increased risk. The rate of serious infection recurrence was 2.8-fold higher in cases than in comparators.Serious infections are more common in sarcoidosis than in the general population, particularly during the first few years after diagnosis. Patients who need immunosuppressant treatment around diagnosis are twice as likely to develop a serious infection than those who do not.

scholarly journals Validation of multiple sclerosis diagnoses in the Swedish National Patient Register

2019 ◽  
Vol 34 (12) ◽  
pp. 1161-1169 ◽  
Author(s):  
Chantelle Murley ◽  
Emilie Friberg ◽  
Jan Hillert ◽  
Kristina Alexanderson ◽  
Fei Yang
Keyword(s):  
Multiple Sclerosis ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient

Su2089 Validation of the Use of the ICD-10 Diagnostic Code for Irritable Bowel Syndrome in the Swedish National Patient Register

2014 ◽  
Vol 146 (5) ◽  
pp. S-543 ◽  
Author(s):  
Navkiran Jossan ◽  
Ann-Sofie Backman ◽  
Marie Linder ◽  
Maria Altman ◽  
Magnus Simren ◽  
...  
Keyword(s):  
Irritable Bowel Syndrome ◽  
Diagnostic Code ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient ◽  
Icd 10 ◽  
Irritable Bowel

scholarly journals Validating surgical procedure codes for inflammatory bowel disease in the Swedish National Patient Register

2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Anders Forss ◽  
Pär Myrelid ◽  
Ola Olén ◽  
Åsa H. Everhov ◽  
Caroline Nordenvall ◽  
...  
Keyword(s):  
Inflammatory Bowel Disease ◽  
Sensitivity And Specificity ◽  
Bowel Disease ◽  
Surgical Procedure ◽  
High Sensitivity ◽  
National Patient Register ◽  
Patient Register ◽  
National Patient ◽  
Inflammatory Bowel ◽  
Procedure Codes

Abstract Background About 50% of patients with Crohn’s disease (CD) and about 20% of those with ulcerative colitis (UC) undergo surgery at some point during the course of the disease. The diagnostic validity of the Swedish National Patient Register (NPR) has previously been shown to be high for inflammatory bowel disease (IBD), but there are little data on the validity of IBD-related surgical procedure codes. Methods Using patient chart data as the gold standard, surgical procedure codes registered between 1966 and 2014 in the NPR were abstracted and validated in 262 randomly selected patients with a medical diagnosis of IBD. Of these, 53 patients had reliable data about IBD-related surgery. The positive predictive value (PPV), sensitivity and specificity of the surgical procedure codes were calculated. Results In total, 158 surgical procedure codes were registered in the NPR. One hundred fifty-five of these, representing 60 different procedure codes, were also present in the patient charts and validated using a standardized form. Of the validated codes 153/155 were concordant with the patient charts, corresponding to a PPV of 96.8% (95%CI = 93.9–99.1). Stratified in abdominal, perianal and other surgery, the corresponding PPVs were 94.1% (95%CI = 88.7–98.6), 100% (95%CI = 100–100) and 98.1% (95%CI = 93.1–100), respectively. Of 164 surgical procedure codes in the validated patient charts, 155 were registered in the NPR, corresponding to a sensitivity of the surgical procedure codes of 94.5% (95%CI = 89.6–99.3). The specificity of the NPR was 98.5% (95%CI = 97.6–100). Conclusions Data on IBD-related surgical procedure codes are reliable, with the Swedish National Patient Register showing a high sensitivity and specificity for such surgery.

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